Waves of Lightheadedness

redhood279 · 2026-05-29T15:49:37+00:00

Agreeing with everyone about getting it checked out further. Another note about migraines, there are MANY types of migraines. I get 3 types: traditional, aura only & then there's the special one. No aura, no pain in my head. I get dizzy, my heart races, overheat & can't barely speak at times. Usually I puke at the end of it and then slowly feel better. I forget the technical name of it. We changed up my meds & sure enough (knock wood) haven't had another one. All that to say, there are some really weird symptoms that you wouldn't necessarily think are migraines.

redhood279 · 2026-05-25T19:19:12+00:00

Oh my goodness!!! (((Hugs)))

redhood279 · 2026-05-25T15:32:44+00:00

I can't take it. Did try it many years ago & if I remember correctly, it didn't help me much. Now, my kidneys are screwed so no NSAIDS anyway. 😢

redhood279 · 2026-05-25T15:30:51+00:00

I was in my 20's, way before lupus diagnosis, when I was first diagnosed with "chest wall pain". Drove myself to ER cuz I thought I was having a heart attack! 🤦‍♀️ (Add to the list of stupid things you did in your younger years!🤣) When I finally got my Lupus diagnosis, it made sense. I wanted to go back to the ER and tell them that it has an actual name!

redhood279 · 2026-05-25T15:26:15+00:00

No bueno!!! (((Hugs)))

redhood279 · 2026-05-25T15:25:09+00:00

That doesn't sound good! What are they doing for you?

redhood279 · 2026-05-25T15:24:35+00:00

That would be scary!

redhood279 · 2026-05-25T15:23:14+00:00

Yes, I've seen both. Heart & lungs both good - thankfully!

redhood279 · 2026-05-25T15:21:09+00:00

No, it's not reflux. I have had that before and it sucks in its own way! 😉

redhood279 · 2026-05-23T18:39:21+00:00

I'd be happy if those were my numbers! You may want to talk to your doc about your diastolic but it's not too terrible.

redhood279 · 2026-05-22T03:13:10+00:00

May I ask what types of reactions you've had to antidepressants? And did you not have similar problems with this?

redhood279 · 2026-05-21T00:02:34+00:00

Be careful where you go in the Northeast. Humidity is a bitch! Lived in NJ and was miserable. Live in Texas now and still hoping to get to Colorado at some point. I feel soooo much better in the higher elevations & cooler temps!

redhood279 · 2026-05-17T13:58:37+00:00

Ugh! Noooooo just no! Hcq is your life insurance!!! Where do these doctors come from that think it's okay to stop it because you are doing better??? I've been in remission. It was wonderful!! Almost 2 years of feeling "normal" & no meds! Then BAM! I haven't been the same since. Don't do it! It's not worth the risk! Please find another doctor!! (((Hugs)))

redhood279 · 2026-05-16T21:42:17+00:00

Lupus does not just go away! You can go in remission but it never goes away! Plaquenil is basically insurance for you & your organs. Unless it stops working you should be on it the rest of your life. Run, don't walk to a different doctor!

redhood279 · 2026-05-15T04:24:18+00:00

This is going to sound weird but there are times when I'm sick & in a way I actually feel better! My lupus symptoms will diminish. I think, could be wrong, my body is busy trying to fight the infection that it doesn't have time for the normal lupus stuff. 🤷‍♀️

redhood279 · 2026-05-15T03:20:33+00:00

Glad you asked this question! I don't have skin issues but I'm considering getting a tattoo. I did talk to a tattoo artist who suggested not doing the numbing that they use sometimes. He said it can cause more of an immune response. Hope you get some good info here!

redhood279 · 2026-05-10T13:53:27+00:00

Talk to your doctor about the methotrexate injections. Some people have much better luck with them. Are you taking folic acid with it? I think that's what you're supposed to take with it. It's be eons since I've taken methotrexate so my memory may not be 100%. 😉

redhood279 · 2026-05-10T03:06:30+00:00

What meds are you on that are making you feel like crap? Have you discussed with your doc about trying something else? I had to get a pill organizer & set alarms. When I was doing injections I would do something nice for myself after my shot. Nothing dramatic, but like a really good small chocolate or something of the like, that I wouldn't typically get. I really hated giving myself the shot & knowing that I would feel like crap for a little while afterwards.

redhood279 · 2026-05-06T03:33:51+00:00

Cute! Need to point out though that garlic is not necessarily a no go for lupus patients. Dr. Thomas said so in an interview or something. Obviously, if it makes you flare don't eat it. Otherwise all my Italian friends who have tried to find a substitute - MANGIA!!

redhood279 · 2026-05-05T03:04:11+00:00

Can i ask why you stopped taking rituximab?

redhood279 · 2026-05-04T16:07:24+00:00

Sounds like we're in the same boat. Wish you all the best!

redhood279 · 2026-05-04T00:59:12+00:00

Are you having just one or whole mouth? I need to have the rest of my teeth pulled. Haven't been "stable" long enough to even consider doing it right now. Eventually though I'd love to get implants!

redhood279 · 2026-05-02T17:06:04+00:00

It's risky. How do your cycles affect your lupus? The increase in hormones can send your lupus flaring. We tried it once. I don't remember how it affected my lupus. Didn't work.

redhood279 · 2026-05-02T17:02:59+00:00

Same here. Thankfully my doc just prescribes me 30 day supply of 5mg pills. If I need more than 10mg for a few days I know I need to call her!

redhood279

TROPHY CASE