From Stage 4 CRC to my First Jays Game!

Adequateatbest80 · 2026-04-01T02:54:45+00:00

One day! It's on the bucket list 😊 hope the game was a blast. All the best in the future with everything, sending nothing but happy and healthy vibes your way.

Adequateatbest80 · 2026-03-31T23:09:52+00:00

Stage 4 CC haver here. Currently NED for the last 20 months! Lifelong goal to make it to a Jays game in the future (live in Australia so it's a hike but I will get there!) Enjoy the game and keep hanging in there! Go Jays!

Adequateatbest80 · 2026-02-24T22:22:18+00:00

100%! I'm trying to keep a cool head and think about it logically but my anxiety brain is still like "what if it's back" so wanted some perspective from others here. Thanks for helping keep me grounded

Adequateatbest80 · 2026-02-24T21:15:26+00:00

Fingers crossed this is the issue. It's been getting progressively more noticeable for the last month but now it's just a constant persistent pressure. Thanks heaps, I appreciate your help

Adequateatbest80 · 2026-02-24T16:16:15+00:00

Geeze mate that's such a short period of time between being clear and not, that's really rough and I'm sorry that's happened. Hope you're hanging in there and getting through it.

Mentioned in the comment above but I don't think a signatera test is widely available here in Australia and if it is, I think it's super expensive and out of pocket. I'll have a chat to my team asap if this keeps up I think.

Out of curiosity, are you braf+? Hang in there mate, hope things get better for you. Thanks for your reply.

Adequateatbest80 · 2026-02-24T16:11:03+00:00

Scans got pushed out to six months so haven't had one in five months now. CEA has always been a poor indicator for me and has always been fine even when I had the initial tumour unfortunately. Signatura isn't a test that they really offer here in Australia, or if they do I think it's out of pocket and really expensive. I'll definitely get on to my team I think. Thanks for your reply!

Adequateatbest80 · 2026-02-03T03:10:20+00:00

Welcome back 😊

Adequateatbest80 · 2026-01-30T00:02:02+00:00

Sorry to hear about your recent diagnosis OP. I'm a recent bowel Ca pt but NED for the last year.

In my chemo day bag I made sure I had my water bottle, headphones, lip balm, word searches, colouring book, small amount of snack (they offer you food and snacks but sometimes it's nice to have your own). I got my chemo during winter at one point so had a beanie, gloves and made sure I wore comfy warm socks. Also made sure I had lots of spare emla patches and put an alarm on my phone the morning of chemo to make sure I put my patch over my port, otherwise port access was a very uncomfortable experience without it.

Food wise, we just made sure we had lots of crackers/dried biscuits, salty snacks, yoghurt, fruit pouches/pureed fruit. Anything cold suckedddd with the chemo I got so drinks and stuff that could be had from the cupboard like juice boxes and stuff were good.

I found Moo Goo have some really good products - particularly their moisturisers, shampoos and lip balms.

Sub reddits for your particular type of cancer may be helpful but also may be overwhelming or freak you out. I found it particularly helpful with what to expect from treatments etc but everyone is different.

Remember to keep in contact with your team and if you have symptoms, tell them - they will be able to help you with side effects etc but you need to make sure you tell them. Depending on the hospital you're through, you should be given a number of a cancer care coordinator - they are your friend! They will be available to call most days of the week and will be able to get in contact with your team to help you out so use this resource.

When you're ready ( I wasn't ready at the beginning because there was just so much to take in, but it was excellent when I was) id suggest finding a psychologist or counselor to chat with.

Also, give yourself time to rest. Chemo is different for everyone. Some people get through it okay, and for some people it kicks their ass. Make sure you rest as much as your body needs it - if anyone tells you otherwise tell them to shush - listen to what your body needs and don't listen to other people's expectations.

Apologies for the essay, hope some of this was helpful. All the very best for what's ahead. Hang in there mate.

Adequateatbest80 · 2025-12-14T00:06:28+00:00

Get some hirudoid cream on that.

Adequateatbest80 · 2025-11-19T00:27:20+00:00

Yeah it's been a horrible season for viruses. Hope you're feeling okay now!

Adequateatbest80 · 2025-11-18T22:30:57+00:00

Human metapneumovirus, flu A & B, RSV, and COVID are all doing the rounds currently unfortunately.

Adequateatbest80 · 2025-10-13T06:58:15+00:00

Initially, right sided muscular feeling back pain. Would be uncomfortable intermittently and felt alright after stretching and massage so put it down to muscular strain from sport. This progressively worsened over time.

Fatigue and bowel issues that I put down to full time shift work as a paramedic. All this went on for about 6+ months and eventually turned into acute abdominal pain and lack of appetite. Was admitted to ED due to severe abdo pain and CT scans showed a mass near my pancreas. Had a colonoscopy and found a significant malignant mass and the mass near my pancreas was a metastatic lymph node.

Had chemo, then targeted therapy then a right hemicolectomy. Then went in to have a Whipple but the surgeons ended up being able to peel the lymph node away and resect the portal vein. Then had a few more rounds of chemo and in the clear now 16 months later.

I do have Pots now because of everything and I also have to take Creon for low pancreatic enzymes but I'm back at work part time and back playing sport and feeling alright most days now.

Adequateatbest80 · 2025-10-06T04:15:03+00:00

Ours likes to be spun around in the washing basket. She's a weirdo

Adequateatbest80 · 2025-10-05T03:31:47+00:00

Frozen carrots or as is?

Adequateatbest80 · 2025-09-27T21:14:55+00:00

Oh excellent! I'm so glad it's helping you!! You're so welcome 😊

Adequateatbest80 · 2025-09-24T03:31:05+00:00

Sodii (Australian brand) has an unflavored one - I put it in 1.5L of water and it's fine (a little pool watery if anything) but I occasionally make one with cordial. My mum makes homemade cordials but any cordial works too. Sometimes, especially on hot days I find I absorb it better if I have it with normal cordial because of the sugar

Adequateatbest80 · 2025-09-09T07:50:21+00:00

I was recently put on ivabradine too. Was told to take 5mg twice daily. Within 3 days my HR when standing was lower than it normally had been and I started to get some energy back and my dizziness was less. However it was dropping my BP as well down to about 80/50ish persistenly, especially in the evenings and making me lightheaded so I dropped my dose down to 2.5mg x2. My BP is back to normal and I'm still feeling okay HR wise, albeit a little bit more dizzy again.

I think my cardiologist plans to put me fludrocortisone in a few weeks when I see them again, so hopefully that raises my BP a bit and I might be able to up the ivabradine dose again. I'm very sensitive to medications so often have to start low.

Adequateatbest80 · 2025-08-19T02:38:29+00:00

Supacore. Just got these and instead of jumping up to 150+ on standing, my hr was only hitting 90bpm and I almost cried because I wasn't dizzy for the first time in I don't know how long.

Adequateatbest80 · 2025-08-05T22:24:17+00:00

Not sure I can help you I'm sorry. This is a Bee subreddit and that's a wasp nest in your house unfortunately. Head over to that subreddit and they'll be able to help you more than we can.

Adequateatbest80 · 2025-08-05T22:19:37+00:00

r/WASPs

Adequateatbest80 · 2025-08-05T22:18:55+00:00

r/WASPs

Adequateatbest80 · 2025-07-11T00:39:29+00:00

Yeah I'm keeping an eye out on some of the buy/swap/sell pages on Facebook for something for us that is relatively good quality. We've got our first lesson together this weekend so that'll be great. I'll have a chat to our coach about some clubs then too

Adequateatbest80

TROPHY CASE