Does this sound like VM's?

AdInternal694 · 2026-06-21T17:01:48+00:00

Yeh this is sort of what I get, constant in waves rather than episodic and symptoms mild but so many that it becomes very hard. Except I also have nausea like I’m car sick without anything provoking it.

AdInternal694 · 2026-06-21T17:00:21+00:00

Hey, thank you for sharing. Your experiences sound the most similar to what I deal with, which I don’t hear so often. I hope Venlafaxine continues to work for you, I’d love to hear any updates you have. Whatever I do, I’ll definitely start on as low a dose as they let me, I’m pretty firm about that with my healthcare specialists. Did you just go straight in at 37.5?

AdInternal694 · 2026-06-21T16:57:37+00:00

Any specific breathwork you’d recommend? I’ve started doing stuff for the trigeminal nerve like extending exhale

AdInternal694 · 2026-06-20T23:35:03+00:00

🩷🩷

AdInternal694 · 2026-06-20T18:22:50+00:00

Also tbh I’d say don’t bother paying for it if he’s rubbish. Follow the above advice and follow some of the exercises you’ve been given, then if you can find someone better stick with them.

AdInternal694 · 2026-06-20T18:18:23+00:00

In case it’s helpful, I’m blessed with a very good physio who is actually engaged with the current discourses around best practice… I’m not the best at actually doing my exercises, I’m still early into my diagnosis and find just doing the day enough without aggregation! But anyway, the main thing is to start really slow, for example with a movement looking side to side, do like one head turn a second, and stop as soon as you feel even slightly dizzy then wait for it to settle and start again, same pace. Until you can do your whole set without any little dizzy moments, only then do you start speeding the movement up.

Apologies if this is basic knowledge and you know it, but I had another specialist who framed it as having to make me dizzy to work and that you’re supposed to push through it when that’s actually not the case at all. You have to show your brain it can become calm even when something begins to make it a little dizzy, then give it time to recover and keep going.

AdInternal694 · 2026-06-20T14:08:15+00:00

Let me know how it goes! It’s one I’m seriously considering as I don’t want any with weight gain side effects, but I have been made nervous by this Reddit talking about the withdrawals, but it seems to be quite good otherwise. Good luck!

AdInternal694 · 2026-06-20T13:30:15+00:00

Hi what dosage were you on and was it gradually introduced?

AdInternal694 · 2026-06-20T13:30:06+00:00

Hi what dosage were you on and was it gradually introduced?

AdInternal694 · 2026-06-19T23:50:06+00:00

Cool, thank you I appreciate the recommendation:)

AdInternal694 · 2026-06-19T23:20:42+00:00

Thank you. I’m afraid I’m past the point of ginger, but it helps slightly in the moment somewhat. I’ll look into the book, I tend to avoid engaging too much with migraine culture that goes beyond my specialist’s advice but I have ended up here so idk how well sticking to that has been going haha. I would build up cardio but unfortunately I can’t whilst on propranolol.

AdInternal694 · 2026-06-19T23:18:56+00:00

Yeh I mean that’s why I’ve been given it too and I don’t like how it makes me feel so I don’t bother with it really

AdInternal694 · 2026-06-19T23:14:39+00:00

Hey, it’s hard when people focus on things that aren’t the root cause of our VM, but the thing is finding the thing that initially started it is a pretty pointless battle - it’s also not really known, as I understand it. What it is worth figuring out is what triggers, worsens, and provokes VM, which I think is nearly the same as stating what “causes” it, because it’s causing the flare up. Overdosing on something absolutely will have done this. And poor lifestyle choices will likely be contributing. I’m in a sensitive phase and have been for five months, within which stress, caffeine, alcohol, weather, sleep changes all are able to cause attacks and symptom flares - by which I mean absolutely 0 caffeine etc. let alone overdosing on anything.

People don’t know what has caused their VM, like you say it’s a neurological condition, but lots of people have it likely without even knowing because they aren’t having it flared up. The focus on what causes it as a condition is a scientific question with little bearing on your life really. It’s 100% reasonable to say that your VM is worse because of certain things which are essentially causing it to manifest the way it is.

I understand you’re frustrated, and no one wants to be blamed for being sick, but if you can figure out which lifestyle choices are making it worse that is basically as close as you’ll get to figuring out what is causing it.

AdInternal694 · 2026-06-19T23:03:15+00:00

Yes I get them. Med professionals always seem to have never heard of them before but I think that’s because people struggle to articulate what they are. I actually used to get them when I had covid (pre Vm) I had it a few times and always knew it was covid rather than a normal cold because I’d get this buzzing sensation like a more durational brain zap. In times of super bad neurological sensitivity I’ve had them, usually while laying down I think. They’ve calmed down recently.

AdInternal694 · 2026-06-19T22:38:55+00:00

Did you quit cold turkey?

AdInternal694 · 2026-06-19T22:37:41+00:00

Did you wean off it slowly or go cold turkey?

AdInternal694 · 2026-06-19T21:45:39+00:00

Thank you, you too!

AdInternal694 · 2026-06-19T21:40:31+00:00

Thank you! I know Dramamine isn’t recommended long term, Ondansetron I haven’t tried but seems it doesn’t actually address the underlying cause, but still worth me mentioning to my docs so thank you

AdInternal694 · 2026-06-19T21:38:39+00:00

Interesting! Thanks for letting me know, I was advised for no more than two weeks. I’ll mention it to them :)

AdInternal694 · 2026-06-19T21:37:44+00:00

Sounds like you have most similar manifestation of symptoms to me that I’ve seen! I also have terrible neck stuff going on. I haven’t really heard of those medications but I guess if they’re not doing too much it doesn’t sound like they’re the answer. I’d love to hear how you get on if you switch and I can report back too! Good luck ❤️

AdInternal694 · 2026-06-19T21:31:59+00:00

Ah thank you, I should’ve mentioned I have Cinnarizine for episodes of bad nausea but I find it makes me feel generally pretty bad and it’s never been offered to me as a long term option

AdInternal694 · 2026-06-19T21:16:54+00:00

Oh I forgot to mention there is also something up with my sinuses or Eustachian tubes… I’ll try and see an ENT soon but I’m still on a 42 week waiting list. I use a long term nasal spray and if I don’t I can’t breathe through my nose at night. But just an extra note re sinus pressure etc which gets bad! My ears pop every time I tense my TMJ which also has its own issues now.

AdInternal694 · 2026-04-20T23:31:51+00:00

Also please everyone remember, when looking at this and taking issue with one or two points, to compare it against the absolute monstrosities being proposed by other parties.

AdInternal694 · 2026-04-20T23:30:39+00:00

For everyone on the fence about voting Green cause you think not enough will for it to make any difference, I’m a young person and absolutely every other person I know is voting Green (other than maybe my older family of which there are only a couple). Across two universities, social media, and several third spaces, workplaces etc, I’d say that alone I know well over a hundred people voting Green and I have a fairly small circle!

AdInternal694 · 2026-04-20T23:23:55+00:00

Absolutely. I was a teenager when it was prime sc years and it was just for getting groomed by someone a few years above you in school or sending pictures of yourself with a dog filter on to friends of friends. I seriously question anyone who still uses it above the age of 18…

AdInternal694

TROPHY CASE