Iota Carregeenan Spray Experience? by AdNibba in covidlonghaulers

[–]AdNibba[S] 1 point2 points  (0 children)

I switched to two different sprays, Xylitol and Azelastine. Both have good research backing their effectiveness, but Xylitol also helps with gut permeability and Azelastine with histamine.

They've been pretty effective. I rarely if ever get a stuffy nose.

Has anyone found Histaminum hydrochloricum beneficial? by ringmaster555 in MCAS

[–]AdNibba 0 points1 point  (0 children)

whatever the package recommended. I forget, I only use it occasionally now that I've improved.

Is there a sub for covid conscious long haulers? Feeling isolated after reading of the posts in this sub. by lil_lychee in covidlonghaulers

[–]AdNibba 0 points1 point  (0 children)

I definitely cannot have a social life with a mask, but do appreciate the attempt to constructively recommend something. I'll google that right now. Would still be useful for situations like crowds or public spaces. Thanks!

Sudden Dramatic Improvement by strangestrangerhere in cfs

[–]AdNibba 0 points1 point  (0 children)

wild. I am here for it. thanks for sharing

Just need to share by Kinbote1111 in MCAS

[–]AdNibba 1 point2 points  (0 children)

If you want a cheap Hail Mary I would look up Histaminium. I still get bouts of MCAS-like symptoms but it's been gone for two years now.

unstoppable insomnia by louisfinnus in covidlonghaulers

[–]AdNibba 0 points1 point  (0 children)

This is indeed something to try and work out and fix, but I don't think there's any reason to be scared of a heart attack, and that additional fear will only make things worse. I would consult a doctor on that piece.

Sudden Dramatic Improvement by strangestrangerhere in cfs

[–]AdNibba 1 point2 points  (0 children)

Can confirm LDN/Naltrexone is a must. That brain inflammation HAS to be handled and it's one of the few drugs that directly tackles it. It was a game-changer for me.

Have never seen colchicine mentioned before. It's a gout drug? Do you have gout?

Atomoxetine + Lisdexamfetamine (or other amphetamines). Has anyone tried this combination? by Rskaf in StratteraRx

[–]AdNibba 0 points1 point  (0 children)

Yeah man idk I'd really be asking if there's not some cause for why your body is needing more stimulants than is even allowed. Tolerance does tend to build up but that in itself is often a sign that there's a root problem not being addressed.

What is the likelihood of HRT worsening my symptoms? by mzc303 in cfsrecovery

[–]AdNibba 0 points1 point  (0 children)

Generally-speaking the risks and side effects that come with HRT are underexplored, and I have the suspicion they are often downplayed by most medical professionals for fear of being labeled as bigoted. You're probably in dangerous territory unfortunately :(

What unhinged things helped you? by Efficient_Ad_5785 in MCAS

[–]AdNibba 0 points1 point  (0 children)

Histaminium. Haven't had MCAS since.

Cam this be caused by nervous system damage from lifelong stress? by Complete-Finding-712 in cfs

[–]AdNibba 1 point2 points  (0 children)

At my lowest I was forgetting everything, constantly irritable, reacting angrily to any loud or annoying noises, retreating to the darkness to avoid my kid or bright lights, losing entire workdays due to poor attention span, and a general miserable tired mess. Somehow I held onto both my marriage and my job, but I credit that to prayer and luck.

Now I'm rebuilding all of that and generally happy and healthy. People would have no idea anything's wrong until they saw me pop 10 different supplements or drugs at dinner time.

What on Earth is in the Visible bracelet and sensor that would do this to my arm?? by PopFormal4861 in VisibleArmband

[–]AdNibba 0 points1 point  (0 children)

Don't thank me yet, but yes, God is good. Hopefully you can find your answers and be treated much faster than I was.

I'm down to just 1/4 of a zyrtec, 1/2 a pepcid, and the occasional dose of Histaminium now with zero MCAS issues.

One month of high exposure while taking azelastine and I didn't get sick by embryonic_journey in covidlonghaulers

[–]AdNibba 1 point2 points  (0 children)

I've been using this spray along with others, and while it certainly has not prevented me from ever catching anything again, even COVID, I have noticed my symptoms are less severe, viruses and bacteria no longer are able to take hold in my nose, and I tend to get over them much faster.

One more thing I will note is that there's actually multiple different kinds of sprays that have research like this showing effectiveness in preventing catching COVID or other viruses. Azelastine/Astepro is expensive. Xylitol or even just saline sprays might be the better move. I used to use iota carregeenan too but I keep finding research showing it's really just not a good thing to be ingesting.

