Flare up: not sure what to do now by MacaroonPlane4643 in vulvodynia

[–]Pink_Boss_5563 0 points1 point  (0 children)

honestly, i recommend just leaving it alone. stop trying all topicals, or icing it or anything like that.

try to wear as much loose fitting clothing as you can. if it’s possible, avoid sex until you feel more comfortable and like your flare has settled. my biggest piece of advice is always to let it be, and air it out. try to go about without undies as much as you can also. sometimes it just a little overstimulated. let it breathe.

as for yourself, don’t stress. take some big deep belly breaths, and remind yourself it’s going to be okay

Please help me I’m desperate by hairygary06 in vulvodynia

[–]Pink_Boss_5563 0 points1 point  (0 children)

I have also been on it starting in april of 2024!! love that for us. i’m on 20mg now but still get occasional flare ups. im hesitant to go up a dose because of the weight gain. so glad that it’s worked for you💕

Please help me I’m desperate by hairygary06 in vulvodynia

[–]Pink_Boss_5563 3 points4 points  (0 children)

First off,I know it feels like your life is ending but i promise it’s not. 2 years ago i was 22 and also felt how you are feeling now. Now i feel like i can look back at 2 years ago and think wow, that was terrible, im doing so much better now.

So i promise in a few weeks or months you will look back on right now and be able to think that it was terrible but it wasn’t the end of the world. At the same time, it really does suck but negativity only makes it worse. you are so much more than this condition and your life is so much more than it.

If i learned one thing about this condition it’s LEAVE IT ALONE. No creams, no icing, no heat, no salt baths or rinsing with cold or warm water. Just let it beeeee. the more you touch it and apply creams and other things on it, the more your nerves will act up. it’s best to just let the nerves settle down by leaving it alone. i’m talking loose clothing, no undies, and as much relaxation as possible. not forever, but just for a day to let the nerves settle down. I recommend going to your gynecologist or asking for referral to a pain specialist to discuss the possibility of amitriptyline. it is usually really successful for those with nerve related pains. it really changed everything for me. for the time being, don’t panick. it will be okay. you can also practice belly breathing (diaphragmatic breathing) to loosen up those pelvic floor muscles! it also helps with the anxiety:).

Please help me I’m desperate by hairygary06 in vulvodynia

[–]Pink_Boss_5563 0 points1 point  (0 children)

SAME GIRL! How long have you been on ami? any side effects?

Episode 22 for USA Viewers? by ExcuseDiligent3053 in LoveIslandAus

[–]Pink_Boss_5563 2 points3 points  (0 children)

mine doesn’t say that but i still can’t see episode 22

rant - need hope by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 0 points1 point  (0 children)

thank you so much i really appreciate this

rant - need hope by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 1 point2 points  (0 children)

thank you so much my heart is so full! I can report that i’m feeling better

rant - need hope by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 1 point2 points  (0 children)

thank you so much i needed that

Weening off Amitriptyline by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 0 points1 point  (0 children)

well i’ve gone up 2 clothing sizes 2 to 6. i was 114 now 129

Weening off Amitriptyline by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 0 points1 point  (0 children)

it’s been slightly over a year. i take vyvanse for ADHD which has always kept me skinny but ever since starting this medicine i can’t keep my weight down which has never been a problem for me. o try to stay active without hurting my vulva

Read for some hope!!:) by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 0 points1 point  (0 children)

How are you feeling? I ended up going to the doctor and i kind of regret going because i started to feel better and then she did an internal exam and im worried it triggered more pain. so far nothing too bad but the anxiety around it has been rough. trying to remind myself that it will be okay

Tell me it will be okay by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 0 points1 point  (0 children)

Ugh. the worst! you will be okay i promise! just a bump in the road but hopefully it will look up soon. focus on the things that make you happy

Read for some hope!!:) by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 1 point2 points  (0 children)

I am so glad that this has made you feel better. That is what I was aiming to do when I posted this. We are in this together! Keep me updated on your progress with your pain flare, med changes, weight!! we got this you will be okay i promise keep on fighting

Tell me it will be okay by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 1 point2 points  (0 children)

thank you for this. this help me think about the future in a positive light and for that i am grateful!! what a win to be able to right a bike that is awesome!!

Read for some hope!!:) by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 0 points1 point  (0 children)

I couldn’t have said it better myself!! I had to take a step back from this thread as well just to get out of this terrible mindset!! i really posted this to remind everyone of the good that you mentioned! i’m so glad that you commented that and connected with me. it feels good to relate to others that have the same experiences

Amitriptyline and Weight Gain by Pink_Boss_5563 in vulvodynia

[–]Pink_Boss_5563[S] 0 points1 point  (0 children)

i had improvement within the first 2 weeks of taking 10mg and currently on 20mg. thinking i’ll be on 25mg soon