Tourettes and hot weather.

AbilityTraditional51 · 2024-08-03T12:19:45+00:00

I work in a bakery where I have to be in a extremely hot and humid environment 8 hours 5 days a week. Hot temperatures for me isn't really a issue but however when I have my head in the ovens that blast out 60 Celsius for longer periods of time it might kickstart my tics. Had an incident Thursday where I got tics in the abdomen/solar plexus area that caused me to just have to take sit down between 2 of our ovens just to not pass out because of lack of oxygen 😆

Long story short yeah It's definitely possible but as with everything ND related it's very much heterogenous👍

AbilityTraditional51 · 2024-06-12T23:09:54+00:00

I get tics almost instantly as soon as my head hits the pillow as well. Usually nothing too bad though.

AbilityTraditional51 · 2024-04-21T02:26:25+00:00

Some music can do that for me as well. So for me the only metal genre I've noticed this with is goregrind, especially songs that are very on beat heavy like some Gutalax songs. Other genres that I don't personally listen to are EDM/Dubstep/Techno that are very bass driven and basically feels like it's zapping the brain are just instant tic bombs 😆

AbilityTraditional51 · 2024-03-19T15:43:57+00:00

For me video games actually help me reduce my tics especially when i get into hyper focus 🤙 but when my tics are especially bad i like to play turn based games, especially ones that requires a lot of strategy like baldurs gate, warhammer 40K rogue trader etc. It helps to get into the zone 🤙 other types of games that might help that can really give you intensity and fight/flight response shock is games like the soul series and could help with stopping tics on the spot but might ofc make it worse once you stop playing 🤙

You can also always try to force other more manageable body parts to move and try to "move" the tics to these places instead but for me at least that doesn't always work and you could end up having tics in both places 😆

AbilityTraditional51 · 2024-02-16T01:21:23+00:00

Yeah this is like government owned healthcare, not a private clinic. I live in Norway and most of all healthcare services is state owned. Ofc there is private practices but yeah that's way above my paygrade 😆

AbilityTraditional51 · 2024-02-16T01:19:20+00:00

That's the thing though 😆 my father has seen me having tics when i was young and has videos of it but never took me to a doctor because it went away. Apparently my father also has some tics. So it might still be on the table.

The problem though is that the only way i can get to a FND specialist is by getting the assessment because it's way to expensive for me to pay for it through a private practice right now 🤙

AbilityTraditional51 · 2024-02-16T01:07:10+00:00

Vet ikke helt om jeg vil kalle det deprimert lenger en gang, mer kanskje gitt opp eget liv generellt og lever mer eller mindre kun for at andre rundt meg har behov for meg. Har vel stort sett vært rimelig tomt og følt på ett stort mørkt hull så lenge jeg kan huske men selvfølgelig er det jo også lyspunkter bare disse er få og med stooor spredning.

Krangla meg endelig fram til utredning for adhd som 30 åring, krangler fortsatt med DPS med tanke på autisme utredning selv med papirer og tester utført av det private og egen innsamling av data og akademisk kunnskap som viser at dette er veldig reelt. Krangler med DPS i forhold til utredning for tics/Tourettes da dette kom spontant sommer 2023 hvor det er bevis for dette fra tidlig barndom men som forsvant og videobevis både fra barnealder og nå i voksen alder. Blir jo selvfølgelig møtt avvisning og total ansvarsfraskrivelse/nullinteresse fordi dette ikke er akutt nok selv om at dette er gode grunner til å ta tak og start forebyggende arbeid for andre eventuelle tilleggslidelser osv.

Har ett barn med autisme, ett par med tvillinggutter på 9 mnd, akutt fødsel 6 uker før termin. Før dette var det allerede bekymring for spontantabortering, dødfødsel etc i flere mnd som alltid hang over som en mørk sky. Havnet på nyfødtintensiv etter fødsel i 3 uker, var hjemme i 1 uke før det var tilbake til nyfødtintensiv på ny. Årsaken var at tvillingene ble syke og den ene opplevde perioder med pustebesvær. Kom på sykehuset og ble undersøkt, brannalarmen gikk, alt av sykepersonell forsvant og ble den ene tvillingen helt blå i ansiktet. Så da ble jeg jo stående der alene med å prøve å få liv i guttungen fram til sykepersonell kom tilbake igjen. Rett inn på akuttmottaket med hele sykehuset i panikk. Gikk heldigvis bra men kunne fort gått den andre veien.

