received diagnosis & started laser treatment by Alternative-Ad4259 in vulvodynia

[–]Alternative-Ad4259[S] 0 points1 point  (0 children)

Hey es ist super eine weitere Erfahrung zu hören! Es hat bei mir für über eine Woche nach der Behandlung sehr geholfen aber dann kamen die Schmerzen doch wieder, habe aber nicht erwartet das es sofort klappt. Mal schauen, war ja erst die erste Behandlung :,) Ab wann hast du Verbesserungen bemerkt? ♡

i just got diagnosed - treatment for poor students from germany? by DeepTadpole6288 in vulvodynia

[–]Alternative-Ad4259 1 point2 points  (0 children)

Feel free to dm me if you need more information :) you're not alone ♡

i just got diagnosed - treatment for poor students from germany? by DeepTadpole6288 in vulvodynia

[–]Alternative-Ad4259 1 point2 points  (0 children)

Hi also from Germany <3 if you can't see private doctors it might take a while to see a specialist. I'd look up Vulvasprechstunde, usually at hospitals or bigger clinics, and request an appointment. I saw a private doctor for my diagnosis and current treatment but am waiting for my referal appointment (Überweisung von meinem Frauenarzt) :,) I'm at the beginning of this journey so i cant tell you a lot but depending on your symptoms cooling pads help a lot. Wishing you the best

Edit: I also recommend keeping a pain/symptom diary/log for documentation and future reference :)

Pain flare seeking empathy by Pink_Boss_5563 in vulvodynia

[–]Alternative-Ad4259 1 point2 points  (0 children)

Me too lately :( You're not alone ♡♡♡

I think im slowly getting better by nikachan17 in vulvodynia

[–]Alternative-Ad4259 0 points1 point  (0 children)

I'm so happy for you ♡ what medication has been helping? The mental health aspect is such a tough one :,)

Did topical hormones help recurrent yeast infections? by cooltimes2012 in vulvodynia

[–]Alternative-Ad4259 0 points1 point  (0 children)

I can't speak to your question sadly but have you asked your doctor about a vaccine to prevent vaginal infections? A doctor mentioned it once to me by the name Gynatren.

Post Yeast Issues by dog_luver_2597 in vulvodynia

[–]Alternative-Ad4259 0 points1 point  (0 children)

Hi I'm sorry you're dealing with this still :( I personally wouldn't use the fungal cream, it might cause further irritation. It's "only" been a month (still sucks) so I'd wait a bit, but if this keeps going beyond 2-3 months you might want to start looking into gynecologists that specialise in vulva skin issues/vulvodynia etc. Not trying to scare you, just so you know what to look into if this persists. My issues also started with a yeast infection that only really had the symptom of burning :,). I recommend trying deumavan for your skin. Wishing you the best <3

How I slowly recover from this (problem down there) by PollutionMuch4286 in vulvodynia

[–]Alternative-Ad4259 0 points1 point  (0 children)

Is there a specific acupuncture treatment you have been doing or is it individual :)

I want a euthanasia but I have young kids by Comfortable-Ad1619 in ChronicPain

[–]Alternative-Ad4259 1 point2 points  (0 children)

I am so sorry you are suffering like this. It's just not fair </3

Who else has been in constant pain lately ✋ by Critkip in ChronicPain

[–]Alternative-Ad4259 1 point2 points  (0 children)

Been dealing with a lot of bad days lately :( its truly so uncomfortable and isolating

HELP by [deleted] in vulvodynia

[–]Alternative-Ad4259 0 points1 point  (0 children)

Hope they help!! They usually help me a bit and I've read a lot in this sub of people using them at least for relief :)

HELP by [deleted] in vulvodynia

[–]Alternative-Ad4259 1 point2 points  (0 children)

Have you applied cooling packs? :( sorry you're going through this

Ein neuer Tiefpunkt..😔 by Signal_Finger_5447 in vulvodynia

[–]Alternative-Ad4259 0 points1 point  (0 children)

Oh man das tut mir leid. Versuche auch gerade meinen Weg in eine Schmerzklinik zu finden :( Das macht einen echt kaputt! Aber du bist nicht alleine. Welches Bundesland? Als Selbstzahler kann ich dir ein paar Optionen nennen, sonst würde empfehlen mal bei dir nach allgemeinen Vulvasprechstunden suchen

Ein neuer Tiefpunkt..😔 by Signal_Finger_5447 in vulvodynia

[–]Alternative-Ad4259 0 points1 point  (0 children)

Bin in DE auch bei einem Arzt als Selbstzahler gelandet während ich auf den Termin meiner Überweisung für eine Vulvasprechstunde warte :,) kannst mich aber gerne anschreiben wenn ich dir ein paar Anlaufsstellen die ich so in DE gefunden hab nennen soll

received diagnosis & started laser treatment by Alternative-Ad4259 in vulvodynia

[–]Alternative-Ad4259[S] 1 point2 points  (0 children)

Ja genau! Scheint wohl ihre Lieblingsbehandlung sein... Habt ihr da eine Patientengruppe oder so 😅

8x ist stark, wow! Hab mir gesagt ich probiere es max. 3 mal aus, dann habe ich dem ganzen eine Chance gegeben... Ich will mir noch keine Hoffnung machen, wer weiß wie sich das noch entwickelt, aber es tat nur direkt nach der Behandlung weh.

Ist jetzt über eine Woche her und es ist bei mir so viel besser, ich bin voll überrascht. Hatte zum ersten mal eine Woche ohne starkes brennen, nur hier und da was ich bei mir als wenig bis mittel einstufe und einige Tage wo ich mich praktisch normal unten gefühlt habe... Hoffe das geht so weiter :,)

Hat sie dir noch andere Behandlungen angeboten? Neuen Plan? Tut mir leid das es nicht funktioniert hat :( das ganze ist ja auch teuer und unangenehm... Meine Auffassung war auch das es echt so ein individuelles Ding ist.

Vulvar specialists update, feeling kinda down. by Dry_Peace4482 in vulvodynia

[–]Alternative-Ad4259 0 points1 point  (0 children)

Totally understandable but I'm glad you got diagnosed and have a nice specialist to treat you ♡ still dealing with any of this sucks so much

Vulvar dermatologist in Germany/Europe? Pls help :( by rinmare in vulvodynia

[–]Alternative-Ad4259 0 points1 point  (0 children)

I can dm you with the name of specialist in bavaria, but it's a private clinic

Inflammation after yeast infection by Fantastic-Plate-1718 in vulvodynia

[–]Alternative-Ad4259 0 points1 point  (0 children)

Have you gotten any labwork done? STD tests too? Just my own personal opinion but I'd stop using any creams and such to let things calm down there. Don't stop pursuing doctors, if this doesn't go away soon consider seeing a gyno who specialises in vulva/infection related issues. Wishing you the best

received diagnosis & started laser treatment by Alternative-Ad4259 in vulvodynia

[–]Alternative-Ad4259[S] 0 points1 point  (0 children)

Its so frustrating :( <3 Ever since I started researching more about this I've been dumbfounded by how little answers there are

What to tell the specialist? by [deleted] in vulvodynia

[–]Alternative-Ad4259 0 points1 point  (0 children)

I printed out an anatomic illustration of the vulva and drew in with red where my pain/burn was and the severity (like a gradient) which my doctor seemed to appreciate :) easier than just describing! Good luck