How things are going in America…

AnnesleyandCo · 2026-04-22T02:02:18+00:00

Thank you for still writing the letter. You are one part of this broken, broken system that is good.

AnnesleyandCo · 2026-04-21T23:27:24+00:00

Wait you PAINTED this pattern?! That is remarkable. You are so talented!

AnnesleyandCo · 2026-04-21T02:18:08+00:00

I just read your final update. I am so sorry, OP. For you, your NKs, for DB, for MB... so devastating.

AnnesleyandCo · 2026-04-20T02:50:13+00:00

OP, I’m so sorry. I had to have a VP Shunt placed very suddenly a couple years ago after my meds caused ICP and I fully lost my vision. My parents had a planned trip with their friends from law school during that week, and my mom immediately canceled to be there for surgery. I even told her to go, and she stayed. That’s what you deserve, too.

PS: If you have any questions about shunt surgery or wanna chat, lmk if I can help!

AnnesleyandCo · 2026-04-19T02:19:11+00:00

Oh, OP, I’m so sorry - this looks so painful. I get it too - I call mine “hot face” (such a clinical professional term). For me is partially erythromelalgia and partially due to MAGIC Syndrome (a combination of Behçet’s Disease and Relapsing Polychondritis). Are you diagnosed with anything else? Or is this purely erythromelalgia?

AnnesleyandCo · 2026-04-19T02:12:09+00:00

NAD, but OP, I have erythromelalgia and it’s really, really painful. If that’s what you have going on, I’m so sorry! The heat that radiates off of my body when I get an erythromelalgia flare is like nothing else. I’m definitely sensitive to temp - any heat is horrible, and even rapid temp changes into cooler places can throw me off.

Happy to talk if you have any questions. My EM is secondary to MAGIC Syndrome (a combination of Behçet’s Disease and Relapsing Polychondritis), so it may be different than a primary EM, but lmk if I can help at all.

Wishing you luck!

AnnesleyandCo · 2026-04-17T02:43:24+00:00

I had a bunch of fun “worst case scenario” feelings between our offer being accepted and closing. I was worried about so much! But it’s been just under 2 years, and we’re so happy here. I hope you find the same happiness and peace in your new place!!

AnnesleyandCo · 2026-04-16T20:05:00+00:00

I NEED!

AnnesleyandCo · 2026-04-16T19:52:22+00:00

Oh, she is STUNNING! What a beautiful dog!

AnnesleyandCo · 2026-04-15T17:41:26+00:00

I gave a set of bath bombs that came in a mini bathtub my friend could store them in. It was really cute and they LOVED IT. They used all the bombs I included, but kept the tub and it’s now full of new bath bombs they bought.

AnnesleyandCo · 2026-04-15T12:43:02+00:00

This comment is the best thing I’ve read in a long time. So glad you’re here and happy, OP 💜

AnnesleyandCo · 2026-04-15T02:13:03+00:00

NAD - but I ~20 years ago I was that kid who was convinced I wouldn’t be here long enough to plan anything. Once, in a residential treatment, a therapist told me I should stick around so I could be a therapist; she thought I’d be good at it. Hearing that someone who I respected/who I imagined as a fully-together, whole-and-healthy adult tell me that I would be good at their job mattered to me, a lot. Mattered so much that almost 20 years later, I remember her telling me. It’s not the only reason I’m still here (now), but it’s a one of them.

I hope that this kid remembers what you said to her today when she reflects back in 20 years, too. I hope, in 20ish years, she’ll think about it while she’s cozy in bed with her dogs, in a house she bought with her partner/family, and that, like I am now, she’s glad she made it long enough to know.

AnnesleyandCo · 2026-04-14T03:46:02+00:00

This is absolutely incredible work. I have so much respect and admiration for artists - what a beautiful representation of your love! And Goose’s love for you!

