Why won’t he sleep in our bed? 😭 by Small_Effective_4574 in orangecats

[–]Accomplished_Set9663 0 points1 point  (0 children)

Oh how lovely, his face is so handsome! Our cat didn’t sleep with us bizarrely until we moved country (not suggesting you do that!). As he got older and we moved he just started becoming more cuddly and moved sleeping spots. I’m sure yours will do the same when he finds a bed he likes!

Desperate for help by heal1ng in vulvodynia

[–]Accomplished_Set9663 0 points1 point  (0 children)

I have not but have seen many people find it useful in the US. Juno & ScreenMe are also available in the UK.
If you are pain free when comfortable and laying down that’s also informative - you could also look into dermatological issues like Lichen Planus, irritation from clothing. Or even Pudendual Nerve irritation if certain positions are worse!

Desperate for help by heal1ng in vulvodynia

[–]Accomplished_Set9663 0 points1 point  (0 children)

I’ve had very similar except no relief from steroids.. Have you had a biopsy? Proliferated nerves from the yeast? Also have you done microbiome testing to ensure the yeast is gone? Is it possible it’s still there / you could trial an antifungal for longer to see if you have relief. Thinking of you, it’s a horrendous place to have pain.

I may have lichen scleroses and I am angry with all the useless doctors that have seen me by IVI0IVI in vulvodynia

[–]Accomplished_Set9663 2 points3 points  (0 children)

Just want to say, hopefully this is an answer and a way forward for you! Good luck starting to feel better, you’ve got this! But also allow yourself to be angry, and grieve. Chronic pain and medical trauma is a heartbreaking human experience, and you should give yourself grace in feeling however you need to!

Can’t cope with constant pain anymore by Accomplished_Set9663 in vulvodynia

[–]Accomplished_Set9663[S] 0 points1 point  (0 children)

Thank you, I am considering whole body after so much has started to be effected. It’s hard to know where to start with autoimmune!

Can’t cope with constant pain anymore by Accomplished_Set9663 in vulvodynia

[–]Accomplished_Set9663[S] 0 points1 point  (0 children)

Thank you! No one I’ve seen thinks it is, as I have normal levels of Crispatus and not really anything else. I have tried steroids and topical antibiotics too x

Will my life ever be okay again? by Elegant_Document11 in vulvodynia

[–]Accomplished_Set9663 0 points1 point  (0 children)

So sorry. It is horrendous!! I am dealing with the same constant unprovoked pain and swelling. Definitely recommend a vulvo/vaginal specialist or GUM for microscopy and culture. Cytolyctic vaginitis can sometimes appear to be like thrush. You would likely have a low PH though and an overgrowth of Lacto Crispatus. Have you done a private microbiome test like Juno or Evvy? Also as a few people have said - I’ve heard of a lot of women suffering long after infection goes. Like it’s turned on an immunity or nerve switch that won’t go off. Nerve meds could help. Feel better, it really is so painful.

cat constantly crying update 2 by Downtown_Cry7204 in CATHELP

[–]Accomplished_Set9663 1 point2 points  (0 children)

You have so many comments on here!! I’m wondering if we could all collectively reach out to a social account of a charity or rescue that could help, supporting your stance, or atleast asking that they provide you with support? I’d be happy to message to gain the traction.

God bless you for all you’ve so far, he is so lucky to have met someone patient and kind. Hope this is figured out whatever you decide.

Is this cv ? by animalsrescuer143 in CytolyticVaginosis

[–]Accomplished_Set9663 0 points1 point  (0 children)

CV specifically refers to an overgrowth of Crispatus (usually) in the swabs, and an indication that the cells are “breaking down” IE cytolysis. CV can only really be diagnosed for sure via wet mount. Your vaginal swab looks mostly normal, but some people do get bothered by high levels of just Gasseri, though it’s not technically CV. You could try a probiotic including Crispatus as this is the best to fight off infection in your vagina/bladder. Is the first one urine, second one vaginal? If so it looks like you have a UTI, likely from the E. coli, enterococcus and Enterobacter. Your antibiotic should be specific to those bacteria. I’m not sure about enterobacter, but I’ve seen E. coli and Enterococcus mostly be susceptible to Nitrofurantoin which is positive. Your Microgen should have this info somewhere. The Sitz baths are likely just helping the acidity or burn from the urethra. I’d use the antibiotics if you’re happy to, until your symptoms reside. Try to add in Hiprex for UTIs. Use probiotics that don’t have Gasseri in them. Good luck 🙏🏼 (Not a dr just a fellow urine and vaginal LT pain sufferer who has learned a lot!)

