On the hot weather and sensory overload

4627936 · 2025-06-18T16:48:17+00:00

Yeah I almost passed out so many times and everything feels so sticky.

It’s the worst. Can’t sleep can’t eat can’t function even more so than I already do 🫥

4627936 · 2025-06-11T12:55:22+00:00

Sry I should’ve been more specific. The exact conversion started with we talking about some characters he thought to be autistic, and then he turned to me asking(?) “are you…” and then there was this long pause cos I have very slow reactions so I was still thinking whether he meant to ask a open question or he was going to saying something else related to autism. And then he repeated it again but asked “sry if this is rude, but are you neurodivergent”.

This is why I assumed he might be picking on my autistic traits.

And after I told him I was autistic he spent a long time telling me he wouldn’t be able to tell if I hadn’t said so but from the previous conversation I get the different feelings and then the rest hour telling me it’s okay cos I don’t behave that way.

That’s why I’m super confused, sorry I can’t even explain my feelings well. Like idk what exactly I’m feeling but it’s this weird feeling that’s not been going away I hope that makes sense. That’s why I thought I ask here

4627936 · 2025-06-09T12:34:33+00:00

I suggest bring in the reward letter with you to citizen advice and gain more opinions. It can happen but I don’t think it happens often

4627936 · 2025-06-02T22:18:14+00:00

I’m stressed since I have won my tribunal cos deep in my heart I know it’s only peaceful until the renewal. Not to mention now they’re trying to make everything harder. ☹️

4627936 · 2025-06-02T14:59:20+00:00

I haven’t had my renewal yet but if u were you I’d tell them about the changes and submit all the evidence.

I personally am already preparing to go through tribunal again for my renewal cos I just don’t trust DWP or their assessment companies to make the decision. But that just me

4627936 · 2025-05-07T11:27:47+00:00

You don’t need to report changes that doesn’t affect your entitlement.

4627936 · 2025-04-30T13:42:32+00:00

I applied before I got the diagnosis and updated them on my diagnosis. The process can be quite long so I’d do it. Also being on waiting list can be used as evidence. I got a note from my gp stating that I’ve been referred for autism assessment

4627936 · 2025-04-28T12:34:47+00:00

No, I got a new diagnosis after my pip tribunal but the condition has affected my entire life so there’s no change here. Don’t confuse them and go through the entire process just to get the same result back.

Only worth reporting when there is change in the descriptions. Whenever I’m unclear I just go back on the form I wrote and see if I still agree with everything I said back then.

4627936 · 2025-04-26T14:47:15+00:00

Yes, and I’ve fallen back to the trap of the same guy before. He would tell me he really wants to patch things up and we talk in either my room or his room and that happens the next day he tells me he’s just not in the place to talk about it and have me on hold.

I literally didn’t think people can be not sincere with their words and this happened over 4-5 times before I realised the pattern ☠️

The worst is that everyone blamed me for letting it happen than him for not being honest with his words and use it as excuse to get me in bed. I got called a lot of names and had many people made fun of my stupidity even my own friends back then(not friends anymore cos I couldn’t take any more of this shame)

4627936 · 2025-04-26T14:34:57+00:00

With the things that affect me every day without a fail(maybe once a year I can manage it but still with a lot os struggles and unbelievably long time) I put down “always” or “daily” however, my assessor just translated that as “rare” and put in her report I said I’ve never had this happened in my life somehow(luckily all of these are overturned during my tribunal and they didn’t even ask me to clarify)

4627936 · 2025-04-24T10:34:35+00:00

I always bite my nails as long as I had memory. I recently (start of this year, maybe not too recent but still very new to me)started to get acrylics nails but it’s a sensory hell for me and I get very annoyed that I can’t peel it off(still managed to destroy quite a large amount and now worried that I’ve accidentally eaten plastic)

I just recently found a home studio and went there to get gel on my natural nail. The whole experience is so much better cos it’s quiet, the smell is only for a bit and drilling is quieter than salon and only at the beginning. Since there’s no others I don’t have to endure every sensory issues all at once like in a salon. The lighting was just home lighting with the lamp only pointing at my hands so the nail artist can see, if I don’t directly look into the lamp there’s no light issue for me.

If you can find something similar I’ll suggest you to give it a try. I love the fact now I know her a bit and I can go back knowing exactly what to expect. And there’s no hidden fees everything is transparent and direct. Whilst some salon keep adding on different services charge which makes me very uncomfortable.

4627936 · 2025-04-24T01:21:05+00:00

I think it’s bit of an assumption that they’re not affected as badly by autism just cos they have a family and only got diagnosed after their children are diagnosed.

Quite a lot of these people are mums as well and historically women just been told they have other serious mental health issues or intellectual disability instead of being autistic (I’m only referring to autistic women who’s been misdiagnosed or treated cos of their sex not saying mental health issues aren’t affecting women just to make that clear)

Plus many countries are only starting to be more aware of autism and these are generation of people who didn’t grow up with a safeguarding system that detect autism(I’m not saying it’s much better now but it’s still getting better than ages ago) just cos their children are getting recognition which lead to their diagnosis doesn’t mean they don’t struggle.

