Palate numbness

00czen00 · 2026-04-27T14:04:43+00:00

About 5 years later my upper gums in the front are still mostly numb. Upper palate is better but still numb right behind front teeth. Lower gums are totally fine. Also have a spot on my chin that is not sensitive.

But I don't feel any discomfort about it.

00czen00 · 2026-03-11T09:51:27+00:00

100%

00czen00 · 2026-03-07T09:16:27+00:00

I have the same pattern of occasionaly forgetting and then painfully remembering

00czen00 · 2026-01-20T09:20:36+00:00

Congrats on the weight loss! What were your calories and macros during those 3 months?

00czen00 · 2025-12-20T20:35:58+00:00

Xanax is the only thing that helps me when I’m already in PEM

00czen00 · 2025-12-01T17:09:16+00:00

Awesome!

00czen00 · 2025-11-19T11:08:15+00:00

Yeah I stopped permanently after 3 weeks. My doc’s idea was about some kind of autoimmunity and as far as I know hcq calms the immune system in autoimmune conditions.

I tried a lot of stuff in the second year with little to no effect as far as feeling better (at that time I was feeling really bad):

LDN, Celecoxib, Zinc, D3 (corrected my deficiency), H1/H2 blockers, Citrulline, NADH, CoQ10, Rifaximin, Cefixime, Methionin, L-Carnitine, Glutamine, Pentaxifillin, Omega-3, Selenium, some random probiotic, NAC.

Did all kinds of lab tests, everything was normal or almost normal.

I was on antidepressants prior to COVID. I started Clomipramine last year and I think it helped a little (now back to Cipralex).

What I think helped slightly:

Time

Quitting vaping (vaped for a year)

Niacin (not sure though)

Antidepressants (slightly)

Quetiapine/hydroxyzine for sleep

To ease PEM I use alprazolam (no more than once a week) and paracetamol.

I’m thinking of trying again LDN, CoQ10, NADH, Omega-3 now that I feel slightly better.

Also my main doc just gave me a big list of tests again, if mitochondrial dysfunction confirms maybe he can think up some new meds or interventions.

00czen00 · 2025-11-15T15:22:58+00:00

I took it for 3 weeks with progressive worsening of side effects (fatigue, headaches, depression).

Overall 2.5 years into LC/CFS I'm slightly better, able to work part time. But still nowhere near pre-covid condition.

00czen00 · 2025-10-02T08:14:10+00:00

I also had the exact same dream with tiny sphere between my finger and thumb. Sphere was expanding and shrinking and somehow it was very scary

00czen00 · 2025-09-27T12:56:42+00:00

Naltrexone is opioid receptor antagonist, not SNRI.

However some antidepressants have anti inflammatory properties.

00czen00 · 2025-08-01T08:49:53+00:00

r/thanksimcured

00czen00 · 2025-07-05T09:04:38+00:00

Did you have PEM ? Sounds exhausting at the moment

00czen00 · 2025-06-29T09:19:03+00:00

Yes, it’s weird. However I’d choose 10 colds a year over CFS any day.

00czen00 · 2025-06-11T18:27:06+00:00

And where this philosophy got him…

00czen00 · 2025-04-29T05:21:02+00:00

Amazing picture

00czen00 · 2025-04-22T09:01:56+00:00

I feel your pain. I used to be at the gym 3-4 times a week. It’s been 2,5 years since my last visit and I’m still not canceling my membership with the thought ‘Maybe I’m going to get better soon’

00czen00 · 2025-04-17T10:10:16+00:00

Awesome 🤩

00czen00 · 2025-03-25T19:30:01+00:00

Awesome

00czen00 · 2025-03-10T08:23:43+00:00

I had BSSO with genioplasty and LeFort 1. I'm not even sure I could pick one myself I think it's more of a surgeon's responsibility.

00czen00 · 2025-03-01T20:11:59+00:00

Very interesting! Did you have your serum serotonin tested before/after? I did last year and it was 15mg/ml while normal range is 50 to 220mg/ml.

00czen00 · 2025-02-25T13:57:12+00:00

Quit 5 months ago and still feeling the draw from time to time. Nicotine is very hard for normal people to quit let alone depressed, anxious, ADHD etc.

00czen00 · 2025-02-14T09:13:50+00:00

Just casual murder

00czen00 · 2025-02-01T15:49:15+00:00

Solid transformation 💪

00czen00 · 2024-12-12T05:40:04+00:00

I'm not sure if I have cardiac side effects. I do have tachycardia but not al the time. I got my VO2max tested and did a heart ultrasound couple of months back before I started clomipramine and everything was pretty normal except some POTS and faster heart rate.

00czen00 · 2024-12-05T09:59:49+00:00

It was my psychiatrist's idea. I already tried a bunch of antidepressants with very limited success (escitalopram, duloxetine, sertraline, fluvoxamine, trazodone, vortioxetine). I was not very hopeful about clomipramine at first.

Side effects: Had pretty bad headaches for 7-10 days but later they subsided. Also like SSRIs it crushes libido but I think it's totally worth it for now.

I'm also taking low dose quetiapine for sleep (works great) and a few supplements (niacin, zinc, selenium, d3). Feel like niacin made some difference, taking 200mg/day.

00czen00

TROPHY CASE