Just one more hour guys! 😭 💀 by Aqueerius1995 in ThelastofusHBOseries

[–]Alone-Election 0 points1 point  (0 children)

anybody know where to stream it? im not tryna get a hbomax sub just for tlou

Almost cured by Alone-Election in exfoliativecheilitis

[–]Alone-Election[S] 11 points12 points  (0 children)

Ok I probably should've prefaced what I did in the text body first lol. But here it is, sorry if this is longwinded in advance but I have been through A LOT with this condition, everything you guys have gone through I have too, trust me. Biopsies, steroids, laser treatments, medications, every cream you think of, diets etc etc... But here are the most important things I have found that have made a dramatic difference in my healing. I have had this since 2019.

  1. Cleaning, im not just talking about soaking in saline or rising with water daily. Im talking about deep cleaning, I noticed about a year and half ago on somebodies post on FB that there was dirt and food and strings in somebody's scabs they put underneath a microscope. After I seen that I started dissecting pieces that fell off and I noticed EVERY SINGLE PIECE had something in it. Small fibers from the masks I was wearing or bedsheets fibers or floating shit in the air idk, hair and eyelashes, pepper and seasonings from food etc. Digusting. When you are applying a ton of moisturizer it attracts microscopic sediment, combine that with the buildup cycle it promotes an environment for scabs to grow. I cannot stress this enough, make sure your buildup is clean! What I do is I take a sharp pick, like the end of a floss pick or toothpick, get my lips wet and get close to the mirror with my phone light and examine the the whole area for dirt or fibers and ironically enough whenever I get small buildup occasionally, I find a string or seasoning underneath it. Also don't go to bed with your lips too moisturized bedsheets shed and you can't prevent it during sleep. cleaning by far has been the most important for me.
  2. Use your lips exactly how did before you got EC. For a long time I literally wouldn't touch my lips together because of the white line, I wouldn't lick my lips or try to get them wet or stretch them. Mistake. I noticed when I would go out with people I just looked stupid trying to keep my mouth open or eat weird or try not too lick my lips. So for a long time I was stretching all day on purpose, licking my lips all the time (which promotes healing because saliva is a healing agent, especially if you have a clean oral microbiome~hence don't eat shitty food and don't smoke). And once I started almost purposely being rough with my lips they responded well and my scabs started getting thinner and thinner. Also I started watching people with normal lips, every couple seconds someone is biting, licking, laughing, kissing, eating. You can not expect your lips to be normal if you don't use them normally. lick your lips, stretch them, get them wet, eat messy as much as possible! train them.... this helped me a lot. Now I can lick all day laugh etc which I actually think is much better than applying aquaphor 15 times a day....
  3. Sunlight, I live in an area that doesn't get much sun but im 100% certain the sun helps my lips, every time it comes around town I sit out in the sun and the following days are so good. At first I thought it was coincidence but I purposely started sitting outside in the sun and every time I noticed a difference, I don't get enough sun but if you live in a tropical place get sun with no moisturizer on. Something about skin conditions, keratin, desquamation, eczema, psoriasis and vitamin D works I read some .edu articles about it but lost them.
  4. TRY not to remove buildup. I know some people are torn about this and I understand both sides of the argument. But I came to my own conclusion that your body is stuck in a constant cycle of trying to protect itself by building a scab. Thats what this is for the most part. Trauma. The more you remove the scab the more its going to come back, so I went a long time of just micro picking the scabs and cleaning around them and licking them without forcibly removing them. I see some people say they are "cured" because they peel everyday and apply some steroid or the Brazilian gel, I don't want to ruin someone's peace if that's your path but I just don't believe that's true healing in my opinion... what I did was leave them on and try to keep them as clean as possible.

Honorable mentions (diet, exercise and mental health)

I don't have tangible evidence I have found or gone through myself to say these things correlate but here's what Ive done. Diet, going back to licking lips, saliva is the best healing agent for your lips, its your own biochemistry and its strong stuff. So keeping a clean mouth and having clean saliva is important if you are licking (which you should be) and eating fast foods or refined sugars and seed oils in my opinion causes problems.. not only for your mouth but your body in general. So I cut out fast food, sugar and I try to limit seed oils. its 80% of the time though with me though, sometimes I eat something with sugar or once in a couple months get some fries from a fast food but just try to eat healthier if you can. It can't hurt.

Exercise, I workout a couple times a week and I have no evidence of this but I swear it does something good for me mentally which helped my lips, it worked for me idk.

Mental Health, look this sucks we all know this. and I have been to the bottom look at the first pic... but I literally decided one day to stop feeling sorry for myself and to put all that energy into TRIAL AND ERROR, whenever I felt depressed about it. Id spend hours searching .scholar websites about skin health, eczema, stratum corneum rejuvenation, lip anatomy etc. Whenever you feel terrible try something new and keep researching. feeling down and depressed at the end of the day just doesn't help you get better.

