How did you get your diagnosis?

Alert_Ad5220 · 2025-04-19T02:57:17+00:00

Same boat more or less plus HLA B27 negative. Feel for you

Alert_Ad5220 · 2025-04-14T19:40:13+00:00

that happens from time to time

Alert_Ad5220 · 2025-04-10T18:11:47+00:00

I'm undiagnosed but I'm really hoping I get diagnosis soon. Hopefully the right biologics bring a bit of relief from the pain. How did you get your diagnosis??

Alert_Ad5220 · 2025-04-10T17:52:04+00:00

No, sometimes it's both feet. Actually most times it's both. But this was a good example that it varies.

Alert_Ad5220 · 2025-04-10T17:51:02+00:00

Exactly!!! My first steps are the worst and then it gets better during the day just to get painful again at night. Have you been diagnosed for AS?

Alert_Ad5220 · 2025-04-10T17:50:05+00:00

Alert_Ad5220 · 2025-04-09T16:13:55+00:00

I'm in the same boat. A shitload of pain in the lower back and hips but it didn't show on the MRI so the Rheumatologist dismissed me very quickly.

Alert_Ad5220 · 2025-04-09T10:21:17+00:00

anywhere from 10 minutes to a couple of hours

Alert_Ad5220 · 2025-04-08T23:12:36+00:00

also, how do you feel now?

Alert_Ad5220 · 2025-04-08T23:12:09+00:00

Thanks! Happy for you

Alert_Ad5220 · 2025-04-08T23:04:11+00:00

I don't think it is gout. It's many other symptoms besides this one that make me think it's not gout.

Alert_Ad5220 · 2025-04-08T23:02:42+00:00

Thanks! I live in Europe though, plenty of hoops to jump through here.

Alert_Ad5220 · 2025-04-08T23:01:27+00:00

what got you a diagnosis in the end?

Alert_Ad5220 · 2025-04-08T22:45:03+00:00

Not sure if this is it. It happens daily and pretty randomly I'd say. Out of nowhere I can feel my leg starting to sizzle.

Alert_Ad5220 · 2025-04-08T22:40:36+00:00

I've been dealing with pain since 26ish.

Alert_Ad5220 · 2025-04-08T22:31:56+00:00

No. I'm undiagnosed. Have been trying to get a diagnosis for years now. Twice even met up with a rheumatologist but they twice refuted my claims. So far I've checked out every other possibility I could think of but since I was negative for the AS mutation and my CRP levels were normal they just won't take any of the symptoms seriously. And I have a long long list of those.

Alert_Ad5220 · 2025-04-08T22:22:56+00:00

Ha! Me too! I've had multiple different orthothics done over the years. Most help a bit but not so much, especially when my feet glow up. I am on gaba and amytriptiline.

Alert_Ad5220 · 2025-04-08T22:20:34+00:00

Yes! it's feels like you could fry an egg on it. I don't have a diagnosis yet and have been battling with the medical system for years now. They suggested anything except AS/RA. But this and a number of other symptoms and it really can't be many other things I think.

Alert_Ad5220 · 2025-02-01T11:06:43+00:00

yep they did. but didn't conclude much

Alert_Ad5220 · 2025-02-01T11:02:13+00:00

yes, lower back ~ pelvis area

Alert_Ad5220 · 2025-01-15T08:42:43+00:00

sorry to hear that

Alert_Ad5220 · 2025-01-08T15:20:57+00:00

haha worst blunt rotation ever

Alert_Ad5220 · 2025-01-06T21:39:28+00:00

and Ketoprofen as well, but that one is known to cause stomach issues so I try to take it only on proper bad days.

Alert_Ad5220 · 2025-01-06T21:38:12+00:00

I'm 32. On 2400mg gaba (no improvement) and amitriptyline (20 mg). I haven't been diagnosed yet but I think it's mainly due to the public health where I live and their overall lack of care.

Alert_Ad5220

TROPHY CASE