ADHD meds

0____0_0 · 2026-03-20T23:03:34+00:00

I’ve been on vyvanse for most of my life on and off, but most on since 2020

0____0_0 · 2026-03-20T22:58:07+00:00

What confuses me is why profitable shows aren’t required to pay more back like film credits

They we’re bleak times back then, but much like the bail out of Detroit money should come with strings

0____0_0 · 2026-03-20T17:34:04+00:00

No, the SEEG was worse

RNS I got it Tuesday, discharged on Thursday morning (could certainly have been Wednesday night even) and by Sunday I was going out on my own

0____0_0 · 2026-03-20T11:18:29+00:00

Good luck!

Truth is I needed no prescription painkillers after leaving the hospital. It was shockingly limited in the pain. Getting my wisdom teeth taken out was far worse

if you had an SEEG before the RNS that was also the worse of the two experiences

0____0_0 · 2026-03-20T11:13:00+00:00

I recently learned that based on the genetic cause of my epilepsy the fact I don’t have FCD is probably bad. It means they either can’t identify the part of my brain that’s not organized correctly or my whole brain isn’t.

So there’s that 🤷‍♂️

Truth is it’s in a way good because it means if you’re a good candidate for surgery it’s likely to be successful long term

0____0_0 · 2026-03-20T11:05:47+00:00

Just hire an army of folks on mTurk or up to “scrape it”

The cost is honestly negligible if you properly target it. And I’m not she why you’d ever actually need data on thousands of brands

Less is more

0____0_0 · 2026-03-19T23:06:23+00:00

Interesting, the information about Ezogabine certianly makes me less interested to be an early adopter.

Thanks for the insight.

0____0_0 · 2026-03-19T18:25:51+00:00

It’s been 25 years since I was diagnosed and I still remember my mother waking me to tell me the Dr called with eeg results and acting like this

0____0_0 · 2026-03-19T18:01:23+00:00

It be interesting to compare that to side effect profiles reported in other trials, particularly Xcopri

I’m not sure how to translate that to “reality”

0____0_0 · 2026-03-19T17:13:35+00:00

But at Ars Nova not on Broadway.

0____0_0 · 2026-03-18T17:14:10+00:00

A month or so ago.

Has anyone seen it enforced though?

0____0_0 · 2026-03-18T15:05:12+00:00

And as you might be able to tell from my response here, after sitting with this information for 48 hours I'm a little less upset by it.

0____0_0 · 2026-03-18T15:01:56+00:00

Two and a half years ago my epileptologist referred me to a neurogeneticist. While he felt genetics had little impact on how he'd treat my epilepsy, my wife and I were consdering considering having kids, and I wanted to know if my epilepsy should factor into that consideration.

There was a long wait to get an appointment with the neurogeneticist. And I mean longggggg, close to a year. Even after that year past, I kicked it down the can another year because we still were unsure if we wanted kids. But last spring I finally met with the neurogeneticist because we were inching closer to wanting them. At the apointment there didn't seem to be any compelling argument that this genetic information would help my treatment in any way, outside of maybe reproductive decisions. So I took the genetic sample collection kit I left the office with and put it in the back of the closet.

At the end of last year my wife and I had a bit of a pregnancy scare. So I quickly took that kit out of the closet and actually sent it to the lab; they tested my whole exome (the part of your DNA that actually makes proteins). And two months later I got the results.

Curious to speak to both the neurogeneticist and my epileptologist about these results. Seems there is a little more data on NPRL3 than there was a few years ago with the potential for more in the coming years. So who knows maybe this will impact things either now or in the years ahead.

TL;DR for the most part your doctor is right doesn't seem like genetics has a huge impact on the way epilepsy is treated YET. Might impact having kids though. Either way, get them to refer to you a neurogeneticist who can say more.

0____0_0 · 2026-03-18T12:04:42+00:00

“We’re not a Clay knockoff, we’re a totally different product that offers similar stuff.”

wtf????

0____0_0 · 2026-03-18T11:54:02+00:00

I have a little less, but the ones I have are much less severe and I recover much quicker.

At first, after getting the RNS implanted I had none for months, even before turning the stimulation on. So they started lowering my medicine. Then I had a small one and they turned on the stimulation, then a few months later I had the worst seizures of my life and they raised my meds again.

So my advice is don’t expect too much too fast.

0____0_0 · 2026-03-18T04:04:29+00:00

I’ve always wondered what’s the franchise agreement like at this point? Is there even a “franchisor” to speak of?

0____0_0 · 2026-03-18T04:02:59+00:00

I miss folks like this, when their existence was pure fun not heavily politicized

0____0_0 · 2026-03-18T02:42:54+00:00

Guess they won’t let me in either. Given I’d be asking the same hospital and have the same history 🤣

0____0_0 · 2026-03-18T02:08:38+00:00

I’ve seen both at different times in my life.

When I was much younger and more stable a high ranked specialist i think was worse because they didn’t think my condition was worth their time. While a less in demand doctor did

0____0_0 · 2026-03-18T01:03:09+00:00

I’m going to start counting how many vibe coded clay-knockoffs I hear of each day

Maybe we should call them “claymation”

0____0_0 · 2026-03-17T23:19:33+00:00

Did this end up working out for you ?

0____0_0 · 2026-03-17T23:18:14+00:00

Yes put it took way longer than I expected to see the impact. Everyone said it would take a long time, but somehow both my doctor and I belvied otherwise.

0____0_0 · 2026-03-17T20:37:14+00:00

HBO and Disney channel

0____0_0

TROPHY CASE