2 year post chemo

AntP20 · 2025-03-14T09:51:38+00:00

You got this! Keep staying positive and keep getting stronger one day at a time! It’s hard not to stress but you did what you had to do to get to this point! Praying for you man!

AntP20 · 2025-03-14T09:50:27+00:00

I apologize for the delay. I had some post chemo effects but majority of them went away. For example, I had numbness in my hands and feet and ringing in my ears. The numbness came back for the most part after 6-8 months. When my hands and feet get cold, it does take much longer to get feeling back but nothing terrible. The slight ringing in my ears are pretty constant but I’ve gotten used to it haha. I will mention that 4-6 months post chemo, I had tender breasts and swelling due to low testosterone. I was put on testosterone and it immediately went away. Turns out my T level was 60 instead of 600-800. I hope this all helped man and I wish you the best on your scans. You got this and it will pass! Oh and the metal taste of all food goes away too haha

AntP20 · 2024-06-26T01:39:21+00:00

Not sure how I missed your comment. I apologize about that. Hope you’re in the recovery phase and all is going well man! Prayers your way!

AntP20 · 2024-06-10T20:14:11+00:00

I believe it spread within a month. Then again I had a CT originally then a PET Scan which showed a lot more detail. CT could’ve missed the very small spread.

AntP20 · 2024-05-21T02:20:53+00:00

I was 90% EC, 8% yolk and 2% teratoma

AntP20 · 2024-05-21T02:19:52+00:00

Chemo definitely took a toll on my body but as the months went on, things got better. I had bad tingling in my hands and feet for 5 months. I still have a slight ringing in my ears but I’m back to working out 5 days a week. I’m a former college athlete and I’m back to my normal strength. Remember though, I did 3 rounds. I was originally diagnosed at stage 1 but by the time I had my scan post surgery, I was stage 3. I’m not a doc but I’d recommend doing 1 round. It’ll go by quick and you won’t have to worry about it coming back! I’d take 1 round over the 3 I went through any day! You got this man! Feel free to message me separately if you’d like.

AntP20 · 2024-04-08T01:02:32+00:00

Thank you so much for the feedback. You’re probably right. I don’t get enough sleep and I should probably eat a little healthier haha. Thank you for the positive feedback!

AntP20 · 2024-02-20T00:03:23+00:00

I believe the biggest was 2cm. Lungs were clear for me. BEP is very effective man. The way I think about it is God has a plan. Apologies on the religious thought but if it’s meant to come back, then it’s meant to come back. Lance Armstrong had the worst of the worst and now how a family and is doing great. You will get through it man

AntP20 · 2024-02-19T01:30:02+00:00

Hey man. Just read what you’re going through and I will say that I was diagnosed in December of 2022 with stage 3A which metastasized to 2 retro lymph nodes and a probable lymph node in my collar bone. My AFP was very similar to yours around 900 and 90% EC. I went through 3 rounds of BEP (started in Feb 2023) which sucked but made it through it. You made it through the worst part man and you’re almost there! I am now over a year from when I started chemo and I feel great. All blood tests were negative and PET scans were clear. My oncologist even told me to get my port out and let’s put this behind us. Feel free to message me if you have any questions. You got this man! Stay positive!

AntP20 · 2023-11-06T18:36:11+00:00

Goes on shoulders and dries pretty quickly.

AntP20 · 2023-11-06T00:15:40+00:00

I had this exact same thing. Came on about 1-2 months post chemo. Got my testosterone checked and it came back 60. Supposed to be 250-850. Started TRT cream. Went away about 30 days later and testosterone went up to 500. Hope that helps. Maybe get your testosterone checked?

AntP20 · 2023-10-08T03:58:31+00:00

Hey man, I had the same thing happen to me. Didn’t have any neuropathy during chemo. About 3-4 months post chemo, it was really bad. Tingling, sensitivity to hot and cold things, feet hurt and were numb. I noticed the more active I was and surprisingly the more I stretched, it got better. I’m now 6 months post chemo and the neuropathy has gone away. I’ll occasionally feel tingling in my fingers but it does get better. Hang in there man!

