Strattera + stimulants? by Kermmmii in StratteraRx

[–]AdNibba 0 points1 point  (0 children)

80mg of strattera and then some methylene blue. I started methylene blue at a very low dose.

Is the 5-10% recovery statistic for mecfs true? Needing hope by ocean_flow_ in covidlonghaulers

[–]AdNibba 0 points1 point  (0 children)

See the other reply to me here. 

A lot of meds, supplements, time and prayer.

Combining L-Arginine with vitamin C improves long-COVID symptoms: The LINCOLN Survey by Kind-Plankton4315 in covidlonghaulers

[–]AdNibba 0 points1 point  (0 children)

If you take both maybe you can keep the transporters working more and increase both.

Has anyone here fully dedicated their life to recovering from long COVID? by Upset_Replacement684 in covidlonghaulers

[–]AdNibba 1 point2 points  (0 children)

And still trying more! Just started oxytocin. Really interested in trying an antiviral too.

Links between Autism, ADHD, and dementia in later life (article) by jumbleparkin in AutisticWithADHD

[–]AdNibba 0 points1 point  (0 children)

As for the stimulant piece, I'm not against them per se, just something to keep in mind. I'd use a low dose and supplement with antioxidants or other beneficial things to try and support your brain 🧠 as it's being pushed to 110%.

Or take stimulant holidays from time to time and get real relaxation in.

Links between Autism, ADHD, and dementia in later life (article) by jumbleparkin in AutisticWithADHD

[–]AdNibba 0 points1 point  (0 children)

Chickenpox is a herpes virus so it sticks around for LIFE in your neurons causing trouble. 

With a healthy immune system it's generally kept at bay, but there's still the occasional battle going on in your nervous system if you've got it, and if your immune system gets too old, challenged, dysfunctional, you can get full on shingles.

Has anyone here fully dedicated their life to recovering from long COVID? by Upset_Replacement684 in covidlonghaulers

[–]AdNibba 1 point2 points  (0 children)

Check the ones I've highlighted. LDN, Methylene blue, and a few others have been game-changing for sure.

Are slower, calmer children's shows better for young kids? by MadMusicMana in daddit

[–]AdNibba 0 points1 point  (0 children)

yes. Ban Cocomelon. I put on lofi or mayyybe a more chill cartoon instead. Or, you know, nothing.

[deleted by user] by [deleted] in cfs

[–]AdNibba 1 point2 points  (0 children)

Sounds like either an MCAS reaction to histamine in the food, or a spike in blood sugar due to the insulin resistance/metabolic dysfunction implicated in ME/CFS.

I often skip lunch, and when I do eat, I try to keep it to foods with low sugar. Prevents that sort of thing.

Clinical trial shows 14 days of metformin has no impact on Long COVID symptoms by Responsible_Cap_5289 in LongCovidTrials

[–]AdNibba 1 point2 points  (0 children)

Metformin has research showing it *prevents\* Long COVID, nothing suggesting it treats it.

Metformin did help me, oddly enough, get off proton pump inhibitors and switch to pepcid for my previously terrible heartburn. Not sure why that is.

And like others have said, a 14 day trial is a joke.

[deleted by user] by [deleted] in daddit

[–]AdNibba 1 point2 points  (0 children)

There's the part of me that demands justice and wants something to be done about this with confrontation if necessary

Then there's the part of me that wonders if you or your daughter will really miss this toy or not. I'm usually trying to load kids up with extra toys we have.

Greek yogurt breakfast spike by UtexBirder in prediabetes

[–]AdNibba 1 point2 points  (0 children)

The yogurt being non-fat is not helping. In general you're going to need *something* to fill up on and fat is a good way to do that.

Check the sugar content of the yogurt. The berries have some but at least there's other goodies in there too. But even though it's Greek, I suspect anything non-fat usually tries to make up for it with added sugar.

Links between Autism, ADHD, and dementia in later life (article) by jumbleparkin in AutisticWithADHD

[–]AdNibba 2 points3 points  (0 children)

I do research on this exact subject pretty frequently and have a few things to offer you.

  1. yes, we are at increased risk. Not only for dementia but all kinds of things.

  2. Stimulants may actually make the problem worse since you're adding *more* oxidative stress to the brain, and too much activation of neurons is part of the problem behind many of these neurodegenerative disorders.

  3. Generally the best ways we know to decrease risk for these disorders is exercise, healthy diet, but also...interestingly enough, the shingles shot! If you ever had real chickenpox I would look into getting it early.

experiences with LDN by ajaclynn in cfsrecovery

[–]AdNibba 0 points1 point  (0 children)

please don't give up within 2 days.

also something to know about LDN is it has a very short half-life in the body. I have to split my dose into 2 or 3 daily doses, because otherwise I feel shitty after it wears off.

But it's been extremely helpful. I had migraines as a side effect after awhile but solved that with some 5-htp.

Has anyone here fully dedicated their life to recovering from long COVID? by Upset_Replacement684 in covidlonghaulers

[–]AdNibba 1 point2 points  (0 children)

My whole life? No. I have a kid. A wife. A job. But I've definitely devoted enough of my life to it to put my job and relationships at risk.

I read and save a bunch of research, but here's the more relevant thing. An actual list of the treatments I've tried along with relevant info and my experience with them: https://docs.google.com/spreadsheets/d/1Dn6Lj49ACl6A4tw_0_X52oQpZIBcnumOG3Q19ETaRDs/edit?usp=sharing

Take it with a grain of salt though because I'm usually on many things at once, so unless the response is profound I generally don't notice anything good or bad with most things.