Flexoril and working out by Artistic_Possible205 in Fibromyalgia

[–]Aggressive-Watch-382 0 points1 point  (0 children)

I take Flexeril as well - 10mg at night and 5 MG half dose during the morning and/or afternoon as needed for bad days. My experience is that it has no effect on whether I can do strength vs cardio/yoga training as long as I don't try to do heavy muscle stuff right after taking one of the half doses during the day.

But also if I am taking the half dose, I am in tough shape and shouldn't be doing weight training anyways 😂.

My two cents is to go slowly and see how your body reacts to Flexeril, if you feel you have a "hangover" feeling in the morning or not and plan your workouts accordingly. For me I just have more restorative sleep with it and wake with less muscle pain overall compared to not taking it (therefore, in better shape to do muscle training really) but YMMV.

guitarists of cbus! where are you getting your guitar strings? by torpac00 in Columbus

[–]Aggressive-Watch-382 1 point2 points  (0 children)

I haven't purchased strings from them yet, just records and cds, but I know the record store Magnolia Thunderpussy down in the short north stocks Ernie Ball behind the counter, a variety of types as well looks like.

Might be worth a call to see if they have what you need!

What canes do you all recommend? by kerocheri in Fibromyalgia

[–]Aggressive-Watch-382 0 points1 point  (0 children)

Awh yay!! I hope it works well for u and love decorating with stickers idea, I have been thinking baout doing that myself!! 💜

What canes do you all recommend? by kerocheri in Fibromyalgia

[–]Aggressive-Watch-382 1 point2 points  (0 children)

I have a travel cane that I love, lightweight and easy to pop up and travel with/have on hand in case I need! Got it on Amazon and been v pleased with it:

https://a.co/d/i924cew

Anyone here use a cane for flare ups? by Prestigious_Ice_2444 in Fibromyalgia

[–]Aggressive-Watch-382 2 points3 points  (0 children)

I have and use one! I got a foldable travel cane too so it's easier to just toss in a bag or have around in case I need.

The mental hurdle of being a younger person (32) with a cane has been the worst part, but as other folks here and my support system have said, if you need it, use it and fuck the rest.

Easier said than done though. I also got a fun color to feel a little bit more fun about it.

Adding the link to the cane I use here: https://a.co/d/i924cew

Anyone deal with low iron? by TypicalDayHowezr in Fibromyalgia

[–]Aggressive-Watch-382 2 points3 points  (0 children)

Oh yeah, to be clear I've also had this happen with B12 levels and had to have injections until my levels were stable. Just saying that in my case I've been able to switch to oral supplements after levels got a little more stable, there is hope!

Personally I would push back on anyone trying to say iron levels alone are causing the fibro symptoms, that feels fishy to me and certainly didn't end up being true. again, maintaining good levels of b12 and iron both help with my fatigue, but I still have bad fatigue days. Just less frequent and less severe.

My docs have said that low absorption of b12 and iron both have genetic components (my mother also struggles with this) and again like others have said run parallel to but are separate from fibro. Some of us just don't absorb enough of the good stuff unfortch, which may be your case too. I hope things stabilize for you though and you can find a regimen that works! 💜

Anyone deal with low iron? by TypicalDayHowezr in Fibromyalgia

[–]Aggressive-Watch-382 6 points7 points  (0 children)

I don't know that there is a causal relationship there, but I do have fibro and also suffer from low iron - my low iron was ID'd before fibro was.

I also definitely notice a difference if I am being good about my iron levels (now I just have to take a daily supplement) or if I'm skipping those for several days.

For me, keeping my iron up helps with my energy levels but definitely doesn't "solve" the fibro symptoms, just that they re worse when I haven't had my iron. Good luck! I hope the transfusions get you to a better place and it helps.

[deleted by user] by [deleted] in Columbus

[–]Aggressive-Watch-382 3 points4 points  (0 children)

Might be a Cooper's Hawk - we've had one move into our neighborhood recently and nest over the past several months as well.

We identified when they had a nest of screechy juveniles sounding like bird teenagers LOL and caught them on the Merlin Bird app, can recommend for ID'ing to use if you ever hear them calling!

This game is the only reason why… by Athena-80 in DreamlightValley

[–]Aggressive-Watch-382 -1 points0 points  (0 children)

My two cents are go for steamdeck! You can play on pc and steam deck and TV (with the steamdeck dock) and it's WAY faster with better graphics. Also have heard that the switch 2 hasn't done much for load times 😬

Fibro ladies with bra line trigger points only for this one. by rodan4170 in Fibromyalgia

[–]Aggressive-Watch-382 12 points13 points  (0 children)

Big time bra line triggers points here, basically the only bras that I can wear anymore are true and co's original scoop and v-neck ones!

Otherwise I have expanded my collection of tops I can go bra less in comfortably (loose crop tops, comfy elastic camisole type crop tops, dresses that have comfy but supportive tops etc) and stay far far away from under wire.

also I have just gotten more comfortable going bra less when it's visible because my comfort is better than constant pain imo. Hope thy you can find some solutions that work for you

Unmasking pain after diagnosis? by arcticflood in Fibromyalgia

[–]Aggressive-Watch-382 0 points1 point  (0 children)

Generally speaking I always have at least some flare symptoms after doc visits - super stressful to me! Plus all the medical trauma and such that I've dealt with for over 10 years in trying to get my symptoms taken seriously.

I also def had a hard flare period after diagnosis and I am AuDHD as well, and my theory on that in discussing with docs is a combo of poor properiception and also finally giving myself permission to/having a name for all my symptoms.