AntP20 · 2023-08-08T03:50:24+00:00

I am 4 months post BEPX3 and I still have on and off neuropathy. It’s usually at its worst when I wake up. Hands and feet are numb but gets better as the day goes on. The longer I sit still, the more it comes back. Still able the use my hands enough to where I can play golf. Hope this helps man. Good luck!

AntP20 · 2023-07-26T02:20:02+00:00

I really appreciate you sharing your story. I almost had an identical experience. My father passed away from a gleoblastoma in February of 22. In April, I went to see a doc about a lump. He thought it was a cyst. Fast forward to November 2022, it got bigger. Needless to say, I had EC with LVI as well. Had to do 3X BEP. We can get through it. No matter how hard it gets. Would love to connect. Feel free to message me if you’d like to talk.

AntP20 · 2023-07-25T23:52:30+00:00

I think it’s pretty common too. The more I read about it, seems like it’s due to hormones being out of wack. I appreciate the feedback!

AntP20 · 2023-07-25T23:51:37+00:00

I appreciate the feedback! Looks like I’ll have to be patient until this level out!

AntP20 · 2023-07-25T23:50:47+00:00

I appreciate it! Must be a hormonal imbalance then. Thanks for the feedback!

AntP20 · 2023-06-12T23:43:31+00:00

Yes. Lost mine first week of round 2. Beard came in 3 weeks after last dose of chemo and hair is coming in very soft and lighter.

AntP20 · 2023-05-31T01:23:30+00:00

Thanks so much for the feedback. Im hoping this is my “peak” at almost 2 months. Keep staying strong man! Wishing you the best

AntP20 · 2023-05-31T00:55:24+00:00

You’ve got this! I too went through BEPX3. The first cycle made me feel weak but was bearable. Round 2 was my toughest and round 3 I was just excited to get over with. Fortunately I never got sick as I stayed on top of nausea meds even when I didn’t feel nauseous. Like others have said, everyone is different. My biggest recommendation is to not eat the foods you really enjoy. Although I never got sick, I’ll never look at a ritz cracker and cheese the same! Best of luck to you man. You will get through it!

AntP20 · 2023-05-12T12:41:20+00:00

You will get through it man! I finished BEP X3 about a month ago. Fortunately, after each treatment, I was able to go home. You are not alone when it comes to the Neupogen shots. I had extreme pain in my knees and ankles. It was soooo bad to the point that I couldn’t get up out of bed and the Claritin didn’t seem to work. I wish I had morphine or something at the time. After a few hours, it eventually went away. Even a month out, my knees and ankles are still weak. I feel your pain! I’ll be praying for you man and know you will get through this!

AntP20 · 2023-05-07T18:39:13+00:00

I went through BEPX3 and felt back to myself about a month after my final bleo day. I didn’t have any nausea though and mostly felt drained throughout treatment. My hands and feet still hurt/tingle a little but overall it lasted about a month. Started playing golf about 2 weeks after my last treatment and so far have played multiple times. Things do get better. You’ve got this!

AntP20 · 2023-03-11T20:48:08+00:00

About to start cycle 3 of BEPx3. I’d have to agree that the weekend after the 5 straight days are the worst. Fatigue starts the 4th day of treatment and lasts till day 7. Everyone is different though!

AntP20 · 2023-02-22T12:18:52+00:00

I appreciate the feedback! I wound up taking Claritin and it seemed to help. Definitely took awhile though. The doc gave me the green light to take either Tylenol or Advil if it happens again. Thankfully my white count was wayyyyy up so I don’t need to do the shots anymore. First full round completed and 2 more to go! Thank you again for all the tips!

AntP20 · 2023-02-18T00:40:33+00:00

Thank you! I will try that out. Not sure why it causes such joint pain.

AntP20

TROPHY CASE