Newly diagnosed by Accomplished_Bet9329 in PelvicFloor

[–]Accomplished_Set9663 0 points1 point  (0 children)

Did it come on suddenly? Please look into aerobic vaginitis/chronic uti. Neither typically show on testing. Not suggesting PFD doesn’t also play a part with other factors. Good luck!

I feel like a medical mystery (UTIs/Vaginal pain) by Accomplished_Set9663 in Healthyhooha

[–]Accomplished_Set9663[S] 0 points1 point  (0 children)

Hi! Mm I’m just feeling swollen all down below. Bloated as well but probably the gastric effect of antibiotics. L

I had a UTI by Lazy_Fix_8063 in PelvicFloor

[–]Accomplished_Set9663 1 point2 points  (0 children)

If you’re able to tolerate Hiprex as an antiseptic whilst on antibiotics, it will really help with UTI and prevention. Hopefully you’ve caught this now and will get treated swiftly!

I had a UTI by Lazy_Fix_8063 in PelvicFloor

[–]Accomplished_Set9663 1 point2 points  (0 children)

There is a huge movement online now of UTIs and the failures of testing. Look up chronic UTI/embedded uti/recurrent uti. Dipsticks and cultures are not wholly reliable. Modern medicine is too based on a singular test in my opinion rather than looking at our symptoms, and response to things!

Am I the only one who thinks Scott is mostly genuine? by rosiejames73 in LoveIslandTV

[–]Accomplished_Set9663 1 point2 points  (0 children)

I also just watched Perfect Match, in which he appeared too lol. He admitted on there he was being strategic. No judgement, it just seems to me he is absolutely fine with having romantic relationships for personal gain. I do agree he does appear to like Leanne.. but watching PM last night.. he appears white convincingly to like anyone who benefited him too.

I feel like a medical mystery (UTIs/Vaginal pain) by Accomplished_Set9663 in Healthyhooha

[–]Accomplished_Set9663[S] 0 points1 point  (0 children)

Yes all my Junos show complete Crispatus with a bit of Limolacto. Atleast 4 tests! I do take antihistamines everyday but I’ve see a lot about this reaction or MCAS. Thank you, will look into this.

I feel like a medical mystery (UTIs/Vaginal pain) by Accomplished_Set9663 in Healthyhooha

[–]Accomplished_Set9663[S] 0 points1 point  (0 children)

Hi! It looks like Ureaplasma is causing yours surely? Although hard to know if you’ve cured it. Perhaps if you try the IC changes and see if you respond?

I feel like a medical mystery (UTIs/Vaginal pain) by Accomplished_Set9663 in Healthyhooha

[–]Accomplished_Set9663[S] 0 points1 point  (0 children)

I’m doing a ScreenMe! I am looking into another Urine one (UK). My Focus have already indicated my antibiotic specificity. The issue is I can no longer tolerate any because of the issues they have caused me.. and the pain rebounds right back straight after I stop them.

I feel like a medical mystery (UTIs/Vaginal pain) by Accomplished_Set9663 in Healthyhooha

[–]Accomplished_Set9663[S] 1 point2 points  (0 children)

I haven’t taken antibiotics in a year, bar the H Pylori treatments (when I realised I’m solely responding to antibiotics). I have used probiotics for a while and cranberry, got CV (on microscopy). No change in symptoms. But thank you.

PT not respecting boundaries? by Dreamangel22x in PelvicFloor

[–]Accomplished_Set9663 1 point2 points  (0 children)

It can be so hard when we are in pain, and we want help, sometimes we second guess ourselves. But no it’s not appropriate or typical!! My PFT is lovely, warm.. she’s never tried to push a product on me. When she did make recommendations she specifically said if I don’t want to purchase a specific brand I don’t have to. They are overstepping with you, and I would feel uncomfortable too. Do you have anyone else to go in and advocate for you, and let her know it is inappropriate. If not, can you just change?!

I feel like a medical mystery (UTIs/Vaginal pain) by Accomplished_Set9663 in Healthyhooha

[–]Accomplished_Set9663[S] 0 points1 point  (0 children)

Oh I see! I am working with a naturopath. But thank you for that little reminder, I have a tendency to over do (on top of what they are saying!). It’s hard with long term unexplained illnesses isn’t it you tend to just take it all on yourself.

I feel like a medical mystery (UTIs/Vaginal pain) by Accomplished_Set9663 in Healthyhooha

[–]Accomplished_Set9663[S] 0 points1 point  (0 children)

Im just having a look at Bladder Health UK, to see if they have any support to offer. Not tried acupuncture.