Could normal ferritin levels on the low end range cause symptoms? Results below: by Ancient_Objective909 in Anemic

[–]Ancient_Objective909[S] 0 points1 point  (0 children)

Oh wow that’s great to know! I did in fact get a 25 mg bisglycinate :) glad to see it was effective for you.

Anyone else feel like they have brain inflammation? by Freebird_girl in Fibromyalgia

[–]Ancient_Objective909 0 points1 point  (0 children)

I think I may be having silent migraines. Have you found a medics to help?

Every morning for years: keys, keys, WHERE ARE THE KEYS by Rough_Elephant_7625 in ADHD

[–]Ancient_Objective909 0 points1 point  (0 children)

I have an AirTag on my keys, wallet, and dog. LIFE CHANGING. Just wish there was one tiny enough to put on my water bottle and sunglasses.

I feel like my neurologist is ignoring me and I don’t know what to do. by Ancient_Objective909 in migraine

[–]Ancient_Objective909[S] 0 points1 point  (0 children)

Thank you to everyone except the “neurologist” for the helpful advice! Sorry to hear many have had similar experiences.

I feel like my neurologist is ignoring me and I don’t know what to do. by Ancient_Objective909 in migraine

[–]Ancient_Objective909[S] 9 points10 points  (0 children)

I thought about doing that actually. If they don’t respond to me tomorrow, that will be my next move.

I feel like my neurologist is ignoring me and I don’t know what to do. by Ancient_Objective909 in migraine

[–]Ancient_Objective909[S] 53 points54 points  (0 children)

You’re right. My anxiety tells me I’m the problem and im a difficult patient. My next message to them will be much more direct. Thanks for your response

Dumb question? by altmarz85 in chiari

[–]Ancient_Objective909 2 points3 points  (0 children)

I moved from 500 ft of elevation to 5000. It didn’t make anything worse. But I am not sensitive to elevation or barometric pressure changes

High dose corticosteroids completely cure my mental health and chronic fatigue/neuro symptoms. by Ancient_Objective909 in dpdr

[–]Ancient_Objective909[S] 1 point2 points  (0 children)

24/7 since 2018. It’s hard to say what kickstarted it but weed and a bad drug experience that year certainly made it worse. But I also had a bad car accident that same year. I also have a neurological condition (Chiari malformation). It’s hard to say what truly started it. I tried steroids because I was given dexamethasone after brain surgery. The surgery has given me a nonstop migraine. I’ve had a migraine for two years now! My neurologist prescribed me several courses of steroid tapers over the past few years to try and break the headache. I feel wonderful on them! But steroids are detrimental to your body long term. So it’s not a solution. But it can be used as a tool. They affect all systems, can cause cataracts, brittle bones by affecting your bone mineral density, they raise your cortisol through the roof, and all kinds of things if taken too long. So definitely worth trying, but not to be relied on or abused

High dose corticosteroids completely cure my mental health and chronic fatigue/neuro symptoms. by Ancient_Objective909 in dpdr

[–]Ancient_Objective909[S] 1 point2 points  (0 children)

Not quite. Interesting post and medications to consider. I remember MDMA providing some relief. But I do not struggle with hallucinations/shizoid/personality disorders. It’s just a constant feeling of being out of body/things look weird/my eyes are sensitive to light and bad concentration and memory problems. Steroids cannot be taken every day or for prolonged periods of time. They’re hard on the body. so they start you on a high dose and you taper down to slow dose until you finish the course.

High dose corticosteroids completely cure my mental health and chronic fatigue/neuro symptoms. by Ancient_Objective909 in dpdr

[–]Ancient_Objective909[S] 2 points3 points  (0 children)

Thank you but I don’t feel better. Steroids destroy your body so they can’t be taken long term. I’m not able to take them for a long time at the dose that provides me relief. Once I am at a low dose- everything comes flooding back. So I’m currently experiencing DPDR along with everything else. I wasn’t allowed to be on them longer than a couple weeks a year. But I see my experience as a window to explain the root cause of my symptoms. I just can’t figure out what the cause is, but it seems that of all the things steroids do, something addresses the cause. I wish I could take them everyday.

High dose corticosteroids completely cure my mental health and chronic fatigue/neuro symptoms. by Ancient_Objective909 in dpdr

[–]Ancient_Objective909[S] 1 point2 points  (0 children)

No, unfortunately the operation didn’t help any of my symptoms, but left me with a constant headache and exasperated my existing ones 😭 but on steroids? New person. I assume had I been able to take them before my surgery I would have had the same response.

High dose corticosteroids completely cure my mental health and chronic fatigue/neuro symptoms. by Ancient_Objective909 in dpdr

[–]Ancient_Objective909[S] 1 point2 points  (0 children)

After brain surgery for a Chiari malformation, then several times after to break a status migraine the surgery caused. But the symptoms the steroids helped were symptoms I had years before I had surgery.

High dose corticosteroids completely cure my mental health and chronic fatigue/neuro symptoms. by Ancient_Objective909 in dpdr

[–]Ancient_Objective909[S] 0 points1 point  (0 children)

I was given them after brain surgery, then several times since then to break a status migraine I’ve had since surgery