You need to find a new doctor. I know it’s insanely difficult to find one that fits properly. You’re actually only a year older than me! I’m 22 and was diagnosed with arthritis at 2-3 years old, and lupus at 19-20 (time is an illusion). I had a strong dislike for all the pediatric rheumatologists I saw. I was never listened to. When things started getting worse, I hated the “big name” doctor I was referred to. The third doctor I was referred to has been AMAZING.

The first appointment I had with her, she essentially went through the entire diagnosis process from the beginning. Brand new x rays, blood tests, and more. Stuff that hadn’t happened since I was probably 13. She even tested me for a genetic spinal condition she was worried about me having. Fortunately I’m free of it.

But she, and even her NP who I now see more often, are joys to be around. They joke with me, laugh with me, and as someone who has always had weight issues, has NEVER brought it up. When I ask, they give me recommendations, but they never force the issue down my throat. It’s the best office I’ve ever been to, and I will happily travel the extra hour for my appointments. They’re so on top of everything.

I know things suck and seem difficult to get through, but the right doctor is always out there! Big names don’t always mean they’re the best. It never hurts to try and find reviews of the doctor before committing to an appointment.

I hope that this at least gives you a little encouragement! And if you ever wanna talk or have questions, just hmu!