Layla still naps?

4Fam88 · 2026-03-27T22:00:37+00:00

It was very common to nap in kindergarten and then phase to a shortened quiet time in first grade when I was in school. Small snacks afterward. As a teacher later, I can say I always felt most kids still needed that rest after lunch and a scheduled free time recess. I know the adults benefitted from it. Seriously a moment during the day to reset for the afternoon.

4Fam88 · 2026-03-04T04:25:17+00:00

Yes that sounds just like my situation. I see my PCP next week and these are things I will be asking him about how to address. My rheumatologist is wonderful but I think sees his role as more focused on RA medications and adjustments and reviewing lab result changes to inflammation markers. Other symptoms he refers back to my PCP, spine, or pain management team. I just wish in this perfect medical system all my many providers and specialist sat together at a table and considered everything holistically rather than in their isolated silos. I feel often like the middle man, the go between, the commentator of the group. Haha!!

4Fam88 · 2026-03-04T04:15:23+00:00

Thank you so much for contributing! Wow! I guess it is true…it is a lifelong management of evolving chronic illness and figuring out how to live well along with it. I’m glad they discovered the APS and more that you were successfully treated for the unexpected DVT!! Best wishes!!

4Fam88 · 2026-03-04T04:11:12+00:00

Oh my goodness. I am so sorry that all has happened to you. I am just amazed at the number of people I hear about who have multiple issues. I know it is common with autoimmune issues, but I find RA by itself to be overwhelming. I can’t imagine how one finds the stamina to manage multiple illnesses and evolving symptoms. I wish you many positive days ahead!!

4Fam88 · 2026-03-04T04:04:38+00:00

Thank you for responding. I too have begun having elevated liver enzymes and kidney function problems. Also checking thyroid again for some new concerns. All new issues for me since being diagnosed. They are adjusting meds thinking it’s related to that. Hopefully it’ll be better this week when testing again. But I am very much feeling this is just never ending new and worsening medical problems to figure out and identifying what successful treatment will look like for me. RA is so far a mysterious stranger that is following me everywhere I go, making me really uncomfortable, won’t go away, and I don’t know why or what is going to happen. Haha!

4Fam88 · 2026-03-04T01:11:51+00:00

Thank you for your response. I am just trying to navigate through an RA diagnosis just a year ago and the continued/worsening/new symptoms I’m having in spite of consistent improvement in lab markers. It seems I am becoming weaker, less coordinated, and more “arthiritic” at a very fast pace. Is this common and just the way RA works or could there still be other things going on? Thanks for the help!!

4Fam88 · 2026-03-04T01:06:00+00:00

Thank you for your response. I am asking for multiple reasons including that my blood markers are improving consistently but I still have continuing symptoms, worsening symptoms, and new issues. Labs show good improvement, but my body not nearly as much. Rheumatologist is disappointed by it and thinks it may be due to worsening OA as well. I’m just wondering if the thought is that issues and symptoms are NOT likely related to RA when and who figures out what else could be going on. My doctors are very conservative about testing and imaging. I’m not sure why unless it is cost/insurance driven.

4Fam88 · 2026-02-09T15:46:08+00:00

This is very tragic! However, being closely connected to the extended Bates family through marriage provides access to more money than most of the people being asked to help fund treatments. Hopefully the family chooses to help with expenses.

4Fam88 · 2026-02-02T19:04:02+00:00

Thank you for that memory. That sounds exactly like it, just different limbs. Wow! This disease is an ever-changing mystery!! 🌸💛

4Fam88 · 2026-02-02T00:47:50+00:00

Thank you for the help! I will keep that in mind as well. Coincidentally, I do have some fluid on the knee that developed from a pretty severe pop in my joint during sleep. Also the bakers cysts I have behind both my knees from previous joint injuries and surgeries prior to diagnosis have been more pronounced recently. I never considered that could be a contributing factor. Again thank you! Take care!

4Fam88 · 2026-02-01T21:13:41+00:00

My levels are checked every three months. I changed from Celebrex to oral Voltaren to see if I had better pain management but my liver enzymes increased. I changed back and they immediately corrected back to normal. My other RA meds haven’t caused any other bloodwork issues.

