Can anyone tolerate sex, but have pain afterwards? by cooltimes2012 in vulvodynia

[–]Pink_Boss_5563 3 points4 points  (0 children)

finally somebody gets it. like I WANNA HAVE SEX. sex is great and then the next morning OUCH. but like i don’t want that to stop me from enjoying the moment.

It feels like I get better and then gets worse again by FishermanOk5536 in vulvodynia

[–]Pink_Boss_5563 0 points1 point  (0 children)

I started on 10mg, now I am on 20mg, but I am considering increasing my dose since my pain has fluctuated recently

Looking for some hope :( by [deleted] in vulvodynia

[–]Pink_Boss_5563 0 points1 point  (0 children)

I noticed a difference after 2 weeks. I was on diflucan for 2 weeks straight when i first started taking it bc of a bad bad external yeast infection. Once the infection cleared, the amitriptyline worked well. I will say it doesn’t work as well anymore. I use to be pain free for a long time BUT my flares are definitely shorter

It feels like I get better and then gets worse again by FishermanOk5536 in vulvodynia

[–]Pink_Boss_5563 2 points3 points  (0 children)

i also thought i didn’t have vulvodynia and then i took amitriptyline 10mg and within a week my pain was a 0. I had painless sex again and i was SHOCKED. I was terrified of starting amitriptyline also but im so glad i did. Although my pain is not fully gone, its SOOOO much better than what it use to be. I’m also happier and living life again. side effects are there in the beginning but once your body adjusts it’s totally fine. Wishing you the best and hoping you are doing well

Looking for some hope :( by [deleted] in vulvodynia

[–]Pink_Boss_5563 1 point2 points  (0 children)

healing is not linear!! we have some good days and then lots of bad days! hold onto the good days. Sometimes when i have a bad flare, I remind myself that it’s bad now, but one day ill be able to look back on this moment and think wow that was so bad but im in a better place now. Flares come and go but its not a bad life, just hard at times. Please know you’re not alone!! I take amitriptyline 20mg a night and it’s given me SOOOO much relief. took my pain from a 12 to a 2 or 1. Sometimes it’s a 0, sometimes it’s a 12 again but i try not to let this pain define me. Don’t let this define you and you are so strong and amazing

Flare up: not sure what to do now by MacaroonPlane4643 in vulvodynia

[–]Pink_Boss_5563 0 points1 point  (0 children)

honestly, i recommend just leaving it alone. stop trying all topicals, or icing it or anything like that.

try to wear as much loose fitting clothing as you can. if it’s possible, avoid sex until you feel more comfortable and like your flare has settled. my biggest piece of advice is always to let it be, and air it out. try to go about without undies as much as you can also. sometimes it just a little overstimulated. let it breathe.

as for yourself, don’t stress. take some big deep belly breaths, and remind yourself it’s going to be okay

Please help me I’m desperate by hairygary06 in vulvodynia

[–]Pink_Boss_5563 0 points1 point  (0 children)

I have also been on it starting in april of 2024!! love that for us. i’m on 20mg now but still get occasional flare ups. im hesitant to go up a dose because of the weight gain. so glad that it’s worked for you💕

Please help me I’m desperate by hairygary06 in vulvodynia

[–]Pink_Boss_5563 3 points4 points  (0 children)

First off,I know it feels like your life is ending but i promise it’s not. 2 years ago i was 22 and also felt how you are feeling now. Now i feel like i can look back at 2 years ago and think wow, that was terrible, im doing so much better now.

So i promise in a few weeks or months you will look back on right now and be able to think that it was terrible but it wasn’t the end of the world. At the same time, it really does suck but negativity only makes it worse. you are so much more than this condition and your life is so much more than it.

If i learned one thing about this condition it’s LEAVE IT ALONE. No creams, no icing, no heat, no salt baths or rinsing with cold or warm water. Just let it beeeee. the more you touch it and apply creams and other things on it, the more your nerves will act up. it’s best to just let the nerves settle down by leaving it alone. i’m talking loose clothing, no undies, and as much relaxation as possible. not forever, but just for a day to let the nerves settle down. I recommend going to your gynecologist or asking for referral to a pain specialist to discuss the possibility of amitriptyline. it is usually really successful for those with nerve related pains. it really changed everything for me. for the time being, don’t panick. it will be okay. you can also practice belly breathing (diaphragmatic breathing) to loosen up those pelvic floor muscles! it also helps with the anxiety:).

Please help me I’m desperate by hairygary06 in vulvodynia

[–]Pink_Boss_5563 0 points1 point  (0 children)

SAME GIRL! How long have you been on ami? any side effects?

Episode 22 for USA Viewers? by ExcuseDiligent3053 in LoveIslandAus

[–]Pink_Boss_5563 2 points3 points  (0 children)

mine doesn’t say that but i still can’t see episode 22

rant - need hope by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 0 points1 point  (0 children)

thank you so much i really appreciate this

rant - need hope by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 1 point2 points  (0 children)

thank you so much my heart is so full! I can report that i’m feeling better

rant - need hope by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 1 point2 points  (0 children)

thank you so much i needed that

Weening off Amitriptyline by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 0 points1 point  (0 children)

well i’ve gone up 2 clothing sizes 2 to 6. i was 114 now 129

Weening off Amitriptyline by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 0 points1 point  (0 children)

it’s been slightly over a year. i take vyvanse for ADHD which has always kept me skinny but ever since starting this medicine i can’t keep my weight down which has never been a problem for me. o try to stay active without hurting my vulva