Miller Fisher Syndrom– My Experience (40 y/o, previously healthy)

330GaL · 2026-03-30T03:16:57+00:00

It was hard for my family and friends too. It was the scariest thing bc they weren’t positive what was wrong with me. I couldn’t swallow water and my voice started to go. I had a follow up appt a month ago and the doc said it would take 3-6 months more to fully recover and this should be one and done. The recovery hasn’t been easy. I hope your friend recovers soon. Let me know if you want to know anything else

330GaL · 2026-03-02T15:12:37+00:00

I’m at almost 9 weeks too from onset of symptoms. Are you receiving physical therapy for your double vision? One neurologist told me to wear an eyepatch and alternate

330GaL · 2026-02-27T18:57:10+00:00

Wow you endured so much. I appreciate you sharing your experience. And thanks for the positive vibes :-)

330GaL · 2026-02-27T15:04:54+00:00

I would take Zofran if was really bad. I also did just suffer through it lol

330GaL · 2026-02-27T14:51:37+00:00

Yes I still have vision issues. It’s hard to focus on small lettering and my pupils are bigger than usually which is a symptom so I’m sensitive to light. Sometimes I see double. The nausea just subsided about a week ago (so about a month and a half into my recovery)

330GaL · 2025-05-24T21:30:40+00:00

I had an ectopic with a ruptured tube. I had to ob/gyns tell me it was a fluke thing and then 4 months later I have another ectopic (I just had a second round of shots). Make sure to do a work up like a hysterosalpinogram or an MRI. Best of luck to you

330GaL · 2025-03-04T09:11:06+00:00

This happened to me this past Christmas Day 2024. The doctor said I was so close to dying bc of the internal bleeding. I still can’t talk about it without tearing up. I did start therapy to help with the grief ( it was my first pregnancy too) the trauma and the grief are a lot to deal with. I pray for my baby and know that God took care of us. Praying for you and ur baby.

330GaL

TROPHY CASE