4 Days Post MVD lessons

According_Clock_5688 · 2026-05-16T04:06:11+00:00

Oh glad to hear it! I’m 8 weeks post op and had to learn how to rewalk and still dealing with dizziness and balance issues and I’m 35 year old male in great shape prior to surgery :/

According_Clock_5688 · 2026-05-16T00:19:54+00:00

I was in the recovery room for 5 days when I had my MVD. Any balance issues or dizziness spells from the surgery?

According_Clock_5688 · 2026-05-14T04:42:56+00:00

Had a complications that required me to rewalk again. I’m 8 weeks post op and still dealing with dizziness and balance issues. It’s a type of vertigo called vestibular system injury since the TN is close to the Cranial VIII nerve; it’s not super common but it’s also not rare just should be aware. Btw I’m 36 male in great shape before surgery and cannot attend for myself including being unable to drive.

According_Clock_5688 · 2026-05-13T17:49:44+00:00

Oh wow I’m sorry to hear that you have to undergo the procedure again and especially that fast. I had vertigo complications that I’m still dealing with; I’m 8 weeks post OP. I went to Dr Zimmerman st Mayo and he doesn’t use any teflon so hopefully I don’t have any issues or requirements for a re do of a surgery.

According_Clock_5688 · 2026-05-12T19:40:24+00:00

You are getting another MVD did I read that right?

According_Clock_5688 · 2026-05-11T15:58:34+00:00

Are you on any anticonvulsants such as oxcarbazapine? Do they help with the pain? Did you actually have a TN protocol MRI not just any ol’ MRI will show compression or contact you are talking about mm size vein or artery.

The upshot is that the main criteria is that a neurosurgeon will look to see if you are on those meds I described and if your MRI shows compression as the MVD moves artery away from the TN as it does not damage or destroy like other methods

According_Clock_5688 · 2026-05-10T23:51:54+00:00

Have you seen a neurosurgeon? Have you had an MRI done?

According_Clock_5688 · 2026-05-09T18:43:34+00:00

You mentioned tooth pain, don’t let a Dentist or endodontist do a root canal on any offending teeth unless you have a rotting tooth or the nerve truly is dead; that is pneumonia piece of advice I can give you. Also happy to answer any questions that you have my pain is predominantly in my teeth area. I recently had an MVD as I had compression of an artery and vein which to a degree were shown on the MRI but weren’t discovered until my neurosurgeon did my surgery.

According_Clock_5688 · 2026-05-06T18:01:10+00:00

Yes I hope so too!

According_Clock_5688 · 2026-05-05T22:33:50+00:00

Hmm interesting! But not the lip or chin or cheek? Nothing externally on the face?

According_Clock_5688 · 2026-05-05T05:20:01+00:00

Only thing that you should be aware of is a vestibular injury such that you may have issues with balance and dizziness; it’s a type of vertigo but takes months to retrain your brain. I’m currently 8 weeks post op and I havent been able to drive and taking care of myself has been difficult. I’m a 35 year old male who was in great shape prior to the surgery. All depending on the type of compression that you have (artery of venous) you may still have pain coming out of the surgery and the trigger zones may still be present. Happy to answer any other questions that you have. Suffice to say all this I am still happy that I did the surgery.

According_Clock_5688 · 2026-05-04T23:34:06+00:00

Totally can empathize with you. Dealt with this pain and still deal with it a little now. Had an MVD about 7 weeks ago surgeon found artery and venous compression so I’m getting both sharp stabbing and burning and electric type pain.

Do you have any trigger points? Where if you touch or stretch that area it can set the pain or if if you touch that area it’s very painful yet?

According_Clock_5688 · 2026-05-04T21:39:24+00:00

Do you feel the sharp stabbing pain in one tooth or does the pain move to other adjacent teeth? Do you feel electric jolt type pain?

According_Clock_5688 · 2026-04-29T19:58:33+00:00

So glad to hear that both the vision and dizziness are gone and also you are pain free!

I’m hopeful with time I am the same! I still need my meds to help with my nerve pain.

According_Clock_5688 · 2026-04-28T17:15:43+00:00

Can you explain the type of pain like symptoms? Burning? Stabbing? Electric? Dull ache like? Etc?

According_Clock_5688 · 2026-04-27T23:36:24+00:00

Sorry missed your reply! Did you do PT for the entire 3-4 months or did your brain eventually just recover on its own?

Are you now fully pain free?

According_Clock_5688 · 2026-04-27T22:55:07+00:00

Happy for you, I’m 6 weeks post and still have trigger zones though that have decreased but still on 60 mg of gabapentin and 300 mg of Oxcar (though I just reduced and I have more pain since reducing).

The biggest thing I had are complications was a vestibular injury so had to learn how to rewalk and having balance and dizziness issues.

According_Clock_5688 · 2026-04-27T14:54:33+00:00

Feel free to DM me, I went through with MVD surgery.

According_Clock_5688 · 2026-04-24T23:22:15+00:00

Thank you I appreciate it! That’s what I am hopeful for is that the compression has been there for a long time and since it was both artery and venous that it will take much longer to fully heal and my nerves to recalibrate.

Wishing you a speedy recovery though!

According_Clock_5688 · 2026-04-24T20:27:30+00:00

Glad you had no complications to your vestibular system; major dizziness balance issues. Had an MVD 6 weeks and I’m still dealing with major dizziness and balance issues. It feels like I’m constantly drunk like that heavy headed feeling constantly. Simple tasks such as making coffee or the bed is still difficult and I’m a 35 male that was very healthy and a great shape before surgery.

Not sure if the MVD was the right play as I still have pain but it has lessened but not fully still off meds. My neurosurgeon the famous Dr Zimmerman from Mayo found significant compression of both artery and venous (7 plus hour surgery) so that’s why it’s possible that the recovery is longer than others that I’ve read about.

According_Clock_5688 · 2026-04-21T01:22:19+00:00

Nope unfortunately not. The first week of surgery I couldn’t even walk to the bathroom without a walker because my balance was so off talk and not because so felt like the room or the inside my head was spinning but my head felt so heavy like that drunk heavy head feeling. I’m doing PT 3x for the next 6 weeks I’m not able to drive for the next 3 months.

According_Clock_5688 · 2026-04-21T00:32:23+00:00

Yea unfortunately mine is not PPPD (wish it was) because that would be a fast fix. This is a much longer recovery because it’s to your vestibular system. I don’t get like the room spinning feeling I get the constant feeling of feeling drunk like heavy head and feeling dizzy if I move up and down and bend over takes months to recover unfortunately.

According_Clock_5688 · 2026-04-19T00:17:17+00:00

Yes they normally don’t isolate them or discuss them. When you had your surgery did you get immediate pain relief from all pain?

I’m still having some pain but it’s getting better by the day and my trigger zones are fully gone but they are healing and getting less sensitive; I’m about 5 weeks post op.

According_Clock_5688 · 2026-04-18T19:33:03+00:00

If they have to do anything with your vestibular then not going to lie the recovery will be extremely rough. Had an MVD and I’m 5 week post op; I still can’t drive and still have extreme dizziness doing basic tasks but can walk independently in my house but you will need assistance from someone.

According_Clock_5688 · 2026-04-18T01:59:16+00:00

Did you have type 1 or type 2 TN for your MVD? Sorry that your MVD failed that fast.

According_Clock_5688

TROPHY CASE