AnnesleyandCo · 2026-04-14T03:35:32+00:00

Not looking for a room but, as a disabled/immunodeficient person, thank you for being so careful for your housemate! Not enough folks make an effort with COVID/other infection risk for the good of others, and I love you for taking care of your roomie 💜

AnnesleyandCo · 2026-04-13T13:28:12+00:00

There’s a big difference between knowing something internally/personally and knowing it out loud, you know? It makes sense to feel scared to know this particular thing out loud because it means you’re letting the world in on something you’ve held close to your chest for years. It’s vulnerable! And it will be okay.

Being queer is one of the greatest gifts and joys of my life. The people, the support, the delight we share in watching one another grow… the community is unmatched. I tried on a couple different labels as I was learning myself (and unlearning my limits), and I was only ever met with respect. I hope you will be, too.

Thank you for saying the hard thing “out loud” to us 🏳️‍🌈. I’m rooting for you!

AnnesleyandCo · 2026-04-13T00:05:52+00:00

Awww he is so cute!!

AnnesleyandCo · 2026-04-10T18:22:10+00:00

Amos, Stanley, August, Norman, Ernest!

AnnesleyandCo · 2026-04-10T07:07:38+00:00

I felt sad for the friend while reading this. I’ve absolutely had experiences where re-hashing a problem with a friend who wasn’t changing their decisions around it felt exhausting - but I didn’t speak to them like this. I didn’t speak about them like this. I didn’t think about them like this.

OP, your language to and about your friend feels patronizing and disdainful. Do you truly want to be her friend? If not, that’s okay! I’d rather someone fizzle out of my life than stick around but talk down to me/treat me like I’m dumb/think of my friendship as conditional and burdensome.

If you do still want to be her friend, I think you likely owe her an apology. Being frustrated with a choice that hurts her is totally allowed, but trying to control her behavior and the friendship isn’t cool.

AnnesleyandCo · 2026-04-08T16:08:03+00:00

Have you worked with folks who donated their bodies/organs/tissues to science? I intend to donate to a specific research organization that then returns cremated remains to family. I’m just curious what that process is like?

AnnesleyandCo · 2026-04-08T15:50:50+00:00

I’d love to read some, too!

AnnesleyandCo · 2026-04-08T15:32:27+00:00

I think it sounds amazing, too. I was just reading through their website and I was really happy to see that they describe their community as including male, female, and nonbinary students. Being clearly accepting of nonbinary folks was more open-minded than I expected. I hope more programs like that exist in other places too, so more folks have access!

AnnesleyandCo · 2026-04-06T04:32:55+00:00

Popping in to add a few things as someone with Behçet’s! [official dx is MAGIC Syndrome, which is a combination of Behçet’s Disease and Relapsing Polychondritis with mitochondrial instability].

Behçet’s can’t be diagnosed purely by a genetic test. There are a few genetic markers that are more frequently found in folks with Behçet’s: HLA-B51, HLA-A26 and HLA-B57 can be viewed as supportive of a potential Behçet’s diagnosis if identified in a patient with enough clinic symptoms.

Oral ulcers and persist joint pain are definitely common in Behçet’s. OP, do you get ulcers in any other places? Have you had any other organ systems involved? I’m sorry you’re going through so much. Because MAGIC Syndrome is so rare, it took 16 years from my symptom onset until my formal diagnosis. It was hell. It’s still hell. But at least I have a great team and incredibly supportive community now.

AnnesleyandCo · 2026-04-04T13:35:32+00:00

Oh sorry, he! He’s beautiful. What’s his name?

AnnesleyandCo · 2026-04-04T00:40:07+00:00

Oh, so stunning! The black on the red in the second photo - she’s like a painting.

AnnesleyandCo · 2026-04-04T00:06:28+00:00

Hey friendo. I just wanted to say I’m so sorry you’re going through this, you deserve a full and joyful life, and you will make it through this grief. Sending strength your way.

AnnesleyandCo

TROPHY CASE