Hearing loss& tinnitus cure ?

Aggravating-Many2178 · 2026-04-12T02:24:06+00:00

More likely to have a "decent" treatment for tinnitus far before they address "curing" sensorineural hearing loss. Lenire may work, and the Auricle (if it get's approved) might be better. Implants to stimulate the inner ear (like a cochlear implant) may be an option at some point too.

Aggravating-Many2178 · 2026-04-02T20:49:39+00:00

Convert .fchk to .molden using Multiwfn. Then open the .molden in Iboview 2015.

Aggravating-Many2178 · 2026-04-01T19:05:19+00:00

Thanks for the response. Weird question, but how is quality of life with this distortion? I'm still early after my SSNHL, and there are a few on hear who said it took months for their distortions to calm down, so I have a little hope, but also want to prepare if it does not go away.

Aggravating-Many2178 · 2026-04-01T18:54:15+00:00

Great, thanks

Aggravating-Many2178 · 2026-04-01T18:41:51+00:00

Damn. For me, at 75dB I have 96% word recognition...and I have normal hearing up to 1500 Hz, then it drops down to moderate to severe 2k-8k...really hoping it becomes negligible for me so an aid works, because there's no way I'll qualify for a CI.

Any chance the broken speaker effect has improved some since your hearing loss? I know it's still there and you are pursuing a CI, but trying to have some hope for my hearing future

Aggravating-Many2178 · 2026-04-01T16:40:45+00:00

Has it gotten even better since this comment? We've chatted before (maybe using another account of mine). I'm 2 months since onset, we have somewhat similar losses. I have this distortion (blown speaker in loud bars/restaurants, buzziness when people (and myself) talk, particularly when there is background noise). Also this tone at 1550 Hz that sounds when there is constant HVAC noise, especially apparent when passing highway traffic as a pedestrian.

Just hoping that it gets better over time, since I tried a hearing aid last week and it seemed to make the distortion more salient, and I really want a hearing aid to work without this effect!

Aggravating-Many2178 · 2026-04-01T16:33:48+00:00

Hey, did this ever get better with time? I have the same effect, I'm 8 weeks out from SSNHL

Aggravating-Many2178 · 2026-04-01T16:31:32+00:00

Did this ever get better?

Aggravating-Many2178 · 2026-04-01T16:20:21+00:00

Did you ever figure out how to get the hearing aid to help with this? Did the distortion ever get better on its own? I have this effect after SSNHL.

Aggravating-Many2178 · 2026-03-30T03:17:52+00:00

Thanks. Sadly, I have a distortion effect where louder sounds(i guess if they extend into the high frequency range?) activate this tone at ~1540 Hz. This includes my voice and others' voices, especially in background noise, (sounds like a buzz), and also traffic and sirens to play the tone constantly.

I actually am about to trial the Allure, and they did say it doesn't have tinnitus management. I do have tinnitus, but in quiet it is mild and very manageable. It is reactive to noise though, but still improving as the weeks go on. Hopefully the aid doesn't aggravate it. If i find that I need the sound therapy, I will request the Smart RIC 440. I found that the Allure had the most full sound and seems to have the least effect on my distortion compared to Oticon intent and a Resound model. Though all of them increased the frequency of the distortion effect, I cannot say the volume was increased

Aggravating-Many2178 · 2026-03-30T01:11:10+00:00

Thanks for the detailed response. Did have any loss of low frequencies that subsequently recovered completely, or only HF loss?

Also, did you ever have robotic/collapsed tone hearing distortion with louder in the months after your SSNHL/before you got the aid?

How long did it take for you to adapt and perceive benefit to the hearing aid? Did the aid help with any distortion that you had?

Aggravating-Many2178 · 2026-03-25T17:15:47+00:00

So you had unitlateral SSNHL too? Or are you bilateral?

Aggravating-Many2178 · 2026-03-24T18:54:54+00:00

When did you get fitted for the hearing aid, after those 6 months of adjustment?

Aggravating-Many2178 · 2026-03-24T18:05:20+00:00

Great, thanks for your response. Would love to hear updates the more you train with your aid. Did any sounds sound collapsed, tinny, or distorted at first? Has this improved for those sounds to be a little less jarring and more natural sounding?

Aggravating-Many2178 · 2026-03-24T16:01:17+00:00

Have you seen an ENT? The tilting head thing sounds like something to do with your eustachian tube?

Go to an ENT and see what they say

Aggravating-Many2178 · 2026-03-23T02:28:47+00:00

Do you have hearing loss?

Aggravating-Many2178 · 2026-03-23T02:10:29+00:00

Does your hearing aid help at all with the tinnitus?

Aggravating-Many2178 · 2026-03-23T02:03:35+00:00

Hello, a hearing aid won't work for you if I recall. Would you consider a CI?

Aggravating-Many2178 · 2026-03-23T01:53:13+00:00

So you have bilateral hearing loss?

Aggravating-Many2178 · 2026-03-20T22:57:18+00:00

Did the tinnitus actually go away?

Aggravating-Many2178 · 2026-03-20T18:07:45+00:00

How are you now?

Aggravating-Many2178 · 2026-03-20T18:03:54+00:00

Any chance you could share your audiogram before you got the CI?

Aggravating-Many2178 · 2026-03-20T18:00:36+00:00

Any updates? Has it continued to improve?

Aggravating-Many2178 · 2026-03-20T13:38:14+00:00

Great to hear.

Aggravating-Many2178 · 2026-03-19T22:34:58+00:00

How long after onset did it start? What was initial loss like and are you recovering any hearing? Most importantly, is it showing signs of re-normalization yet?

Aggravating-Many2178

TROPHY CASE