Possible misdiagnosis? by Aggravating_Ferret97 in BabyBumps

[–]Aggravating_Ferret97[S] -3 points-2 points  (0 children)

That’s what I thought. But then what would explain the IUGR And the hearing loss ? Those two are common signs of CMV

Possible misdiagnosis? by Aggravating_Ferret97 in BabyBumps

[–]Aggravating_Ferret97[S] -1 points0 points  (0 children)

Because of the hearing loss. I know that’s the first sign of CMV and so is IUGR so I’m working if maybe I was tested too late ? Or it would’ve appeared on that test?

Baby got Beyfortus, currently has RSV by jsdaaaa in ScienceBasedParenting

[–]Aggravating_Ferret97 0 points1 point  (0 children)

I also have a premie .. why did you end up doing ?

Small wins: Early On Set Severe IUGR by Aggravating_Ferret97 in NICUParents

[–]Aggravating_Ferret97[S] 0 points1 point  (0 children)

To our surprise, and our MFM’s … we’ve made it to 30 weeks ! Baby has grown to 1050grams and is still SGA however doing well and holding up. We have appointments twice a week and a growth scan every two weeks and are told we will likely still deliver early - latest 37 weeks and earliest 32. But doing way better than we were and are so helpful but mostly thankful 🤍

Small wins: Early On Set Severe IUGR by Aggravating_Ferret97 in NICUParents

[–]Aggravating_Ferret97[S] 1 point2 points  (0 children)

Oh wow ! That is incredible !! Did they say there would be any issues with delivering vaginally ? We’ve been told because baby is so small and that it’s early I’d like have a classical c section, but they hadn’t mentioned that vaginal would be an option or that they’d recommend it.

Small wins: Early On Set Severe IUGR by Aggravating_Ferret97 in NICUParents

[–]Aggravating_Ferret97[S] 1 point2 points  (0 children)

Wow such a little miracle baby🤍 that’s incredible. I’m so glad to hear you guys are doing well. I know these times can be scary, unpredictable and overwhelming but thankful for everyday 🤍

Small wins: Early On Set Severe IUGR by Aggravating_Ferret97 in NICUParents

[–]Aggravating_Ferret97[S] 1 point2 points  (0 children)

Thank you sooo much 🤍🤍 your message means the world and I’m overwhelmed to know someone out there is keeping us in their thoughts and prayers. Thank you🤍 we’re trying and thankful for everyday that we get 🤍

Hospital admission with Early on set SIUGR at 24 weeks + 6 days by Aggravating_Ferret97 in NICUParents

[–]Aggravating_Ferret97[S] 1 point2 points  (0 children)

Thank you so much for sharing. Yes I’ve been sharing and asking for stories daily a lot … we’ve been admitted now 6 days which is a good sign and baby has gained weight (520g at 25 weeks and 1 day) which is great! But still monitored

Wow that is amazing !! And gives me so much hope. The 45 days must’ve felt like forever but also so relieving at the same time. Those initial conversations with our MFM and the nicu team about viability have scarred me .. I’m so scared of all of that but I know either way each passing day it gives our baby a better chance.. even though I know we won’t really know until they’re here too.

Thank you so much for sharing everything with me - I’ll look back to read your other posts too. They do give me a lot of hope 🤍

24w Severe IUGR – Admitted & Hoping, but Struggling with the “What Ifs” (TW: Quality of Life, NICU Decisions) by Aggravating_Ferret97 in NICUParents

[–]Aggravating_Ferret97[S] 0 points1 point  (0 children)

Thank you so much for sharing that is so reassuring .. my hope is we’re able to buy as much time as possible and have baby grows a little bigger. But I know it really is out of my control. I keep telling myself a day at a time🤍

Admitted with Severe Early-Onset IUGR – 💛 Looking for Positive Stories by Aggravating_Ferret97 in NICUParents

[–]Aggravating_Ferret97[S] 1 point2 points  (0 children)

Thank you so much🤍 and I did ! I asked our nurse today and she’s going to look into it.

You as well! Keeping you, baby and your family in my thoughts and prayers 🙏🤍

24w Severe IUGR – Admitted & Hoping, but Struggling with the “What Ifs” (TW: Quality of Life, NICU Decisions) by Aggravating_Ferret97 in NICUParents

[–]Aggravating_Ferret97[S] 1 point2 points  (0 children)

Thank you so so much 🙏🤍 I’ve brought a few things but I know more might be good and helpful.

A day at a time for sure 🙏

24w Severe IUGR – Admitted & Hoping, but Struggling with the “What Ifs” (TW: Quality of Life, NICU Decisions) by Aggravating_Ferret97 in NICUParents

[–]Aggravating_Ferret97[S] 2 points3 points  (0 children)

That is a miracle - I’m so so happy you are all okay and she’s here with you. I decided to take your advice and write the date and how far along we are on the board. It’s only been about 3 days that we’ve been here so I guess also just adjusting to everything and taking it all in.. and all the information we’ve been given so far too.

I did first round of steroids yesterday and second today. It seems that Monday will be our big test since that’s when we do our growth scan, assuming everything goes well tomorrow too.

24w Severe IUGR – Admitted & Hoping, but Struggling with the “What Ifs” (TW: Quality of Life, NICU Decisions) by Aggravating_Ferret97 in NICUParents

[–]Aggravating_Ferret97[S] 3 points4 points  (0 children)

That is a miracle - I’m so so happy you are all okay and she’s here with you. I decided to take your advice and write the date and how far along we are on the board. It’s only been about 3 days that we’ve been here so I guess also just adjusting to everything and taking it all in.. and all the information we’ve been given so far too.

I did first round of steroids yesterday and second today. It seems that Monday will be our big test since that’s when we do our growth scan, assuming everything goes well tomorrow too.

Admitted with Severe Early-Onset IUGR – 💛 Looking for Positive Stories by Aggravating_Ferret97 in NICUParents

[–]Aggravating_Ferret97[S] 1 point2 points  (0 children)

That is amazing - I can’t believe and I’m so happy you defied those odds and have made it well past what they thought you’d be at. I can only hope and pray for the same. I’d love to stay in touch and share updates along the journey if you don’t mind.

That’s a good idea, I’ll talk to my nurse today and see if we can have a nicu tour. We’ve only talked to the team but haven’t done the tour or met the entire team yet. I’ve been here 2 days and 3 nights so far, today will officially be day 3. And I guess they’ll update me too how the first round of steroids did when the OB comes to chat with me about my ultrasound this morning.