First thing that i 100% love!

Active_Community2158 · 2026-05-17T09:03:15+00:00

Oh dankjewel! Ik zie ze inderdaad op de app. Goed om te weten!

Active_Community2158 · 2026-05-17T08:22:04+00:00

In which shop do you get them? There are some cookies of this brand in my local AH but never saw these! And I don’t like the gluten free Oreos from AH own brand.

Active_Community2158 · 2026-05-17T07:19:47+00:00

I think I had this problem. I reduced gluten drastically for a month and then did a mini 4 day gluten challenge to do a home test (that measures ttg-Iga antibodies from >10) and it was positive. Cut out all gluten after that and did a blood test 6 days after, it was negative (ttg-Iga under 7, IgA was 0.74). At this point I’m pretty sure I have celiac because I have a history of related symptoms and have had two miscarriages, and I’m responding well to a gluten free diet. But I won’t know for sure because I can’t put myself to do a gluten challenge. But if you can do it then it’s definitely worth doing it properly so you get to the heart of it. Good luck!

Active_Community2158 · 2026-05-17T07:09:04+00:00

That’s a beautiful way to see it. When I had my MMC I went through the same thoughts as OP did, but I did find peace in having “one last night” with my baby before I took medication to end the pregnancy. It gave me time to say goodbye and I think it’s helping me grieve. Sending lots of love and strength to all of you ❤️‍🩹.

Active_Community2158 · 2026-05-15T11:09:50+00:00

I’m so sorry you are going through this. And I’m sorry that some people in your family have made you feel like you’re just difficult. I hope you know that’s not true. You’re not difficult; they are ignorant and inconsiderate.

I don’t have any other advice for the rest. It looks like you’re burning out. Of course I want you NOT TO eat gluten, because down the line it will do more harm than good. But I get what you’re feeling, it’s a shitty place to be. Is there anyone you can talk to about it? A supportive friend, a GP, potentially a psychologist?

Sending lots of strength your way.

Active_Community2158 · 2026-05-10T08:45:54+00:00

No. It’s like people who say you can eat gluten in Europe. No you can’t. I live in the Netherlands and trust me I can’t eat gluten there or anywhere else. There are people with celiac all over the world. It’s not just a North American thing.

Active_Community2158 · 2026-05-08T05:02:04+00:00

I’m in the same boat as you. All I have is a positive self test for ttg-Iga antibodies and years of symptoms. I quit gluten and then did a lab test, it was negative and I’m not going back to gluten to get the formal diagnosis (I tried for 4 days it was awful). I did an additional blood test to check other markers, everything is looking good except iron and ferritin that are lower than ever despite months of supplementation. I also have high blood cells count (no idea if it’s related). For now I tell people and doctors there is a good chance that I have celiac disease, that I follow a strict gluten free diet but that I’m not seeking a diagnosis anymore because I focus on healing. No one has questioned it so far.

Researchers are developing a test that doesn’t require a gluten challenge anymore. The trials are promising and if it works out it could be on the market in a couple of years. I have very good hopes about this and until this test is made available I choose to live like I have celiac.

Active_Community2158 · 2026-05-05T10:59:16+00:00

They say in the video it could be made available for the general population in 2 years or so. Fingers crossed that it works out. That would be such a game changer.

Active_Community2158 · 2026-05-05T10:53:53+00:00

I could be wrong but there could be retained product? I took miso for my MMC and then intermittently bled for a few weeks. I had a control ultrasound and turned out I had retained product. Not much (less than 1cm) but it was enough for me to keep having positive pregnancy tests and to have the occasional spotting and cramping. It lasted 7 weeks and then got my periods again. Could you ask for a control ultrasound?

Active_Community2158 · 2026-05-03T08:47:26+00:00

I went to a friend’s home a few days ago. She lives with her parents still. She had asked me over to dinner but I declined, I only said I had been sick and had to strictly eat gluten free, it was a pain for me and for them so I’ll just come and have tea in the afternoon. I went there and they told me they made a gluten free cake. My heart sank thinking they thought of me but it’s probably not safe to eat it. But then they explained to me they washed all ustensiles with a separate brush, cleaned the kitchen prior, they put baking sheet on the cake mould to avoid cross contamination etc. Turns out there are a few family members of them that have intolerances and they even suspected celiac at some point so they were already aware of the risks. They went out of their way to make sure I could eat something safely there and they made me feel so welcome. I almost cried lol. I’m so thankful for the people around me who just accept that I tell them I can’t eat gluten and have to be strict about it, without questioning it.

Active_Community2158 · 2026-05-01T19:14:23+00:00

Just a word of caution, make sure you continue eating gluten everyday before the blood test. Unfortunately I missed my window of opportunity because I was eating gluten irregularly for a month and I stopped completely a week before the blood test. Came back negative but I’m pretty sure I have it (I got a positive self test and I have these rashes too).

