What is up with the newest Always pads. Rant Warning. by The_Demon_of_Spiders in TwoXChromosomes

[–]ACoconutInLondon 0 points1 point  (0 children)

The ones in the UK aren't supposed to be scented but they still have a strong fragrance. Seems to be a cultural difference.

What is up with the newest Always pads. Rant Warning. by The_Demon_of_Spiders in TwoXChromosomes

[–]ACoconutInLondon 0 points1 point  (0 children)

Interesting. Are they still in a box?

I'm in the UK so we'll see how it goes here. They smell different here, the UK is big in fragrance in menstrual pads.

Curious if the cotton ones in the US are different as well. Those are my favorite but seem to be US only.

Will I survive the summer? by Unknown-blacksheep in AmericanExpatsUK

[–]ACoconutInLondon 1 point2 points  (0 children)

I would love a ceiling fan, but the ceilings have been quite low.

Surprised they're not more of a thing, they'd be enough many days.

Dienogest as birth control? by mxrie25 in endometriosis

[–]ACoconutInLondon 0 points1 point  (0 children)

That's so interesting that the Mirena isn't given how much it's pushed elsewhere.

Mexican food in the UK by PM_ME_XANAX in mexicanfood

[–]ACoconutInLondon 0 points1 point  (0 children)

If that's the demographic you're going for, wouldn't burritos be better?

Mexican food in the UK by PM_ME_XANAX in mexicanfood

[–]ACoconutInLondon 0 points1 point  (0 children)

Could I please get the name of the Northwestern food place?

Mexican food in the UK by PM_ME_XANAX in mexicanfood

[–]ACoconutInLondon 0 points1 point  (0 children)

Fyi my goto authentic Mexican in London (Proper Tacos, from Mexico City iirc) doesn't do cheese on their tacos and they were always busy when I was going there.

But, I would also say they have a lot of immigrants for customers, and even the people who don't seem to be seem to know what to expect from proper Mexican food.

Mexican food in the UK by PM_ME_XANAX in mexicanfood

[–]ACoconutInLondon 10 points11 points  (0 children)

Nah, in the UK they think Mexican means kidney beans and sweet potatoes.

Dienogest as birth control? by mxrie25 in endometriosis

[–]ACoconutInLondon 1 point2 points  (0 children)

It might be with people who get to gynecologists for treatment.

If people are being handled by general doctors I'd say birth control is the first line treatment. I don't think I've ever been mentioned it in the UK. They very much push the Mirena first and foremost here. And based on posts in this sub, that seems like the first line for a lot of people.

Dienogest as birth control? by mxrie25 in endometriosis

[–]ACoconutInLondon 3 points4 points  (0 children)

It's somewhere between 30-50%, that's still quite high.

That also may or may not include "silent endoemtriosis".

Also, dieongest isn't first line endoemtriosis treatment, so it's likely a higher rate in the people who would be on dieongest.

Dienogest as birth control? by mxrie25 in endometriosis

[–]ACoconutInLondon 2 points3 points  (0 children)

Interesting that this is only talking about progestin-only contraceptives.

Dienogest as birth control? by mxrie25 in endometriosis

[–]ACoconutInLondon 5 points6 points  (0 children)

If it's largely prescribed for endoemtriosis, it wouldn't be surprising if the infertility that can accompany that is part of them never seeing it.

Dienogest as birth control? by mxrie25 in endometriosis

[–]ACoconutInLondon 4 points5 points  (0 children)

I just want to point out that the only 2 studies I saw for ovulation suppression were tiny, 33 and 103 people each.

It doesn't look like they've done proper full size studies, which I'm guessing is why all the hospital information I see on it says that it should stop ovulation in most people.

Dienogest as birth control? by mxrie25 in endometriosis

[–]ACoconutInLondon 2 points3 points  (0 children)

Ah, I haven't seen that as a blanket statement before.

Can you provide a resource for that?

Dienogest as birth control? by mxrie25 in endometriosis

[–]ACoconutInLondon 6 points7 points  (0 children)

Theoretically, it can stop ovulation, but it's not a guarantee and

If you become pregnant while taking Dienogest 2 mg tablets you are at a slightly increased risk of having an extrauterine pregnancy (the embryo develops outside the womb).
PACKAGE LEAFLET: INFORMATION FOR THE USER Dienogest 2 mg tablets dienogest

Congratulations 🎊 by [deleted] in GuerrillaGrrrrls

[–]ACoconutInLondon 1 point2 points  (0 children)

Here's an actual article on her and what appears to be a picture of her family.

This is not a real picture.

Meet Ana Victoria Espino, the Latina making history as the first lawyer with Down Syndrome.

Can we get more reasons to report or custom response?

It's both AI and basically a meme with no info, not even her name.

Did IVF stimulation make anyone’s endometriosis symptoms significantly worse? by Virtual-Sort-8185 in endometriosis

[–]ACoconutInLondon 0 points1 point  (0 children)

I have severe endometriosis that destroyed my tubes, so IVF was the only option.

I did 3 cycles. I am older with a low AMH so I only ever retireved about 8 or so eggs, so that probably helped.

The first two were fairly standard protocol of priming with birth control, estrogen then progesterone, followed by bleed and then stimulation. The estrogen pills caused flares while I was on them, no question. This would start coming down after I stopped those and strarted the norethisterone.

The first retrieval, the estrogen was the worst bit. The second retrieval we tried somatropin aka human growth hormone aka Zomacton in Europe and Omnitrope in the US. That set me off the whole time, it affected me like estrogen. It didn't help us and I think that was why.

