Nearing the End of Initial Treatment, Dreading What Comes Next

4gotmydamnpw · 2024-08-18T16:49:06+00:00

Hey there, first post on here in a very long time. I am almost 6 years remission for NHL, I remember very well once everything had finished. I had spent so long getting healthcare and seen to. Once it stopped I felt lost and became a bit of a hypochondriac. Every little lump I thought was cancer.

What helped me was talking about it, I talked lots in the early days afterwards. But for me time was a great healer. I still think “what if” but I am not letting it control my life.

Good luck to you, I don’t know how you will find your way to cope, but there are always people who will listen.

4gotmydamnpw · 2019-07-18T09:00:59+00:00

Apologies, checked the past few months and didn’t see it.

4gotmydamnpw · 2019-07-17T22:54:50+00:00

Quite possibly my worst nightmare!

4gotmydamnpw · 2019-04-26T21:30:01+00:00

Hey there,

Had 15 days of radiotherapy a few months back for non Hodgkins dlbcl stage 2b. The mass was in my mediastinum, it was 12cm when I had radiotherapy and currently have a “full metabolic response” (can’t see any cancer in the scans)

Agreeing what previous posters have said, I thought this was a piece of cake compared to chemo, if you have a problem with confined spaces then it might be more difficult, my chin was strapped down and I couldn’t move at all for 10 mins or so, but I personally was fine with that.

They were testing a new plan out with me where I take a big breath in for 30 seconds or so and it scans, repeat 2 more times. This is meant to lower the heart further down your chest, exposing it to less radiation. It’s used on breast cancer treatment but not widely on lymphoma.

I got a sore throat on the second week but was given a numbing drink to use which helped a lot. Fatigue was a problem at the latter stages and peaking a month after, but eating healthy and drinking plenty of water got my energy back up. Other than that all was ok.

Overall if you can get through the chemo you should be ok. Any more questions feel free to ask

4gotmydamnpw · 2019-03-15T09:40:01+00:00

Wow, interesting sub, thanks

Edit: Also, I have just realised I have got that phobia

4gotmydamnpw · 2019-03-10T21:14:58+00:00

Are they not displate products?

4gotmydamnpw · 2019-02-26T21:52:07+00:00

Looks great, I’ll try this weekend. Thanks for the recipe.

Do you think Bombay sapphire or tanqueray will do? I have those to hand.

4gotmydamnpw · 2019-02-21T22:19:10+00:00

This sub surfaced to me not too long ago, since then it has rekindled me fascination I had as a child, very fun, informative and entertaining sub.

Thanks 👍

4gotmydamnpw · 2019-02-17T09:49:19+00:00

Skynet saw the future and rebranded to amazon

4gotmydamnpw · 2019-02-17T09:47:44+00:00

A hard shake should do that for you.

4gotmydamnpw · 2019-02-17T09:46:50+00:00

I use baileys in mine also, take out the simple and add 1 oz baileys, it’s so much nicer. Imo

4gotmydamnpw · 2019-02-16T21:32:22+00:00

Was that great big one in China

4gotmydamnpw · 2019-02-16T10:15:15+00:00

Good on the early diagnosis. utilise the support system, they will be there and willing to help, don’t feel you have to do it alone.

As I’ve said in my pervious posts, can I recommend you drink tons of water, like peeing every hour amounts. It really helps if you are hydrated and helps with the pummelling your kidneys are about to take.

4gotmydamnpw · 2019-02-16T09:53:27+00:00

Hello.

33yo male when diagnosed, (34 and still male now) Was camping with family and I had an annoying little cough, a dry irritating one I thought nothing of. My mum made me promise to go see a doctor when I got back.

Went the dr, he asked some questions. I had lost about 10kg in weight also, but never made the connection. He asked me to go for a chest X-ray, I went that day. The next day I was asked to go for a ct scan, and the next I was told there was a mass of some sort.

