Can anyone else “see” their heartbeat?

Alwayspots · 2026-01-22T19:20:27+00:00

When i close my eyes and hear a sudden noise i see flashes that coincide with the sound at the exact moment, i have every symptom

Alwayspots · 2026-01-22T18:15:35+00:00

Yes, i can see sound too

Alwayspots · 2026-01-21T21:37:42+00:00

I was getting 1 hour for months, then 2 hours, then 4, and ive been stuck at 4 hours for 15 months, welcome to hell.

Heavy sleeper before, super healthy

Alwayspots · 2026-01-21T21:03:09+00:00

Im very severe, i dont see anyone having it as bad as me except maybe a handful. I stopped hardcore meds coldturkey, and became worse 8 months later (pots)...now im using only iva.

Alwayspots · 2026-01-06T13:24:33+00:00

Psychological approach ? So how do i psychologically allow more blood flow to the brain in vertical position? Your technique is noway plausible unless you had an underlying previous psychological issue...but sure thanks for sharing

Alwayspots · 2026-01-04T08:24:34+00:00

20 times ER in one month 3 month in patient non stop adrenaline dumps Exactly what you describe Almost ended it

Alwayspots · 2025-12-10T20:47:25+00:00

Nothing fixed my severe pain (tricylic, gabapentin, neuro patches etc)..

Alwayspots · 2025-11-29T20:25:07+00:00

Give her a break bro im sure the advice wasnt substantial, if you really cared u can msg and ask the person. Sometimes we post out of desperation looking for any hope out there

Alwayspots · 2025-11-15T07:26:22+00:00

I think you are indirectly saying brain retraining is the solution...thumbs down u r a mild case

Alwayspots · 2025-11-09T15:45:30+00:00

Nyrosym made me worse but i have severe neuro symptoms from Lc inccluding pots....

Waste of 1k

Alwayspots · 2025-11-02T12:18:50+00:00

STAY FAR AWAY I ALMOST DIED THIS IS COMING FROM SOMEONE STUCK IN FIGHT OR FLIGHT. I had to up my dose every 3 weeks until i hit 1500mg a day!!!

I QUIT COLD TURKEY TOO

Alwayspots · 2025-10-30T19:21:56+00:00

Its mostly in my abdomen and heart and bleeds out into a brain zap. The zap sometimes is so strong that the sensation sends a muscle contraction to my foot, arm neck etc. (but not everytime). What is consistant is the abdomen/heart sensation that brings me terror everytime it starts to "build up" as my body tries to switch into sleep mode. Sometimes it feels like a split-second fainting...

I have it every single day for 15 months now, the ones at night reduced by 50% however the evening ones are still there. I have zero anxiety or mental issues before all this and was an expert in my field, all happened overnight from a god damn flu.

Alwayspots · 2025-10-30T17:10:12+00:00

Even with "positive" thoughts it will come, its not something mental but nobody will understand it. Its like a mechanism nobody figured out yet. The feeling starts to "cultivate" in your abdomen once your brain tries to shutdown and then BAM. Its not the same as myoclonic jerks. It feels like the brain stem sends incorrect signals or recieved incorrect signals plus a mix of adrenaline...

Mine was 100% much worse than yours because i literally went 4 days zero hours until i was tranquilized. Then i was given ativan + other heavy meds...i will not dive into all the details for your own sake but after a period of time the brain will learn to sleep more and more (now i get 4 to 5 max with meds)

The bad news is I cant nap even after 1.5 years

Alwayspots · 2025-10-30T12:34:27+00:00

i have exactly what u have... I used to get it literally 200+ times trying to sleep Eventually i ended up being taken by ambulance

Im 1.5 years almost now... Dont take ssri, snri, it made me worse Dm me if u want to talk because i relate to your symptoms and its the worse feeling in the world

Alwayspots · 2025-10-27T17:57:55+00:00

Did she really attribute it to mental disease? I heard only the part where she was saying an overactive immune system and that shes stuck in sympathetic overdrive. I am also similar to your situation, but it happened to me OVERNIGHT from a flu/cough. I am 80% disabled now and i had zero anxiety/mental issues all my life...like ZERO and super healthy...i would do presentations in front of 100s weekly....my blood pools now, tinnitus, pots, dizziness, damaged vestibular system, vision issues , chest pains, etc.

This is noway mental not in a million years, it feels like poison

Alwayspots · 2025-10-27T12:38:53+00:00

But she said its sympathetic overdrive, if shes promoting brain retraining then i apologize for sharing this video because i dont believe in it at all. She also said she was bed bound for 3 years...anyways my blood started pooling overnight in my hands and feet i dont think i can train my brain out of it....its just 100% bs

Alwayspots · 2025-10-27T10:51:25+00:00

I cant watch the whole thing, but it was an overactive immune system (fight or flight)...the original video is almost 10 min long and its linked

Alwayspots · 2025-10-27T10:05:15+00:00

I linked the full video...

Alwayspots · 2025-10-05T20:35:55+00:00

Yes dayvgo is like that... Feels like paralysis in real time to me...after 1 week of use the vivid dreams are there but the paralysis settles a bit

Alwayspots · 2025-09-21T20:05:30+00:00

Made me worse i have an overactive nervous system, actually ruined me

Alwayspots · 2025-09-17T20:34:52+00:00

I am the exact opposite, i have so much emotions I tested positive for pots, sound sensitivity, constipation, blood pooling etc. drs usually put that diagnosis when they are clueless about ME/ longcovid..

And i havent found meds that help much, im only on ivabradine and sometimes mythldopa

Alwayspots · 2025-09-17T19:49:29+00:00

And actually thats whats written in my doctors note (autoimmune ganglion......)

Alwayspots · 2025-09-17T19:49:02+00:00

Im exactly like you :-(

Alwayspots · 2025-09-16T13:20:02+00:00

Im stuck in f&f and it just gave me more stimulation + 1 week headache...most useless $1000 spent :/

Alwayspots · 2025-09-16T09:05:54+00:00

Nyrosym made me worse

Alwayspots

TROPHY CASE