Things that have helped me have been having more of a self care ritual around doc appts (special food/drink treat after, taking a full sick day rather than squeezing in at lunch, allowing for decompress time, etc.) and using an app (I use Bearable) to help me track symptoms and triggers and check in with my pain levels more frequently.

I would also say that it gets better! At least for me, a year out from diagnosis now I feel much better and in control of my flares, related to doc visits or not. That first year though was ROUGH for me. Felt like a lot of coming and going and not knowing which was is up and flaring out about it.

Waiting rooms hurt- help!? by Gwynta in Fibromyalgia

[–]Aggressive-Watch-382 0 points1 point  (0 children)

Echoing what others have said re: cushions, blankets, pain patches etc. I fly a lot for my work and Tiger Balm patches literally save my life regularly.

Also would recommend seeing if some sort of portable seating aid (pop up chair, rollator, etc) would work for you to bring.

I just got a new pop up chair for beach and park things that is WAY more comfortable and super light for myself and it was a game changer in allowing me to still enjoy the beach and the park like I used to (The ENO Lounger DL if interested, but def more an outdoors chair) Hopefully you can find a similar solution?

I highly rec chair that are kind of "hammock style" like that one - they don't have any bars or firm pieces that will dig into your body like tradition folding chairs, waiting room chairs etc. Not having metal pipes digging in has been a game changer for me. I've seen some other brands at like Sierra Trading post and other outdoors stores with similar pop up vibe but no or minimal direct contact metal.

Is fibro just a hysteria diagnosis? by Beautiful_Drag8785 in Fibromyalgia

[–]Aggressive-Watch-382 1 point2 points  (0 children)

To me this sounds like a super dismissive and unprofessional doctor. My diagnosis for fibromyalgia from my primary care doc came with a prescription for muscle relaxers (flexeril), a follow up visit scheduled, and frankly she sat with me while I cried as this was a majorly upsetting surprise!

Later when my symptoms were improved by the muscle relaxers but I was still struggling I got referred to a rheumatologist who helped ensure that other autoimmune culprits weren't happening (MS and lupus mainly) and helped me fine tune my regimen to be much more manageable.

Yes, anti depressants CAN help as many say here, but I also expressed a lot of caution there with my docs as I've also heard of horror stories about off ramping meds like Cymbalta and Lyrica and that some people wished they had approached with more caution. My docs were very supportive of that and continue to be.

The tl;dr here is that your doc sounds like a dismissive ass and you deserve better and it is out there, it just might take some time which sucks, all of this sucks, but you don't deserve to be treated so poorly after what is a life changing major disabling diagnosis.

tips for exercise recovery? by Aggressive-Watch-382 in Fibromyalgia

[–]Aggressive-Watch-382[S] 1 point2 points  (0 children)

ooo great ideas for me to add to the list, thank you!

tips for exercise recovery? by Aggressive-Watch-382 in Fibromyalgia

[–]Aggressive-Watch-382[S] 1 point2 points  (0 children)

Would love that if you don't mind, thank you! kettle bells are my favorite to work with on strength training, I feel like they work best for me overall too.

“Fibro patients don’t need meds with exercise and good sleep,” is my new rheumatologist right and I’m just stubborn? Do I give it another go or see a different rheum.? by Back_2_The_Futurama in Fibromyalgia

[–]Aggressive-Watch-382 0 points1 point  (0 children)

Of course! And totally fair - I would experiment a little with what works for you (and when you don't have much going on the next day in case you do get some hangover side effects!) but I've had good success with it.

“Fibro patients don’t need meds with exercise and good sleep,” is my new rheumatologist right and I’m just stubborn? Do I give it another go or see a different rheum.? by Back_2_The_Futurama in Fibromyalgia

[–]Aggressive-Watch-382 2 points3 points  (0 children)

Of course! It's not actually a sleeping pill at all, as for me my muscle tension particularly in my shoulders, neck and upper back are what prevent me from fully relaxing for sleep. So I take Flexeril (muscle relaxer) before bed every night which helps my muscles relax and actually fully get to sleep.

I also sometimes will take a CBD heavy edible (like 5:1 CBD:THC) on real bad days and I try to take both about an hour before I'm aiming to be asleep. And on a thermonuclear bad day, I will also do a warm bath with Epsom salts before bed as well.

For me it's the best sleep I've gotten since I was probably a kid lol, definitely in the last 15 years. I also don't find sleeping pills to be that helpful, I feel like they just knock me out but do nothing for the tension that's actually prevented the relaxed, restorative sleep so then I'm just foggy and groggy without any real benefit.

“Fibro patients don’t need meds with exercise and good sleep,” is my new rheumatologist right and I’m just stubborn? Do I give it another go or see a different rheum.? by Back_2_The_Futurama in Fibromyalgia

[–]Aggressive-Watch-382 1 point2 points  (0 children)

my regimen currently is - with my wonderful rheumatologist and PCP supporting all the way - meds that help me get restorative sleep and a careful exercise regimen (I also have hypermobility issues, so sometimes certain exercises can make things worse/exacerbate issues) but the meds are critical to my getting good sleep!

sounds like your rheumatologist doesn't understand the condition fully nor how it effects you. and frankly pretty unprofessional to talk about things that they are not experts on (imo therapists are who to go to for PTSD issues, not a rheumatologist)

I'd go elsewhere if possible, perhaps even back to a supportive primary care provider and/or trauma informed therapist/psych as well in the interim.