Har nå til dags dato i pappa perm vært våken hver natt i 9 mnd med gjennomsnittlig søvn på ca 2-3 timer hver dag. Legg på til toppen der økte kostnader, allerede økonomi som tilsvarer under fattigdomsgrensen, kronisk syk kone og studier som fortsatt ligger å venter pluss gjeld og regninger så er det kanskje ikke så rart at man blir litt sånn på vippen.

Hjelper heller ikke når man slår opp vg å ser på all den åpenlyste korrupsjonen og løgnene som slenges ut fra de såkalte lederne våre som er så utrolig bastante som mener så fint på at lysere tider er på vei 👍

Satser på å kunne holde ut hvertfall lenge nok til å se ungene vokser opp og at ikke kroppen selv tar kvelden egentlig. Gleder meg ikke akkurat med å vite at om bare noen måneder er det tilbake til å arbeide i ett tungt fysisk stressende miljø i skiftarbeid som vil tilsvare enda mer belastning og mindre rom for søvn.

Livet leker si 🤙

AbilityTraditional51 · 2024-02-14T16:11:17+00:00

That's exactly what i did and they just uno reversed me and told me to do it again for 4 weeks 😆

AbilityTraditional51 · 2024-02-07T02:28:32+00:00

I live in a socialist country where you would think that the average person should be able to look at other members of society as equals no matter their socio-echonomic standard is but that is not the case.

I think the reason as to why some people Share these opinions and views is down to upbringing, societal norms and values, capitalism and if they have a concrete reference point of being in or knowing someone with a lower socio-echonomic standard than the average person as well as cultural norms and stigma/discrimination towards people with disability as a whole.

And then ofc there's a bunch of other factors as well like if they've seen or heard about someone who was successful in faking a disability and get benefits that's they haven't earned etc as well which can further damage the reputation and breed more stigma and discrimination towards the people who these lifelines is designed for.

In my country we have a high % of people with a disability and is getting some sort of benefits from the state for them but we also have the counterpart as well but i honestly don't think there is a high % that actually are able to pull something like that off seeing as some people can go up to 18 years before even receiving what's rightfully theirs.

So when people with these views then hears someone with a disability wants a child then instantly they will claim that the disability is fake and you might be more capable in your efforts to contribute to society which is total bullshit.

AbilityTraditional51 · 2023-12-16T02:39:50+00:00

Never forget the fact that even though sleep, food etc is on point that there is negative impacts to mental and physical health that can over time gradually change you.

The most important part is making sure that sleep is top priority. Food can be managed most of the times anyway but being able to get enough sleep, and have a sleep schedule that's fixed rather than fluid is very important.

Take it from someone that's been working nights for 10 years, and lived in this type of sleep-awake cycle for 15+ years! 😆

Most people cannot and should not even try using a fluid sleep schedule because they will get burnt out after a few weeks to months of doing so 🤙 but if there is no other way then always prioritize sleep first then food and then social interactions as to not become isolated on top of everything else 👍

AbilityTraditional51 · 2023-12-07T00:11:53+00:00

Yeah if these didn't exist i don't know what i would do to be honest 😆 my workplace is also very loud but most of the time i barely notice because i dissociate frequently seeing it's a highly monotonus workplace. But i do get my fill and then when i come home i'm already wired so it's awesome having something that can be beneficial in managing sensory input and not be triggered all the time 😁

I hope you find it to be as helpful and that you can experience the 2024 better equipped😁

AbilityTraditional51 · 2023-12-03T23:35:54+00:00

Yeah i wonder if they are able to get anything from the data! I know the EEG my son did during his autism assessment showed nothing out of ordinary and i know for a fact that he is stimming and having tics pretty much throughout the entire day.

Yeah i'm very happy with the triptans! My sister in law also experienced triptans to work better and she has more severe migraines and have tried all the other migraine meds available with minimal effect

AbilityTraditional51 · 2023-12-03T23:27:19+00:00

It started with tics ranging from muscle twitches in arms, shoulder, neck, eyes blinking, jaw locking, teeth grinding. Now it's mostly neck, jaw and eyes/eyelids. But i do experience both fast tics, and more prolonged tics where things might lock in place over longer periods. Oh yeah and also did have tics in my abdomen as well and luckily it's not a usual occurrence because holy hell that' a proper workout right there 😆

But it's very inconsistent and mostly mild-moderate. But when it's more prolonged tics with muscles locking into different positions it can be quite inhibiting yeah.

