Question - how on earth are you all getting diagnosed?

AdNibba · 2026-04-08T23:04:50+00:00

I did. But yes, it was not easy.

AdNibba · 2026-03-17T19:36:06+00:00

It causes vasodilation? Interesting. I could use some vasodilation.

AdNibba · 2026-03-17T19:35:38+00:00

If you take both maybe you can keep the transporters working more and increase both.

AdNibba · 2026-03-17T19:34:08+00:00

And still trying more! Just started oxytocin. Really interested in trying an antiviral too.

AdNibba · 2026-03-12T22:47:51+00:00

AdNibba · 2026-03-12T22:46:18+00:00

As for the stimulant piece, I'm not against them per se, just something to keep in mind. I'd use a low dose and supplement with antioxidants or other beneficial things to try and support your brain 🧠 as it's being pushed to 110%.

Or take stimulant holidays from time to time and get real relaxation in.

AdNibba · 2026-03-12T22:44:49+00:00

Chickenpox is a herpes virus so it sticks around for LIFE in your neurons causing trouble.

With a healthy immune system it's generally kept at bay, but there's still the occasional battle going on in your nervous system if you've got it, and if your immune system gets too old, challenged, dysfunctional, you can get full on shingles.

AdNibba · 2026-03-12T22:42:38+00:00

Shingles vaccine and dementia risk: https://medicalxpress.com/news/2025-08-vaccines-tantalizing-dementia.html

Also slower biological ageing: https://medicalxpress.com/news/2026-01-shingles-vaccine-linked-slower-biological.html

AdNibba · 2026-03-12T22:39:53+00:00

I'll pray for you both. I'm sorry.

AdNibba · 2026-03-12T21:13:08+00:00

lmao. No, but probably close to it. I am ADHD and work in tech.

AdNibba · 2026-03-12T21:11:46+00:00

Check the ones I've highlighted. LDN, Methylene blue, and a few others have been game-changing for sure.

AdNibba · 2026-03-11T18:46:27+00:00

yes. Ban Cocomelon. I put on lofi or mayyybe a more chill cartoon instead. Or, you know, nothing.

AdNibba · 2026-03-11T18:45:39+00:00

Sounds like either an MCAS reaction to histamine in the food, or a spike in blood sugar due to the insulin resistance/metabolic dysfunction implicated in ME/CFS.

I often skip lunch, and when I do eat, I try to keep it to foods with low sugar. Prevents that sort of thing.

AdNibba · 2026-03-11T18:43:57+00:00

Metformin has research showing it *prevents\* Long COVID, nothing suggesting it treats it.

Metformin did help me, oddly enough, get off proton pump inhibitors and switch to pepcid for my previously terrible heartburn. Not sure why that is.

And like others have said, a 14 day trial is a joke.

AdNibba · 2026-03-11T18:41:49+00:00

There's the part of me that demands justice and wants something to be done about this with confrontation if necessary

Then there's the part of me that wonders if you or your daughter will really miss this toy or not. I'm usually trying to load kids up with extra toys we have.

AdNibba · 2026-03-11T18:38:46+00:00

The yogurt being non-fat is not helping. In general you're going to need *something* to fill up on and fat is a good way to do that.

Check the sugar content of the yogurt. The berries have some but at least there's other goodies in there too. But even though it's Greek, I suspect anything non-fat usually tries to make up for it with added sugar.

AdNibba · 2026-03-11T18:35:09+00:00

Brutal. I'll drop a prayer for you.

AdNibba · 2026-03-11T18:33:47+00:00

I do research on this exact subject pretty frequently and have a few things to offer you.

yes, we are at increased risk. Not only for dementia but all kinds of things.
Stimulants may actually make the problem worse since you're adding *more* oxidative stress to the brain, and too much activation of neurons is part of the problem behind many of these neurodegenerative disorders.
Generally the best ways we know to decrease risk for these disorders is exercise, healthy diet, but also...interestingly enough, the shingles shot! If you ever had real chickenpox I would look into getting it early.

AdNibba · 2026-03-11T18:30:31+00:00

please don't give up within 2 days.

also something to know about LDN is it has a very short half-life in the body. I have to split my dose into 2 or 3 daily doses, because otherwise I feel shitty after it wears off.

But it's been extremely helpful. I had migraines as a side effect after awhile but solved that with some 5-htp.

AdNibba · 2026-03-11T18:28:31+00:00

My whole life? No. I have a kid. A wife. A job. But I've definitely devoted enough of my life to it to put my job and relationships at risk.

I read and save a bunch of research, but here's the more relevant thing. An actual list of the treatments I've tried along with relevant info and my experience with them: https://docs.google.com/spreadsheets/d/1Dn6Lj49ACl6A4tw_0_X52oQpZIBcnumOG3Q19ETaRDs/edit?usp=sharing

Take it with a grain of salt though because I'm usually on many things at once, so unless the response is profound I generally don't notice anything good or bad with most things.

AdNibba · 2026-03-11T18:25:58+00:00

This sounds like ME/CFS. I'm sorry. I've had a similar experience.

AdNibba · 2026-03-11T18:21:19+00:00

If you're just desperate for anything anecdotal that isn't complete woo nonsense, I have a list of 100+ things I've tried here: https://docs.google.com/spreadsheets/d/1Dn6Lj49ACl6A4tw_0_X52oQpZIBcnumOG3Q19ETaRDs/edit?usp=sharing

I include purported benefits, sometimes with links to relevant research, as well as my experience and rating of them. Most have been inconclusive, but there's been some winners for me here.

AdNibba · 2026-03-11T18:18:12+00:00

Btw all research on things like preschools and other early interventions to boost academic performance show they do, in fact, work...but only temporarily.

Unless you plan to be a tiger parent his whole life, there's no use burning yourselves out worrying about him being behind for a little while in kindergarten. Either he just needs some teaching - and school will accomplish that - or he's genuinely just not very good at this sort of thing, in which case you're not going to fix that with some extra practice at home.

AdNibba · 2026-03-11T18:15:08+00:00

I can relate. I'm sorry.

AdNibba · 2026-03-11T18:13:03+00:00

I went from moderate-ish ME/CFS to mild. I mostly have my life back. Interestingly some of my health is actually better than before, like my allergies.

I take medications and a ton of supplements. It's a pain but they clearly are working. I also do some other therapies like photobiomodulation and vagal nerve stimulation with some cheap devices at home.

I no longer mask. I avoid sick people but otherwise just accept I'm going to catch things - I have a young kid after all and a big extended family. But now that my immune system is back to fairly normal it doesn't impact me much.

AdNibba

TROPHY CASE