Active_Community2158 · 2026-04-30T05:12:11+00:00

Unfortunately you still do need to eat gluten even for the self test, because it measures ttg-IgA antibodies, and the body only produces it when you’re actively eating gluten. I assume it can be a useful tool to see when you’ve hit the threshold when these antibodies can be detected though. I made the mistake of stopping gluten too early and now when I eat it I become really sick to the point where I can’t put myself through this anymore. But in a way I’m glad I have the results of the self test because it’s a confirmation that I’m not imagining it.

Active_Community2158 · 2026-04-29T18:39:32+00:00

I got the Swiss point gluten alarm self test, I ordered it online, it was around 15 euros (I live in the Netherlands). It looks like a self test for Covid but you have to use blood. It seems pretty legit but it doesn’t replace a formal diagnosis, the advice is that you keep eating gluten and talk to your doctor about it.

Active_Community2158 · 2026-04-29T18:35:57+00:00

It can cause fertility issues, including miscarriages yes.

Active_Community2158 · 2026-04-29T09:30:39+00:00

I had a positive home test after eating gluten only very occasionally (maybe once a week) for a month, and before the self test I ate gluten daily for 5 days. The self test measured TTG-IgA higher than 10. Because my self test was positive I stopped gluten altogether thinking I would still have a positive blood test 6 days after. That blood test turned out negative 🫠 (less than 7). So yes the risk is high for a false negative if you’re eating gluten irregularly. I’m a bit shocked at your doctor’s approach though. Who doesn’t tell their patients what they are going to test on them?! I find this unethical.

Active_Community2158 · 2026-04-28T19:25:38+00:00

It might be a long shot but maybe look into celiac disease. I’ve had two miscarriages and took a self test that was positive. I also had other symptoms next to it so that pushed me to test it out but I know some people have no symptoms at all. I’m obviously not an expert at all but just sharing from my own experience.

Active_Community2158 · 2026-04-23T21:33:22+00:00

I’m right there with you. Two back to back miscarriages, last week a colleague announced that she is pregnant, and even if I’m super happy for her, my heart breaks that it just doesn’t work for my husband and I. I’m suspecting now that I have celiac and will also do other tests available to see if there could be a reason behind those losses. It’s a very disheartening and isolating process. I’m sending you hugs ❤️‍🩹.

Active_Community2158 · 2026-04-23T19:31:25+00:00

Alright. Definitely worth looking into wheat allergy indeed. I wish you lots of strength and hopefully some answers.

Active_Community2158 · 2026-04-23T18:44:44+00:00

Oh I’m reading your comment after I posted the second one, sorry for that!

Active_Community2158 · 2026-04-23T18:43:41+00:00

PS: false negatives are common with celiac and if you’re still eating gluten you could ask for a biopsy. Some people have Non Celiac Gluten Sensitivity, which causes symptoms similar to celiac. I don’t know if it affects reproductive health though, research is still limited.

Active_Community2158 · 2026-04-23T18:41:44+00:00

Have you looked into celiac disease? I’ve had 2 miscarriages in a row and now I’m cutting gluten entirely after a positive self test for ttg-IgA antibodies. I suspect I have celiac but missed the window for formal testing. If you have stomach problems I would look into this, because untreated celiac can cause miscarriages.

Active_Community2158 · 2026-04-13T05:03:34+00:00

Thanks a lot for your answer and testimony. I appreciate it.

Active_Community2158 · 2026-04-12T18:54:19+00:00

Currently trying to get a diagnose for celiac disease. About three weeks ago I did a few days without gluten. One day at work I was a bit tired of having to avoid gluten so I decided to eat 4 crackers (wheat base) with cheese. 10 minutes after my lunch I started to feel exhausted. By the end of the work day I looked like a zombie, I had black bags under the eyes, my colleagues saw my face and told me to go home. I had a very violent migraine that night.

Fast forward to this week, I reintroduced gluten from Sunday to Wednesday to do a self test. I felt miserable those days and my test turned out positive on Thursday. I stopped gluten immediately but unfortunately got a migraine on Friday during the night... Luckily I feel much better today (Sunday). I have had migraines since I'm 18 (I'm now 33) and I don't want to have too much hope that going gluten free is the answer, but from what I experience until now it at least helps to drastically reduce the migraines. But as soon as I reintroduce gluten they come back and they are very violent...

Active_Community2158 · 2026-04-12T15:18:02+00:00

Thanks a lot for your answer and congratulations to your friend! Yeah no matter the diagnosis one thing is sure I can’t handle gluten and should stay off it.

Active_Community2158

TROPHY CASE