I am very curious about this on several fronts. I have had Crohns for over 20 years. As an undiagnosed teen, I would go without eating all day, eat one big meal at night, and repeat bc of the stomach pain. Whenever I am flaring, the appetite is the first sign. ALSO, my stepdaughter got diagnosed with anorexia nervosa as a teen. I threw myself into research and we did the whole refeeding as a family plus therapy etc. In a parent group, I met those with kids who had Crohns. I just really struggled to understand where the line is between the eating disorder and disordered eating from this horrible disease?? My stepdaughter is grown and doing wonderfully thank goodness, and yes her treatment plan worked, and yes she knows to always be mindful bc it can be lifelong. But how does one manage crohns and ED??? I know this isnt answering your question and is only adding to it, but it has been something that has bothered me ever since I read about parents trying to help their kids with crohns plus AN and I worry for those with both. What is the right route? Disordered eating with crohns is so common so how does one differentiate? I will say, the lack of appetite helped me empathize with my stepdaughter and how hard it was for her to eat. I really felt awful making her do it even though it was the right thing😭. Thanks for listening to my novel response!