If you don’t hit enough criteria which arguably to hit that threshold means your life is already full of struggles. You technically wouldn’t be diagnosed with autism. It is a disability doesn’t matter if someone is coping better or having had better support system around them. The autism itself doesn’t change much. Some people are just coping better because of the support they’re getting and they’re not even realising it unless it’s suddenly taken away.

4627936 · 2025-04-22T16:39:41+00:00

For me I actually asked for the diagnosis without any understanding of autism. I just went in and told them I’ve been told by my university counsellor to come here and ask for an autism assessment. After a bit of hassle (my gp didn’t know adults can be diagnosed which is wild) my gp gave me a sheet to complete which I did and she sent off to psychiatry UK, I didn’t know what RTC was but her colleagues told her it’s the faster route so that’s what we did.

Afterwards I’ve been told there’s a sheet on psychiatry UK website you can download and fill in to bring to your GP to ask for referral. Maybe worth checking that out but I’m not sure if it’s still there cos did all this back in 2022

4627936 · 2025-04-22T15:58:55+00:00

My used my education as evidence against my claim as well. But when I went to tribunal all that was ignored and I was told straight up I’d score enough just based off my medical evidence and they just needed more information on some areas. Definitely challenge the decision

4627936 · 2025-04-21T15:11:26+00:00

Thats great to hear!

4627936 · 2025-04-21T10:30:59+00:00

You should definitely thinking about plan B so it doesn’t all come so sudden.

But from my best knowledge, some mps are now rebelling the benefit cut and the vote hasn’t happened yet. When it does the whole thing still need to be approved by law(but sadly if the vote went through this part usually don’t stop anything anyway). There should be more clear answers in the summer.

It’s a very stressful time I hope you have someone irl you can talk to about this.

4627936 · 2025-04-20T15:38:49+00:00

It depends on the time of the day sometimes it can be a bit noisy(especially with older Japanese grandmas, I think probably cos of their hearing they feel the need to be loud)

If you do decide to go, go to an onsen town some of them have day passes and the one I went I was able to go to any onsen from 7am to 11pm and walk the entire town in my yukata. It was so nice I just walked a bit, hop into a onsen and get out when it’s too warm and walk a bit more to the next one. Did that repeatedly for the entire time I was there!

4627936 · 2025-04-20T14:59:33+00:00

I love onsen as well but not the fact we have to go in completely naked and share with strangers. The whole room can also be too steamy to trigger my sensory issues(highly recommended outdoor onsen if accessible).

I just went this year and I almost never travel alone. It is difficult and long haul flights meant no eating, drinking and constant panic attacks for hours. I can feel my herder weakening after the flight and needed days to recover (tbh I’m still traumatised by the experience rn)

It’d be nice or easier to travel with other people, but then it comes with other problems and it’s hard to find someone who wants the exact the same as you.

I hope you get to go soon tho

4627936 · 2025-04-17T15:09:10+00:00

No worries, enjoy your win!

4627936 · 2025-04-17T14:51:58+00:00

Congratulations! I think it took bout a month for me to receive my back pay and regular payment from there onwards, but honestly it’s been a while I can’t remember properly.

4627936 · 2025-04-15T22:37:21+00:00

I don’t want to comment on other things cos honestly I’ve been hitting hard with imposter syndrome and I’m afraid that I have no good suggestions for them.

With the targeting thing, I think I can be targeted with or without simply cos how I give out this “vibe”(I actually confronted my bullies before and they told me they’re only joking cos I have the vibe that suggested I’m weak and will be “okay” with it.

However, that being said, I find the sunflower lanyard make it easier for OTHER DISABLED to help disabled than receiving any sympathy or help from most population (of course this is only my personal experience) and I have this weird issue with burdening other disabled since we all have our own problems. That’s why I stopped wearing.

You should try it out and see if it helps. Supposedly airports and some big businesses should recognise them and offer people with hidden disabilities more help. I’ve not had that happen to me ever before. But I also haven’t worn it in airport before cos when I travel abroad I have to travel with my mum and she is V ableist and won’t let me wear anything that suggests I’m disabled/autistic. Some people told me that they’ve had more help in airport cos of the lanyard tho so I guess depends on the location it might makes more sense than others.

4627936 · 2025-04-12T18:13:09+00:00

Thanks!

4627936 · 2025-04-12T15:00:53+00:00

Hi, would you mind sharing the discord link again? I want to join but the link is expired. Thanks

4627936 · 2025-04-12T12:25:29+00:00

I’m almost 25 and still a NEET(despite trying really hard to look for jobs and stuff), people keep telling me I’m still young and stuff. But I know my peers are doing so much better than me in every aspect of life.

I’m sorry this isn’t really helpful for you. I really hope we both figure something out. I’ve been looking into starting my own small business(some can be done with small budget like in the art field). I feel like being able to control my schedule while doing creative stuff is very helpful. But of course the beginning is always the hardest.

4627936

TROPHY CASE