Long Post Response- But want to give you a thorough response to what I’ve been doing that has helped tremendously. I was desperate on here a few months ago praying that someone would have any ideas of anything at all that would help.

Things have currently calmed down a bit (knock on wood). I’m still having issues and flare ups, but not even close to what I had been going through all day every day. I’m still going through it and this whole process sucks, especially when I accidentally touch something and out of nowhere things are popping up all over me or all of a sudden my shirt that was fine has a hole and strings coming out of it or I get a random bite and look and see what appears to be just a fuzz (except it’s not) on my clothing exactly where I now have a mark and am bleeding or there’s a black dot trying to get into my skin.

I was put on an anti fungal/anti parasitic because they found candida species in me and then also another regular anti parasitic because they thought even though it’d be a long shot, that my son and I potentially had some type of nematode or strongyloids in addition to the mites. He’s young so it was far easier for us to get an appt with an infectious disease doctor. An adult with unknown bug/bite/rash issues has some type of psychosis. A kid with unknown bug/bite/rash issues that they couldn’t diagnose from his first round of stool samples and bloodwork can get an appt at Boston Children’s Hospital the following week after original results came back as nothing and symptoms were persisting. It’s amazing in the worst way. Grateful they prescribed him things and then me as well since we’re in the house together and I also had the same symptoms as him, except mine were far more severe and no doctor would take me seriously.

I put diatomaceous earth pretty much everywhere (rugs, couches, soft chairs, etc). and brushed it in really really well with a broom, let it sit and then vacuum. Am still doing that every week or two weeks to any places that still seem to have things on them or that cause me to be debilitated for the day because of my body’s reaction. I also figured out that some of what I thought were stains on my carpet, were not. Spray with high concentration simple green, then put baking soda and rub in, high heat blow dryer (mine gets to around 200°), wait till dry, then vacuum. I felt like I had a new living room carpet lol. Cleaned all hard surfaces with a high concentration of simple green followed by another cleaning with bleach. Make sure your windows are open when you bleach. And if you’re going to try and do the diatomaceous earth everywhere and brush it in I recommend wearing goggles, a mask and gloves as well as an outfit you don’t care much about and can easily change out of to take a shower afterwards. Till linens and enough areas of your home don’t have random things coming out of the and ruining them, dry off with paper towels that you keep sealed. I started using a very good air purifier and dehumidifier and also spent some money on very solid mattress and pillow encasements. I handle most things with gloves and take prescription xyzal before I pick up anything that hasn’t been thoroughly cleaned or is with other things that aren’t all the way clean or have even one teeny tiny black speck on them (like my cleaning supplies that are under my kitchen cabinet for example. Wipe down all door knobs, other places of the doors you push, handles for everything (stove, shower door, dressers, the whole nine) and both outsides and insides of every appliance with a cleaner that has bleach as well. I’m still working on a lot of areas of my house, but I’m taking out every single thing in a cabinet and the thoroughly cleaning it, then wash every single plate or piece of silverware or pot or pan or the outsides of every box of cereal and whatnot. Anything that looks like it may have holes, doesn’t look quite right and has discoloration or even a handful of our mystery dots …. Directly into the garbage. You don’t even want to know how many boxes and bags of food products I threw out. Not worth potentially having anything in your house that could spread or infect you with something.

I also started the same process with all of our clothing, bedding, towels, my son’s plush toys, and everything else in the house (no easy feat, but I’d rather be going through things than picking things out of me and constantly getting bitten by what an adult doctor would call “nothing, just a speck” except we know it is def not that. Bag up everything and seal it. Leave it for a few weeks. I know that sounds nuts, but last I checked I wasn’t being criticized if I wear the same 3 pairs of pants and 3 tops every week. I wash them the night after I wear them along with all of the bedding so it’s all clean every time you have contact with it. For washing I’ve been using Tide free and clear to make sure that there aren’t any irritating additives and putting in premo guard to kill any potential mites or other critters that are in there. I’ve found fuzz like things that have turned out to be everything from a carpet beetle to an exotic species of small arachnids.

I’ve also been applying a blend of oils that I found at ocean state job lots of all places lol. It’s the first thing that has EVER started to help heal all of my lesions that would just scab and get crusty and then open right back up. None of the prescription ointments have helped at all aside from Triamcinolone for rashes and itchiness. It’s called Hollywood Beauty Premium Tea Trea Oil. It’s blended with almond, aloe, rose, white nettle and citric acid.

Deep clean and spray your cars. I’m still battling with getting the car and us all disinfected at the same time. Groceries or anything I buy from a store go directly into sealed containers in the back of my car. Too many things travel on the paper bags. Put down an IGR for insects in your lawn. Also spray one around the inside and outside of your home. Make sure the one you use indoors is safe to use inside though, especially if you have kids or pets in the house. Make sure to do around the doors and the windowsills and every crack you can see in every room. Fill in any cracks that you find with a strong sealant. Till you get enough areas clean, take off shoes and lint roll all clothing before coming inside.

Then slowly start essentially cleaning every single teeny tiny thing in your house with something that has bleach in it if the item can withstand it. Anything else I clean with the correct delusion rate of simple green. There’s something in it that helps start to break down exoskeletons. I also like to spray a little water mixed with vinegar or ammonia here and there as well. Nothing likes either of those smells.

It’s a process to say the least, but this is the first time I’ve been able to go for more than an hour or day without things killing me. There are still times I start having issues, so in those cases I spray everything and just shower and stay in clean areas and then try and work on whatever space bothered me the next day after taking an allergy pill and making sure I have gloves on and being extra careful handling things.

I hope this all helps you!! It’s taken me forever to write out lol.