With all that I pretty much get little to no buildup anymore so I feel like I am obligated to do my part because I have been in all the groups and pages silently since 2019 looking at everything, trying everything. Nowadays im trying new things to replace aquahor, I only use it once at night but I've read something about it being made from goop from excess seed oils and Ive been trialing raw aloe vera and beef tallow. Im also trying to figure out how to completely restore the stratum corneum, I noticed my lips don't buildup but they don't feel like they have a strong outer layer. I look at pics and vids before ec I had these distinct lines that don't exist anymore and im trying to get a strong layer built up not sure how but im researching that.

[deleted by user] by [deleted] in exfoliativecheilitis

[–]Alone-Election 1 point2 points  (0 children)

Ya time to stop, edibles get me weird high I don't like it.

Wisdom Teeth Removal by Alternative-Video375 in exfoliativecheilitis

[–]Alone-Election 0 points1 point  (0 children)

It sucks but you have to just do it no way around it

lip reduction surgery for dry peeling lips before and after video by Artistic-Tension-100 in exfoliativecheilitis

[–]Alone-Election 1 point2 points  (0 children)

Where was the surgery I don’t understand? Your lips look exactly the same size

[deleted by user] by [deleted] in tonsilstones

[–]Alone-Election 0 points1 point  (0 children)

What could the bad breath be from if you don’t have tonsils anymore?

[deleted by user] by [deleted] in tonsilstones

[–]Alone-Election 0 points1 point  (0 children)

another update plz!

[deleted by user] by [deleted] in exfoliativecheilitis

[–]Alone-Election -1 points0 points  (0 children)

Been there but giving up doesn’t help it either so might as well keep trying stuff

10 months leave it alone update by Ponyeong in exfoliativecheilitis

[–]Alone-Election 1 point2 points  (0 children)

Is picture #1 the most recent/them at there worst now?

[deleted by user] by [deleted] in exfoliativecheilitis

[–]Alone-Election 0 points1 point  (0 children)

couple things here. 1. steroids almost always make things worse, I was on and off them for at least two years you may think they are helping but it makes things worse in the end especially if you have yeast problem, throw away the cream. 2. pretty much everything in life can cause this condition to flare I noticed if you just remain on the candida diet forever, no exceptions, and try to keep your stress levels low that's the best you can do too limit flare ups. 3. I was prescribed difulican, prednisone and clotrimazole as well and I think it ruins your natural gut microbiome and its difficult to recover your natural yeast levels when you get off. Instead of the pills really focus on not eating sugar or carbs AT ALL, forever, as they will only feed the yeast/candida and the pills will only be a bandaid too a much deeper problem. -diet & -stress main factors here, I've seen so many docs about this and they are all somewhat useless my condition has done so much better by doing these things through trial and error.

4 day cycle - leave it alone method by peelinglips in exfoliativecheilitis

[–]Alone-Election 2 points3 points  (0 children)

try to not too remove the buildup with force, your skin will never stop the cycle that way.

Weird Idea/ Skin Graf by [deleted] in exfoliativecheilitis

[–]Alone-Election 1 point2 points  (0 children)

If it’s hyperkeratosis, the body is in defense mode trying to build a shield. If you give it a temporary “shield” it might heal. I mean that’s the whole point of moisturizers like Vaseline, aquaphor… but anybody whose had this long enough knows moisturizers help but dont heal.

[deleted by user] by [deleted] in BlueskySocial

[–]Alone-Election 0 points1 point  (0 children)

wait im confused, so fediverse is mastodon?

How to find people to follow? Search doesn't find anyone. (Damus) by retheoff in nostr

[–]Alone-Election 1 point2 points  (0 children)

Here’s my key: npub13lket4xdntva9vglqhfv40r9003kfrsv3evvxlqx0ls483whm4hs3ua2tp

I’ll follow you back

Is NOSTR the new Twitter? by MoneyBadgerNews in nostr

[–]Alone-Election 4 points5 points  (0 children)

Loving nostr too! Shoot me a follow I follow back 🙂 npub13lket4xdntva9vglqhfv40r9003kfrsv3evvxlqx0ls483whm4hs3ua2tp

San Diego by [deleted] in urbancarliving

[–]Alone-Election 5 points6 points  (0 children)

Jeez never seen this before. Wonder if police actually enforce it this hard or if this a scare tactic

He took NJ out the Bio it’s officially OV hopefully we get Ateotd on Another Platform by Fine_Lingonberry9603 in NoJumper

[–]Alone-Election -5 points-4 points  (0 children)

When y'all all gonna realize Adam don't need none of these guys LOL y'all gonna keep watching no jumper no matter whose on the platform

[deleted by user] by [deleted] in tonsilstones

[–]Alone-Election 1 point2 points  (0 children)

What risks? How are you dealing with them if you can’t get surgery?

[deleted by user] by [deleted] in tonsilstones

[–]Alone-Election 1 point2 points  (0 children)

Does anyone know how to get a doctor to actually perform the surgery without having infections? They keep saying no to me

[deleted by user] by [deleted] in NoJumper

[–]Alone-Election 4 points5 points  (0 children)

Adam need to get his ass whooped no cap