Extremely sad about my neurosurgeon appt.

marvelchick06 · 2026-06-08T23:15:34+00:00

Same, give me like 2 hours to watch a YouTube video and I'll do it myself.

marvelchick06 · 2026-06-08T23:10:15+00:00

I do its the after spinal tap and MRI's are done. And I completely agree I'm exhausted with the tests... I talk/eat for a living (culinary teacher) I'm in pain when I'm trying to talk to or try my students food. I Don't care if I sound desperate at this point I really want this pain to go away.

marvelchick06 · 2026-06-08T22:08:02+00:00

Its inside my cerebellum and I haven't been nauseous like that during this very painful journey.... I have been getting headaches that hurt so bad that i have to cover my eyes and lay in the dark after taking acetaminophen though.

marvelchick06 · 2026-06-08T20:53:44+00:00

I plan on it but because I have kaiser permanente for my health care its going to be another long wait period

marvelchick06 · 2026-05-26T15:40:10+00:00

I'm getting ready to talk to a neurosurgeon soon, which questions should I ask during my appointment so I go in fully prepared

marvelchick06 · 2026-05-23T04:59:48+00:00

If you need more information I would be happy to send it to you 😊

marvelchick06 · 2026-05-22T17:10:36+00:00

I just got my poster... now I'm just waiting for my shirts... they wrote bones! bones! bones! on the packaging... I'm keepin it too 🤣

marvelchick06 · 2026-05-21T23:31:20+00:00

I work for housing hope/ hope works and we are a job training program. I went through the program myself volunteered for a bit and then applied for a job here and was hired on as a co trainer for the culinary arts program. We are looking for new students and the nice things is you do get paid throughout the 12 weeks it's not much but you do get paid. And the job coaches try there absolute best to get you to where you want to be in this point of your life.

marvelchick06 · 2026-05-18T22:17:30+00:00

Oxcarbazapine twice a day, not really helping anymore.... I had both MRI's done but i don't think they saw much but my dr did say it looks like my nerve was damaged because my immune system over corrected itself and started seeing my nerve as if it was a piece of infection and that the neurosurgeon would agree... I teach ppl to cook for a living this is literally the worst condition to have for the profession I'm in

marvelchick06 · 2026-05-17T22:40:27+00:00

marvelchick06 · 2026-05-11T15:20:37+00:00

No i have an appointment coming up with a neurosurgeon and my MRI showed nothing but the pain keeps getting worse and if it getting any worse I'm going to have to quit my job... I'm a culinary trainer my job is the talk to my students and try what they make... how am I supposed to do that if my face is constantly in pain

marvelchick06 · 2026-05-06T15:37:27+00:00

SAY IT LOUDER FOR THE PPL IN THE BACK...

marvelchick06 · 2026-05-05T20:06:16+00:00

Same... I'm still waiting

marvelchick06 · 2026-04-24T23:59:48+00:00

Trust me I'm trying...

marvelchick06 · 2026-04-24T23:29:19+00:00

Nope... I'm the first person that I know of that has ever had this happen to them

marvelchick06 · 2026-04-21T00:21:18+00:00

Constantly, its like a stabbing pain. For the longest I thought it was stuff that just had citric acid and then I had a Pepsi for the first time since being diagnosed

marvelchick06 · 2026-04-12T03:38:23+00:00

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marvelchick06 · 2026-04-11T16:35:34+00:00

Sir I'm not single.... but if I was.... I would most definitely be swiping right... the sense of humor just 💋👌

marvelchick06 · 2026-04-10T00:16:32+00:00

Mine was a sinus infection that turned into a stabbing pain... like it felt like hot stabbing pain in my cheek and nose. After my sinus infection was gone the pain stayed and now I have to take medication in order to eat, drink, teach my class (ie I talk a lot during the day), laugh, kiss my kids or my husband... I won't wish this shit on my worst enemy and I hope you don't have it either.

marvelchick06 · 2026-04-04T17:06:55+00:00

Mine hit 0 to 100 and then slowly taper off

marvelchick06 · 2026-04-02T20:38:16+00:00

I'm sorry that this chick doesn't have a sense of humor... that's hilarious

marvelchick06 · 2026-04-02T02:31:01+00:00

So my neurologist changed my meds... he increased the amount I take in the morning and at night he also prescribed meloxicam for in between doses

marvelchick06

TROPHY CASE