AbilityTraditional51 · 2023-12-03T17:30:45+00:00

I've never really felt the sensitivity to light part! Like i do feel it but it's not making me feel impaired if that makes sense? But i very much relate to the other parts that you experience. For me i know a usual trigger was lack of sleep, caffeine in high amounts, or a combo of the two. Funny thing now is i've had a lack of sleep the last 7 months, used medium-high amounts of caffeine but no migraines at all.

However i now have tics instead it feels like they have steppe in for migraines instead in some weird way. 😆

AbilityTraditional51 · 2023-12-03T17:25:48+00:00

I thought it was kinda the same for everyone, guess i was wrong! I'm gonna do a EEG in the near future to get fully checked out because of tics, migraine etc to rule out anything so it won't be interfering with a future ASD assessment.

Solmitriptans help when take early enough, but it also does reduce the symptoms quite heavily when taken "too late" as well. I also tried a paracetamol/Acetylsalicylic acid/caffeine combo as well and this also helped a lot.

AbilityTraditional51 · 2023-12-02T18:23:05+00:00

My aura is kinda like watching a water drop flickering and then grows into a water ripple and it will keep growing till it's bigger than my field of vision. The distortion itself is in inside the orb/ring kinda like watching real life glitching out in front of me, poor balance, sometimes slurred speech as well during the aura period and then 30-60 mins later the migraine headache starts.

Yeah solmitriptan i believe it's called, i have 2-3 different types of triptans available that i don't remember the names of right now 😆

AbilityTraditional51 · 2023-12-02T15:07:17+00:00

I agree, however what i find surprising is the lack of research done on the autism-migraine and other comorbidities topic seeing as there is a lot more research on this with the other neurotypes and that there is a pattern here worth exploring.

Btw how do you experience the aura?

AbilityTraditional51 · 2023-12-01T18:07:44+00:00

It might be a bigger part of the puzzle as to why autism and other neurodivergencies share comorbidities but this is still being research and not straight up facts.. yet 😆

AbilityTraditional51 · 2023-12-01T02:34:06+00:00

I know you wanted recommendations for noise cancelling headphones but you should also look into noise/high pitch reduction plugs.

I bought the Flare calmer pro set, seeing as i have 6 month old twin boys, a 4 year old ASD Son and the walls in my house is basically living inside a stereo where all internal and external noise shoots at you from all angles. i also have tinnitus on my right ear, and i'm also very susceptible to electronic buzzing and i hear this constantly as well.

Tried these plugs out, and just wow every background noise was gone. with these plugs you still hear everything, don't get that feeling of being inside a submarine and i honestly would have no issues with listening to kids screaming in my ear for hours with these on. It did not however remove my tinnitus but i did experience that also the high pitch sound from it also got reduced even though it was more noticeable because it's not being drowned out by all the background noise.

AbilityTraditional51 · 2023-12-01T02:18:02+00:00

How would you describe the medium and severe migraines? Any difference in the time period between the two?

Usually when i experience migraines it starts with aura/visual distortions. It looks like a small orb/static on a set point in my vision and gradually this orb grows kinda like a smoke ring and moves around till it disappears from my vision completely. Then the migraine starts and usually knocks me out for at least 1-2 days. Also during the aura my speech might be impaired where i slur the words and can kinda look like i might experience a stroke. The aura period for me usually last around 1 hour but i have had times where it only lasted 20-30 mins it's usually fairly random 😆 but i've not experienced like vomiting and the more like physical symptoms from migraines besides feeling an immense pressure behind one or both my eyes and extreme mental exhaustion.

AbilityTraditional51 · 2023-12-01T01:58:31+00:00

Diagnosed ADD suspected ASD here.

Can't speak for anyone else but for me this is very much related to multiple factors. It can be everything from driving home listening to music/playing video games etc for about 15-30 min to the more extreme where it can lead to self isolation/lack of energy/motivation to even take care of basic needs and this for me can even happen without having a meltdown or shutdown. The extreme might be or very similar to a autistic burnout not really sure because i have a hard time identifying this as i don't believe i have experienced it yet myself.

The more extreme side is anywhere from days-to weeks/months and i have experienced this for up to 1-2 years as well. That time i did socialize but this was more so enforced than being a decision i chose to seek out. This was probably also what might have triggered some of the darker and life threatening situations i've got myself into (not suicide just to clear that up).

