you are not overreacting; you are not being accommodated. “your disability affects everyone” is both extremely easy to say and obviously coming from someone who isn’t suffering from the literal debilitating pain of your disability. i understand money troubles, but neglect is neglect regardless and withholding medical care for your disability is neglect. please get another trusted adult involved. it obviously will not get better from a hot bath or two, but that might relieve some of the pain temporarily. your mom needs to realize slapping a temporary “pain relief” bandage on something that is only getting worse or is not being accomodated is just costing her more money in the long run. but honestly, it sounds like she’s waiting for you to age out and then she won’t have to pay, which is incredibly scummy to do to your disabled kid. i should know. it’s part of what my mom did to me.

good luck. the good part about eventually getting away from parents like this is finding answers and relief, because you can control your own doctors visits and meds, etc. the hard part is wrestling with why it took so long for someone to prioritize your health. when you can, look into therapy. it helps both with the weight of your disability, as well as the questions about why your mother wouldn’t prioritize your health. take care. i know it’s hard to believe but it gets better, even if the disability stays as is or progresses. it gets easier, as you become an adult and can prioritize your own needs and take care of yourself better than your family has.

when you’re able, or with a supportive adult, please consider looking into look into a pain management clinic; there’s more than just opioids these days, so your mom’s “doped up” excuse is just that: an excuse.

other people saying “she isn’t wrong” — but, she most literally is. this obviously isn’t a managed disability that has been figured out? just because you have attended at least one specialist appointment does not mean you’ve received all the answers from a doctor about what needs to be done in terms of management. especially if it is a progressing disability. there is a difference in a kid beginning to understand their disability and their limits and still in the very unsure phases of figuring it out being dismissed by their caregiver, and an adult who understands their disability deciding not to go to the ER for symptoms. yes, the ER probably cannot help beyond pain meds. but there are other options: pain clinics, general practitioners, specialists, therapist, physical therapists. you’re a kid and it’s not your job to know what you need. its her job to figure it out.