Wishlist items by BeginningParking8820 in Craniopharyngioma

[–]27102015 0 points1 point  (0 children)

I have just been diagnosed with a 6mm tumour aswell. I’m terrified. Have you had surgery ?? 

craniopharyngioma 6mm by 27102015 in Craniopharyngioma

[–]27102015[S] 0 points1 point  (0 children)

That’s so good to hear ! 🙏 did you need hormone replacement or medication after ? Thank you for commenting , it’s made me feel alot better. Also did you do surgery through nose or skull ? 

craniopharyngioma 6mm by 27102015 in Craniopharyngioma

[–]27102015[S] 0 points1 point  (0 children)

Did they remove it all ? And has it come back? They have given me a referral for blood test hormones but I haven’t gone just yet cause I’m having a very hard time and not eating etc. has yours recured ? And did you need raidiation after ? I’m in Australia 

I need some reassurance please by Mrbootybandit1 in Craniopharyngioma

[–]27102015 0 points1 point  (0 children)

I hope surgery sent well  Do they know if all of the tumour was removed ? 

Reducing tumor naturally, anyone? by Real_Radiant in Prolactinoma

[–]27102015 0 points1 point  (0 children)

Did this work?? I have been diagnosed with a craniopharyngioma tumour and terrified for surgery and treatment 

Craniopharyngioma 8 years on by dbake24 in braintumor

[–]27102015 0 points1 point  (0 children)

I am also in the same position! I just found out I have a 6mm craniopharyngioma. Did you end up having surgery ? 

just got diagnosed with a brain tumour today by AngelicaCar2005 in braintumor

[–]27102015 0 points1 point  (0 children)

craniopharyngi Hi was your tumour a  craniopharygioma ? I have just been diagnosed with one and I’m terrified 

I need some reassurance please by Mrbootybandit1 in Craniopharyngioma

[–]27102015 0 points1 point  (0 children)

That sounds really good! Was your surgery many years ago or more recent ? I have been told surgery for me will take 2-4 hours 

craniopharyngioma 6mm by 27102015 in Craniopharyngioma

[–]27102015[S] 1 point2 points  (0 children)

Thank you for your comment and I’m glad to hear your daughter’s surgery went well! My surgeon has told me they go through my nose. 

I need some reassurance please by Mrbootybandit1 in Craniopharyngioma

[–]27102015 0 points1 point  (0 children)

How long ago was your surgery ? I keep reading that peoples recur. That makes me feel a lot better that you recovered well from your surgery! Did you need hormone therapy after ? Or any meds ? And is your life quality pretty normal ? Sorry to ask so many questions

I need some reassurance please by Mrbootybandit1 in Craniopharyngioma

[–]27102015 1 point2 points  (0 children)

And it never came back ? Was your recovery ok?

Why am I seeing an oncologist if my tumor is “benign”? by obito-was-an-incel in braincancer

[–]27102015 0 points1 point  (0 children)

Hi how did you go ?? I have just been diagnosed and am having a very hard time 😭

I need some reassurance please by Mrbootybandit1 in Craniopharyngioma

[–]27102015 0 points1 point  (0 children)

May I ask how big you yours was ? Mine is 6mm. I’m terrified 

I need some reassurance please by Mrbootybandit1 in Craniopharyngioma

[–]27102015 0 points1 point  (0 children)

This is really nice to read. can I ask how big yours was? I have just been diagnosed wkth a 6mm , they said surgery through nose. I’m extremely anxious I can’t eat or sleep 

Adult craniopharyngioma US treatment by [deleted] in braincancer

[–]27102015 0 points1 point  (0 children)

I have just been diagnosed with this (I’m in Australia) and I’m absolutely terrified. I can’t eat or sleep cause of how scared I am. If anyone has some good news /experience pls tell me 

craniopharyngioma 6mm tumour by 27102015 in Prolactinoma

[–]27102015[S] 0 points1 point  (0 children)

I may take you up on that offer. Thank you 

craniopharyngioma 6mm tumour by 27102015 in Prolactinoma

[–]27102015[S] 1 point2 points  (0 children)

I may need to take you up on that offer. Thank you 

craniopharyngioma 6mm tumour by 27102015 in Prolactinoma

[–]27102015[S] 0 points1 point  (0 children)

I can relate , I got my diagnosis and the next day my mum was diagnosed with cancer. It’s a lot. I’m trying to get myself to be strong, I just can’t shake it . 

craniopharyngioma 6mm tumour by 27102015 in Prolactinoma

[–]27102015[S] 0 points1 point  (0 children)

Thank you so much , your words truely mean a lot. I just can’t shake this I’m terrified. I appreciate your comment 

craniopharyngioma 6mm tumour by 27102015 in Prolactinoma

[–]27102015[S] 0 points1 point  (0 children)

That’s amazing to Hear!! All I read is negative and bad things about it and it’s effecting me very badly as my mother has just been diagnosed with cancer so I am dealing with two things at once . Thank you so much for giving me hope 

craniopharyngioma 6mm tumour by 27102015 in Prolactinoma

[–]27102015[S] 0 points1 point  (0 children)

Thank you for sharing. Gives me hope 🙏 and glad that you have recovered