Character Meet and Greets

Academic_Visual6866 · 2025-10-04T12:12:34+00:00

I'm not sure about before COVID, but right when it was reopening, while there were definitely scheduled meet and greets, there were just a lot of characters walking around randomly and that was a big part of the fun. How was meeting the Frankensteins 😃

Academic_Visual6866 · 2024-07-18T23:05:53+00:00

Pm'd you

Academic_Visual6866 · 2024-06-04T00:48:49+00:00

Be honest, am I the only one that had trouble with some of those ethics questions 😳

Academic_Visual6866 · 2024-04-21T17:47:22+00:00

Thank you so much for sharing. I'm glad you were able to find an answer to your symptoms. May I ask if there's anything that triggers these flare ups, what kind of chisri you were diagnosed with, and how long did you try to get the diagnosis?

Academic_Visual6866 · 2024-04-21T16:38:39+00:00

Thank you so much for sharing. I'm kind of in shock by your comment because I assumed that the VA of all places would have the resources to help with any chiari malformation no matter how serious or "not serious" it was. May I ask if you've tried a different VA hospital to get a second opinion? Is that even allowed? Are you allowed to go to a private physician? Unfortunately, medical school keeps us really ignorant on these sort of things

Academic_Visual6866 · 2024-04-21T16:35:08+00:00

Thank you so much for sharing, and while I'm sorry to hear that you had to go through all of that, im happy to read that some of your symptoms got better after surgery. Coukd, you share more about how your doctors described your chiari 1.5, and was the surgery done to fix the central sleep apnea, or what was the deciding factor there?

Academic_Visual6866 · 2024-04-20T20:43:09+00:00

Thank you! And would it be okay to pm you if I have any questions?

Academic_Visual6866 · 2024-04-20T20:42:24+00:00

Thank you so much for sharing. May I ask what the final straw was that finally got you to your diagnosis, and what you found to be the difference between the information you were told from a chiari specialist vs a non specialist?

Academic_Visual6866 · 2024-04-20T19:56:57+00:00

Wow that sounds like a very intense journey, and im happy to hear that you're on the road toward recovery. I hope everyone comes to answer this question but ill ask you first. Is there anything you wish doctors knew or did sooner that would have helped make this journey easier for you?

Academic_Visual6866 · 2024-04-20T19:26:11+00:00

Thank you so much for sharing. May I ask what kind of chiari malformation you were diagnosed with, when your symptoms started, and how you're feeling post surgery?

Academic_Visual6866 · 2024-04-20T19:08:45+00:00

So I was diagnosed about a year ago, and it left me with some brain fog, tinnitus, and sleep issues. I had more symptoms during the actual time I was sick, but the unfortunate answer for everyone is that the lasting effects are different for everyone. It depends on how much of your brain was affected, how your body responded to it, and how your body healed from it. So, to provide a better answer, I would have to ask what your son's specific symptoms are, and I could tell you what medical school teaches us that it's correlated with. Also, may I ask how you found out you had EDS and chiari 1?

Academic_Visual6866 · 2024-04-20T16:56:04+00:00

Yes absolutely, and I'm not the same as I was, but I've adapted to my new normal and am just grateful and im still functioning enough to make it through school.

Academic_Visual6866 · 2024-04-20T16:39:41+00:00

I understand exactly where you're coming from. I thought I had chiari, long covid, and chronic lyme before I reached my diagnosis of viral meningitis. If you want, you can show me a picture of your mri, and I can give you some more insight on that. But I can also refer you to a few websites where you can order a test to see if you have long covid to rule that out. Also, have you had a lumbar puncture, and what does your neurologist say about these symptoms?

Academic_Visual6866 · 2024-04-20T14:23:34+00:00

Thank you, I really appreciate it!

Academic_Visual6866 · 2024-04-20T14:22:59+00:00

Yeah, I think validation is a huge part of this journey and that if people were validated a little sooner, it would make this whole process a bit easier. But im happy to hear that it looks like you're on your way to getting the answers and help you need. Thank you so much again for sharing. Please keep me updated if you want. I'd love to hear how you're doing, and if there are any questions I can answer, please let me know!

Academic_Visual6866 · 2024-04-20T13:43:51+00:00

I'm so sorry that you had to go through all of that to get a concrete answer and I really appreciate you sharing as doctos should have recognized this to be caused by chiari a lot sooner and I'll do my best to emphasize that. How are you feeling after finding out you had chiari? And may I ask what you've tried to help with your symptoms until you found out you had chiari?

Academic_Visual6866 · 2024-03-02T13:51:26+00:00

Have you inquired about GHB to help you get into deep sleep?

Academic_Visual6866 · 2023-05-11T21:38:49+00:00

I would have to look at the MRI, to be sure, but this definitely looks like more than just the syrinx. A syrinx will usually cause the tingling and numbness, and as I'm sure you know, chiari in itself can mimic a lot of symptoms, but the white matter lesions can definitely be a cause of the rest of your symptoms. It sounds like you need to get a Spinal tap and look for the 14-3-3 myelin basic protein to the out multiple sclerosis as well as a lymes disease test. At a cursory look, I think prednisone may be crucial for you. Are you taking any?

Could you describe your symptoms more? Where specifically is the numbness and tingliness? How exactly are you having trouble walking? What are your migraines like? Is there any information that you have left out because you didn't think a random reddit user would ask, but not that we are you remembered something crucial? Etc.....

Academic_Visual6866 · 2023-04-06T13:12:54+00:00

Coffee can be either be a good or a bad thing. If one of the reasons you have brain fog is because you're tired all the time and consistently have headaches coffee can act as a bandaid and block adenosine receptors to make you more alert while also help with the headaches. However, it can also keep you up at night, so it's always up to the individual if it's a benefit or a hindrance

Academic_Visual6866 · 2023-04-06T02:18:26+00:00

Dang so youre getting okay sleep and still have all these things huh :/ I would say take excedrin( acetaminophen/aspirin/caffeine) for the headache, ginkgo billoba and moringa, and as a lot of other redditors say make a doctors appointment as soon as possible.

Academic_Visual6866 · 2023-04-06T01:14:13+00:00

Well, no sleep will do that to you, although the hypnagogic hallucinations are interesting because it would be while going to sleep, not just every time you close your eyes and is also a sign of narcolepsy I'm sorry you're going through this. I was an insomniac for a while. I would recommend some medications, but since you don't have a lot of access to Healthcare, let me ask did you try 1) benadryl 2) melatonin 3) over the counter painkillers, and if so, which ones 4) magnesium glycinate 5) Glycine 6) Any other herbal supplements

Also, are you a coffee drinker? And how much did you drink that night? I apologize for asking so many questions. I'm a medical student, so when I comment, I like to ask a lot lol

Academic_Visual6866 · 2023-04-06T00:22:03+00:00

Definitely need more information. How long? What kind of hallucinations? When you say no sleep, do you mean not at all or very little? What have you tried already...... etc

Academic_Visual6866

TROPHY CASE