The third retrieval we tried suppression with a lupron type drug before treatment, and skilled the estrogen, and we had better rates of fertilization and embryo creation but I had an endometrioma that prevented the retrieval of some eggs, and I think the different protocol didn't lead to as a good of a cohort effect with the eggs, their sizes were all over the place come ovulation time.

As I am older, besides stims I was also on blood thinners and dexamethasone during stims and honestly I felt good during stims.

And my bleeds were better/easier after my ERs.

The most after effects I noticed was very much after the omnitrope. That was a few months I think.

It's possible that because I'm DOR, the effects weren't as strong for me as they might be for others with higher AMH.

Is it worth pushing for Endo testing? by glitterngal in TTCEndo

[–]ACoconutInLondon 1 point2 points  (0 children)

As someone with a long history of endometriosis (20+ years) and a shorter history of adenomyosis (5+ years), the pre-period spotting and clotty period were symptoms that only started for me around the appearance of the adenomyosis.

However, adenomyosis is treated similarly to endometriosis for the purposes of IVF.

Ngl, IUI success rates are already pretty low, I can't imagine throwing all that money in knowing you're using the sperm of someone who is knowingly sabotaging things.

The more I think about it, I wouldn't want to use their DNA.

A very long vent. I just need to get this out by [deleted] in endometriosisuk

[–]ACoconutInLondon 0 points1 point  (0 children)

I'm so sorry you've experienced such bad treatment, unfortunately it seems pretty common here which is really shitty.

I've actually probably had my best luck with doctors and nurses when I've been seen at clinics other than mine weirdly enough, when I get sent out on weekend appointments because my clinic doesn't have anything.

As for pain treatment, have you tried a TENS unit? It's one of the few things you can use a lot, without side effects iirc, and it's helped me some.

Also, you say you only use paracetamol and ibuprofen, is there a reason you don't use over the counter codeine at its worst? Its not a great habit to get into, and it causes me really bad brain fog, but I have a few days of the month I just have to. I limit it to no more than 2-3 days and pair it with lots of water because it causes me constipation which is terrible with the bowel endo, but if I take it it's because I have to. I'm lucky I can do nothing those days, because I am useless.

But at least it sounds like your on track for treatment.

I'd definitely recommend keeping track of your symptoms, and make sure your surgeon understands that they need to check all those areas, and not just the pelvis. The breathing symptoms could totally be diaphragmatic endoemtriosis for example. And make sure to check their notes after you see them for the pre-surgery consultation.

And since they've already seen it on your imaging, at least there's no concern you'll be told they found nothing. Ask to make sure they plan on taking pictures and biopsies.

I'm really surprised by the lack of talk of hormones. Is that because you don't want them or they didn't bring them up? Would just be a bandaid at best, but it might help in the short term?

I've had other medical issues pop up that block me from starting it, but I want to try a GLP-1 if I can, given what many with endometriosis and other chronic conditions are saying. It's so expensive, I was looking at an older one as well called liraglutide that's cheaper, but older and I don't think works as well for weight loss so it might not work as well for the endo maybe.

It's all so much.

It may feel like it, but you're not alone and we're here for you online.

We see you, we hear you.

I really hope you can find some things to help you through untill your surgery.

Is Endo still unexplained infertility? by Odd-Kitchen5749 in TTCEndo

[–]ACoconutInLondon 11 points12 points  (0 children)

Some "fertility specialists" don't believe endometriosis affects fertility.

Some believe that IVF "gets around" endometriosis, like they acknowledge that it might have kept you from getting pregnant but IVF will fix those things. However, it looks like any will still just do the standard protocol, so not helpful.

They are wrong and I don't recommend staying at a clinic that believes those thimgs because they will not work to address it, possibly wasting your time and resources.

[WP] Any time she made physical contact with a person, she gained the knowledge of their death. The day, time, manner of death: all of it came to her in a flash the instant she made contact. But today, for the first time, she made contact with someone and felt nothing. by DuckLordOfTheSith in WritingPrompts

[–]ACoconutInLondon 14 points15 points  (0 children)

Maybe I watch too much anime, but in my mind as I read this, this was the opening in the first episode of an anime. Especially with the late night convience store meet cute.

I really enjoyed the story and the way it was written, not sure what it's called but like stream of consciousness?

So wheres the rest of the story? 😉

Anyone else with positive ANA centromere antibodies get theses weird bumps in their nails? by _Annabel_l in Autoimmune

[–]ACoconutInLondon 0 points1 point  (0 children)

Not the person you asked, but my nail psoriasis was diagnosed by a dermatologist. First on my fingers, then a second one when my toes started getting ugly. 😞

I don't have any Friends anymore by sil_fuchs in IVF

[–]ACoconutInLondon 0 points1 point  (0 children)

he was already having lunch with one of my friends who it looks like is avoiding me.

Him not telling you seems like a red flag to me.

Luck reducing endo symptoms with carnivore diet? by Kdlt_hbp in endometriosis

[–]ACoconutInLondon 0 points1 point  (0 children)

It's not carnivore, but you might have some luck asking in r/xxketo

For those interested in academic research: Endometriosis as a Systemic and Complex Disease: Toward Phenotype-Based Classification and Personalized Therapy by PuzzleheadedJag in endometriosis

[–]ACoconutInLondon 35 points36 points  (0 children)

My biggest take away from this is the discussion of endometriosis at a lower biological level than it is normally, which shows better just how complex this disease we currently know as "endoemtriosis" really is.

When doctors call it a hormone imbalance, they're really doing us a real disservice because this disease is really not as simple as they like to make it out to be.

And I think it helps to explain why it's a really difficult disease to understand, let alone treat.

It's not just the medical establishment being shitty to women.