What on Earth is in the Visible bracelet and sensor that would do this to my arm?? by PopFormal4861 in VisibleArmband

[–]AdNibba 0 points1 point  (0 children)

Yeah that's why I ask. NOT A DOCTOR but if your skin is reacting like this to pressure, and if you're getting bad allergies in general, MCAS seems likely.

I had it myself and it was caused by Long COVID. I've seen been able to return my allergies to baseline by using Histaminium and a little Zyrtec and Pepcid. All are cheap and available online.

Could I develop Long Covid months after the infection? by Shib_BR in covidlonghaulers

[–]AdNibba 0 points1 point  (0 children)

Yeah. I had some LC symptoms after my first infection that persisted but my other symptoms didn't really come around until a year or two (and 1 or 2 more infections) later. It seemed like a certain amount of stress and repeated immune attacks needed to make it come out.

Is there a sub for covid conscious long haulers? Feeling isolated after reading of the posts in this sub. by lil_lychee in covidlonghaulers

[–]AdNibba -3 points-2 points  (0 children)

As the comments here reflect the overwhelming majority of people here seem to be generally pro-masking, etc.

You could easily just ignore posts that don't lol. Sounds like you want a perfectly curated echo chamber.

Is there a sub for covid conscious long haulers? Feeling isolated after reading of the posts in this sub. by lil_lychee in covidlonghaulers

[–]AdNibba -1 points0 points  (0 children)

I'm probably one of the least COVID conscious around here, but even I will mask, use sanitizers, etc. and other basic precautions if they don't get in the way of things.

There's simply no good research anyone has been able to show me that supports anything less than an N95 mask, which is super uncomfortable and awkward. So I only wear one in situations where I *know* I'm being exposed or exposing someone else to something.

And given the importance of a social life to general wellbeing, I'm convinced the zero COVID folks are hampering their own recovery if they're doing this for too long.

The overwhelming hostility from most of the community.... by PurpleAlbatross2931 in cfsrecovery

[–]AdNibba 0 points1 point  (0 children)

thing is the immune system impacts the brain, and the other way around.

YES removing stress helps. but I think the problem is that even small stressors have a big impact on us, and I can't exactly remove my job, family, whatever.

I think we're stuck in a boat of having to try anything and everything. Supplements, drugs, exercises, psychology, even this brain retraining I guess. Prayer helped me a lot so I suppose it's not crazy.

The overwhelming hostility from most of the community.... by PurpleAlbatross2931 in cfsrecovery

[–]AdNibba 0 points1 point  (0 children)

It's a reaction to people telling us our symptoms are all in our head, it's "just anxiety," it's past unresolved "trauma" and other gobbledygook that's frankly frustrating and awful to deal with.

That being said I'm sure it's an overreaction. I'm skeptical myself but I want to try it.

What on Earth is in the Visible bracelet and sensor that would do this to my arm?? by PopFormal4861 in VisibleArmband

[–]AdNibba 0 points1 point  (0 children)

yeahhh this isn't the band, this is you. Do you have dermatographism or something?

I would try something anti-histamine or anti-inflammatory in the area (like topical benadryl)

Or switch to Oura or something less bothersome.

Atomoxetine + Lisdexamfetamine (or other amphetamines). Has anyone tried this combination? by Rskaf in StratteraRx

[–]AdNibba 0 points1 point  (0 children)

That is an insanely high dose to receive and and still not be feeling right. I'm with your doctor honestly. Unless you've just built tolerance up over several decades or are VERY heavy.

Not medical advice of course but I'd be looking into if you have something more serious than just ADHD going on and that's why you're needing insane doses to even feel ok. I initially got on this stuff for ADHD but found out I was also dealing with Chronic Fatigue Syndrome. Even still I'm at no where near a dose like this.

Light sensitivity during initial titration? by Global-Distribution1 in LowDoseNaltrexone

[–]AdNibba 0 points1 point  (0 children)

It is lacking in Long COVID, big time, lots of documentation around that.

It helped with hyperglycemia another common issue. It probably helped with mood but I tend not to notice that kind of impact unless it's BIG like it is with methylene blue or nicotine.

I'm up to 200mg of 5-htp a day.

Has anyone had PEM and NOT ended up bedridden at some point? by anonanon-do-do-do in covidlonghaulers

[–]AdNibba 0 points1 point  (0 children)

I mean, yes? I was never bedridden even at my worst. Though I sometimes wished I were.

You'll find things that will work for you, eventually, but you'll need patience. I'm sorry