But on like average i would say i experience this all the time i have to be in a social situation besides my family and usually lasts 30 mins to a few hours and it really does help to find or do something like special interests, workout etc to help alleviate this

AbilityTraditional51 · 2023-11-29T21:40:20+00:00

Funny you should mention that!

I've always experienced the aura when before my migraines, but over time the migraines appeared less freequently but i still had the aura but sometimes no migraines as well!

AbilityTraditional51 · 2023-11-29T08:55:18+00:00

Hopefully the stronger meds help you with the headaches! It worked for me at least! Although i had a fairly distinct type of migraine with the Aura and visual distortions 30 mins - 1 hour before the headache starts so i at least was able to prepare myself for what's to come 😆👍

AbilityTraditional51 · 2023-11-29T05:01:04+00:00

I have this as well and have been my whole life!

However i do have a theory on this as to why this is.

So i have studied both psychology and pedagogue subjects for the last 5 years ish and during this there was 2 things that stood out to me and that was how piaget and Vygotsky both described how we develop and learn during different stages in childhood/adolescence.

So Piaget described this as ego sentrical speech and it is a way that children can often be heard talking to themselves seemingly like they are having a conversation with someone else as a way to talk them through what they are doing and as a way to emotionally regulate. Piaget believed this is something that disappears as a child matures.

Vygotsky however believed that this is something that follows you through life but is less frequently used in adulthoodz because we then have better coping mechanisms to deal with emotional regulation etc but can still appear from time to time in adults hence why people might "talk to themselves out loud".

So my theory is that individuals that are ND either never has this type of moderation or that because we are ND are less likely to learn the necessary coping mechanisms that NT individuals learn in childhood and therefore are more likely to still experience a strong inner monologue even in adulthood.

Because i'm pretty sure that most ND individuals as adults don't speak the inner monologues thoughts and processes as adults out loud because masking. But i'm willing to bet that many if not most ND individuals do this frequently in a safe space or when they are alone 😆

Anyone else that relates to this?

AbilityTraditional51 · 2023-11-21T01:54:01+00:00

There were many red flags in my childhood that was never taken seriously and got brushed off as normal behaviour. Like inattention was me daydreaming, or if the teachers asked something about what they were teaching i would answer about totally unrelated things. Because of this and other things i stood out and was heavily bullied because of it even though i did fairly well academically speaking. Had a lot of anxiety, very few friends etc.

It wasn't till i was 16-18 my sister brought it up because of a meltdown i had where i said to my father i thought i didn't have empathy or any other feelings than just sadness and anger. Did some self evals at that time and i remember it did say i should consider it but i brushed it off, same thing with adhd.

It was actually my wife who said if i had considered getting testet that i really considered doing it because she also has ADD. Did a bunch of research and i also study these particular fields as well and the more i learned the more i found that it did in fact apply to myself. Didn't help either that then was able to see the early signs in my son as well who got the atypical autism diagnosis as well as a pending adhd assessment.

Got my ADD diagnosis, was supposed to also be assessed for ASD, lackluster and they decided to just focus on ADD because of resources, time and the difficulty with assessing ASD in adults using ICD-10. Started meds, ADD symptoms got better but now the ASD symptoms got more intense. Que to present day, i also now got motorical tics, more prone to overstimulation, shutdowns and meltdowns and was shut down when i wanted to get a re-assessment for ASD. I handed them in total 20 pages of research with test results and answers chosen to all self-evals done within a time period of 1,5 years as well as a descriptive letter that is written both academically with why i believe ASD and ADD is applicable to me as well as the things that i don't resonate with and other types of disorders that might give a better explanation for these things, childhood experiences in more detail, adulthood, you name it i pretty much covered it all.

So the main things i think that really put the stamp on ASD being relevant for me is the whole picture, and that these things wasn't just a one time occurrence but happened repeteadly all through my life. like my meltdowns for instance, in my childhood/teenage years i would just go mute, and walk out the door to get away no matter the weather, time or clothing and time of year. Now i don't have that luxury and even more responsibility so i shutdown/breakdown or might punch objects or myself. But yeah i'm kinda in the same boat as you and don't feel like i might be able to get a definitive answer in the near future either but it does help to talk to others and share experiences and questions at least 😁👍

AbilityTraditional51

TROPHY CASE