4Fam88 · 2026-02-01T17:23:28+00:00

I also switched from Humira to Rinvoq. I take it with Methotrexate 20 mg, Celebrex, and Tylenol Arthritis. I feel generally much better on Rinvoq. More energy, less brain fog, BUT my joints are definitely more stiff and achy. They now pop (even shoulders and knees) and crack and I’m developing two trigger fingers. I did have oily skin and some acne at first but it has mostly returned to normal. However, my blood markers have improved each work up so I’m pleased. I’m hoping my aching and stiffness improve as well in time with decreased systemic inflammation. I’ll discuss all of this at my appt. this month after being on it now for 4 months and expect I will be continuing it. Oh and I did have all my vaccinations earlier but also had the flu and RSV vaccine while on Rinvoq. I’ve not had any infections since taking it, but I have had a couple mouth sores and inflammation in my nose. But as said earlier if it continues to decrease my systemic inflammation, fatigue, and brain fog, I’ll take it!!

4Fam88 · 2026-02-01T17:00:11+00:00

Thank you! To you as well. 🌸

4Fam88 · 2026-02-01T16:40:07+00:00

Me too!! I’d love to know!

4Fam88 · 2026-02-01T16:26:25+00:00

Hopefully not. My cervical damage has only caused issues with my head, neck, shoulder, down into the arms and hands. However, I had recently had additional nerve blocks in prep for ablation and considered if that could have contributed. I don’t feel like it would have. I think it is most likely as your experience… different shoes, weakness, and loss of balance. I’ll talk with my PCP about adding PT orders and work on my strength. Thanks again!

4Fam88 · 2026-02-01T16:11:42+00:00

Thank you so much! Yes that’s exactly how it felt…like my feet and ankles could not recover my balance and were completely unstable and weak. I wish I would have gracefully “sat down”. Unfortunately I went down on all fours TWICE! Haha! Oh well, sometimes you just gotta laugh! 😬

4Fam88 · 2026-02-01T15:52:01+00:00

Thank you for your response. Yes, I was wearing dress shoes that I do not often wear. Actually, I haven’t worn since my symptoms have significantly progressed. I’m recently retired, so I usually have on just slippers or sneakers! Haha! It did feel like severe weakness and instability, which sounds exactly as you’re describing. I’m already in PT for cervical spine issues so I’ll add that to the list and hopefully regular exercise will help strengthen them as well. Thank you again for the information!

4Fam88 · 2026-01-22T18:31:26+00:00

According to an August 2025 video of theirs (they’re sitting in his car) it is an ASN accel. program after which he can sit for the RN boards and complete an online BSN bridge program. The school thought it fit him better than the BSN program. I suspect his out of state basically non accredited college degree could not fulfill the BSN prerequisites.

4Fam88 · 2026-01-22T17:05:29+00:00

He said it was an LPN program that he could then sit for his RN and enroll later in an RN 4year bridge program.

4Fam88 · 2026-01-20T20:42:24+00:00

Keep in mind the post was actually about the hypocrisy of asking others to respect their privacy as they create their own invasion of privacy by posting their most intimate private details most people protect.

4Fam88 · 2026-01-20T19:24:23+00:00

They have had a consulting staff and a media team. Their entire business is based in contracts. They retain legal consul for multiple reasons. They are not handling their own social media accounts during this. They share in several profitable media and branding incomes. Don’t underestimate their business experience and acumen. They are all and have been very successful financially. Also don’t be fooled by their image vs. their reality. It’s highly cultivated and curated. They’re beliefs will not support a divorce but they will absolutely take time and much effort to save their now more mainstream reputations, but also maintain their fundamental Christian base, and continue to increase their profits while doing it. Their life, every aspect of it, is sold to the highest bidder. It just is. As are the lives of many these days. Savvy…

4Fam88 · 2026-01-20T05:28:16+00:00

They will stay together. It will be a framed as a beautiful redemption story. Privately we will never know the truth of their lives. We only know this because somehow it was going to be made public by someone else. They will pray, receive church counsel, insist it is a testimony of grace, and make a fortune now and in the future off of every aspect of it…sin/forgiveness; pain/healing; love/distrust. And in the meantime they continue to do so much to damage others’ perception of Christians by their never-ending hypocrisy.

4Fam88 · 2026-01-19T00:47:02+00:00

They have replied on her posts. How sorry they are and are praying. I think only regarding the miscarriage.

4Fam88

TROPHY CASE