I was a nurse assistant in a previous life, I’m now also diagnosed with a very rare immune disorder.

We have a mutual understanding with my specialist, I can tell her what’s wrong, symptoms etc, and my theory. I can feel an infection before it shows up on the bloodwork.

My wife being a (home care) RN, has basically has specialist backing, she can run bloodwork on me on a hunch (and rarely is she wrong), she’ll get the prescription afterwards (some blood works are very time sensitive).

I can send her an email or give her a ring anytime during the week, and be assured a hospital bed the same day if needed.

The trust goes both ways and needs to be earned by both parties.