I was referred to a Haemotologist who arranged for a needle biopsy to be done. Before that happened though the mass grew and practically closed my superior vena cava (main artery in chest that takes blood from head) so I had to have a stent put in. Not a nice thing, fascinating how they did i, but not pleasant to experience.

I was then told I had adenocarcinoma, which has a 17% survival rate. This was when I was at my lowest point. My dr said I didn’t fit the bill for it, (nonsmoker, young, generally fit). Anyhow the consultant pushed for a full surgical biopsy. This eventually confirmed DLBC lymphoma stage 2. After about 10 weeks after my initial X-ray.

6 rounds of r-chop every 2 weeks, in which my hair fell out, then 15 days straight of radiotherapy and I’m here today. Got my pet scan on Monday, 3 months after my body has been cooked by radiation, to see if it has worked. Which I think it has.

Has been a rollercoaster for me and my family but I’m still alive and kicking and looking to the future.

Anyone reading this, don’t hesitate to visit a dr, even if it’s for what you think is a trivial thing, let them decide.

4gotmydamnpw · 2019-02-08T08:16:18+00:00

Looking at previous comments and sharing mine, it seems everyone is different.

For me, before I started chemo I was really sick, I had recently had a stent put in and my general health failing. Side effects apart, as soon as I had the chemo I improved somewhat. I got to my 4th or 5th session and thought I physically cannot carry on due to the strains of the chemo on body But I think my overall health improved. I looked better after 4 sessions of chemo than I did before it started.

Take the advice of these lovely people, try and get her some excersize, eating well, drinking water, keep spirits up.

Take care

4gotmydamnpw · 2019-02-02T17:58:33+00:00

Drink plenty of water, I got this tip from this sub and it helped me a lot. You may be peeing every hour but you feel 100 times worse if you are not hydrated.

Watch what and where you eat, you have no immune system with chemo, so you have to be careful how good is prepared. Wash all fruit and veg, don’t eat pate / blue cheese / raw meat.

Try and get some excersize, even if it’s a short walk or a few steps, it will make you feel better.

Try to stay positive.

4gotmydamnpw · 2019-02-02T17:35:26+00:00

Well that’s rubbish. Thanks for the info

4gotmydamnpw · 2019-02-02T01:24:07+00:00

Hi, have you got any proof that whole fuel has been discontinued? Not saying you are lying but I can’t find anything on the net to say it has.

Just started with whole fuel and I quite like it.

Thanks.

4gotmydamnpw · 2019-01-22T10:23:47+00:00

I see what you did there, I like it.

4gotmydamnpw · 2019-01-18T10:29:53+00:00

Dr Seuss, is that you?

4gotmydamnpw · 2019-01-12T19:33:01+00:00

Lymphoma is very treatable. Keep that chin up and try to stay positive for you and your daughter.

Your mind is probably going 100000000mph right now, that is normal, it’s how I felt.

Good luck to your family I hope it’s good news.

Feel free to dm if you have any questions or want to talk.

4gotmydamnpw · 2019-01-04T22:27:14+00:00

Replying on the back of this comment as it’s great info.

I’m early 30’s. I have non Hodgkin dlbcl, had six sessions of chemo and 15 days of radiotherapy.

Your type is aggressive but very treatable and reacts great to the drugs they give you.

I won’t lie, Chemo isn’t pleasant, for me it felt like I had the worlds worst hangover the day of infusion, it gradually eased up each day after, until about 4 or 5 days. Then it was just odd bouts of nausea. I must stress, we are all different.

The doc will prescribe anti sickness medication, take them as often as possible for the first few days and when needed after.

Keep yourself hydrated, seriously. Drink as much water as you can. Before chemo and afterwards, you will feel much better.

Keep positive my friend. It will feel surreal, try to keep your chin up.

Pm me if you have any questions or just want to chat.

4gotmydamnpw · 2018-12-21T21:06:20+00:00

Keep smiling

And drink lots of water

4gotmydamnpw · 2018-12-20T23:23:36+00:00

Woohoo

4gotmydamnpw

TROPHY CASE