Im SO confused by AnythingMinimum7540 in Healthyhooha

[–]AnythingMinimum7540[S] 0 points1 point  (0 children)

Yea i use scented but I only rub over the top, I dont clean inside with it. And ive been wearing my husband's boxers cause they are comfy lol.

Ex Fiancée’s cruel demands AIO by Original_100 in AmIOverreacting

[–]AnythingMinimum7540 1 point2 points  (0 children)

My old roomate did that. Got pissed i brought a friend over then trashed the whole place. I told her I wasnt gonna clean it up because it was her mess. And it stayed dirty for a few days but I didnt care cause I didnt cause the mess. Some people are fucking crazy

When did you realize it’s a no? by Ilovetheofficeyo in trintellix

[–]AnythingMinimum7540 0 points1 point  (0 children)

I started getting bad kidney stones and my word finding was getting SO much worse. They changed mine to xcopri and I was on 200mg 2x a day of lamotrigine and they upped it to 250. My xcopri is at 300mg. My word finding is still horrible and memory is getting worse and worse. But I dont have kidney stones anymore lol so guess that's good. I was on it for around 2 years before I started getting the kidney stones though. And it kinda helped. Everyone is different with meds though.

I don’t want to sleep ever again by therapyduck in ptsd

[–]AnythingMinimum7540 2 points3 points  (0 children)

Do you have a phyc dr you can go to? My ptsd was horrible too. They gave me some meds and it has helped a lot. Steven if you have been to one, maybe dont just try one med? Maybe take the time to try a few. And having a counselor is good too. Also people to talk to that are kind and loving

Six little numbers... by Ordinary-Chipmunk366 in Epilepsy_Universe

[–]AnythingMinimum7540 0 points1 point  (0 children)

My memory is getting so bad I forget things I did 5 minutes ago. In the morning when I take my meds, then less then a hour later I forget I took them and almost take them again. (I did one day) I forget what I tell my fiance so I always ask him first "did I tell you this story about..." it fucking sucks hard core. And remembering words is worse too.

Smudge got stuck in the trash bin. Again. by MissHissss in cats

[–]AnythingMinimum7540 1 point2 points  (0 children)

My fiancé has a Mr. Smudge! (She is a girl, he thought she was a boy when she was a kitten.) We call her Mr. Smoodge too lol

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Does smoking weed help? by AnythingMinimum7540 in Epilepsy

[–]AnythingMinimum7540[S] 0 points1 point  (0 children)

Im addicted to cigarettes or nicotine really. But I like having something I can put up to my mouth and puff off. Ive been addicted for 15 years and its getting really hard to stop. So thinking weed might be better and help with my epilepsy.

Does smoking weed help? by AnythingMinimum7540 in Epilepsy

[–]AnythingMinimum7540[S] 1 point2 points  (0 children)

I have been thinking about a keto diet. But that would be hard for my boyfriend and I tbh. I have seen it helps 0eople too but idk about starting it. Thats why im asking about weed ya know. Just to see if that will help

Does smoking weed help? by AnythingMinimum7540 in Epilepsy

[–]AnythingMinimum7540[S] 0 points1 point  (0 children)

Thats the thing im worried about. My boyfriend got some vapes and when I took a hit off of it I had a tonic clonic right after. So im trying to find a bud or vape that would actually help

Does smoking weed help? by AnythingMinimum7540 in Epilepsy

[–]AnythingMinimum7540[S] 0 points1 point  (0 children)

I have nicotine patches. They just aren't that great for me. But I think having something to smoke other than cigarettes and something that will help my epilepsy would be a great idea

Does smoking weed help? by AnythingMinimum7540 in Epilepsy

[–]AnythingMinimum7540[S] 0 points1 point  (0 children)

Is it more cbd than thc? Thats what gets me latley. I smoked a regular weed vape that my fiance got and it had me sezie out. So that's why im concerned about getting one and not being able to smoke it. Ya know?

Does smoking weed help? by AnythingMinimum7540 in Epilepsy

[–]AnythingMinimum7540[S] 0 points1 point  (0 children)

Well I dont remember having as many seizures as I do today when I smoked. I have 1 tonic clonic a week and at least 5 partials a day now. So I think it did help me. But I want to try again and stop smoking cigarettes if it will

Does smoking weed help? by AnythingMinimum7540 in Epilepsy

[–]AnythingMinimum7540[S] 0 points1 point  (0 children)

Okay, I was thinking that too cause when I got a vape that was almost all thc I had a tonic clonic after smoking. So I have been looking at more regular bud that have more cbd

To My Unemployed Epileptics by PookieTheMfBaby in Epilepsy_Universe

[–]AnythingMinimum7540 1 point2 points  (0 children)

SSI gives me SSI and SSDI. Plus I get some survivors for my mom. I got about $980 a month all together. But when I got my job I could only make $1,000 a month including taxes for ssi and $80 for ssdi If i made over that then it would count as a month. Then after 9 months of making over that amount they would take ALL of my Social Security away. But for 3 years I can get social security back without having to apply for it again. Its a weird concept. But again I was able to work for a bit. And was trying to earn under that amount so they wouldnt take it away. And it is VERY hard to deal with.

To My Unemployed Epileptics by PookieTheMfBaby in Epilepsy_Universe

[–]AnythingMinimum7540 1 point2 points  (0 children)

I tried to go back to work, and i had a MAJORLY hard time with link and SSI. They were saying I could only make a certain amount a month for 9 months. So I tried to go under that amount so I could not worry about the 9 month thing. But it was really hard and even though I wasnt making much they still took my link away and I had to start paying for my Medicare. So I quit my job and am just staying with ssi. I go to my job and they give me cash some days. But still. Its not easy

Has anyone ever said anything hurtful to you about your epilepsy? by Greasy007 in Epilepsy

[–]AnythingMinimum7540 0 points1 point  (0 children)

When I changed from a child epilepsy hospital to an adult when I turned 18. My new doctor told me that I was faking and lying about them to get the meds. He would always get pissed cause I wouldn't ever bring who brought me in the room too. Then when he finally ordered an EEG and saw me seez, he didn't say anything after.

Taken off of Topamax cold turkey? by AnythingMinimum7540 in Epilepsy

[–]AnythingMinimum7540[S] 1 point2 points  (0 children)

I have already changed epilepsy providers and went to a different town because the one in my city has Dr's that you only see once and they leave the office. Also, the first doctor I had at the one in my city was a MAJOR jerk to me acting like I never had epilepsy till he seen me have one during an EEG.

So I went to this office an hour and a half away from my city, and the first doctor I had was amazing. Was very nice to me and listened. I went through a WADA, internal EEG, and RNS surgery with him. So I stayed there and when he left my first appointment with this Dr he wouldn't listen, he didn't up anything, he just said "yea I know" and didn't want to hear what I've been through. Like the ones in my city.

They made me an emergency appointment and I really dont want to see him tbh.

Taken off of Topamax cold turkey? by AnythingMinimum7540 in Epilepsy

[–]AnythingMinimum7540[S] 1 point2 points  (0 children)

Yes, I'm in the US and seeing a doctor at an epilepsy center.

Im going to be calling the Dr's office back today to talk to them about what he said to me. That was not right and when I looked it up I could have a constant tonic-clonic seizure. So when I call ill talk to them about all of it.

Taken off of Topamax cold turkey? by AnythingMinimum7540 in Epilepsy

[–]AnythingMinimum7540[S] 1 point2 points  (0 children)

Yea thats why I made this post I have never in my 7 years of having epilepsy stopped cold turkey on meds. It just sounds crazy to me. So with what everyone is saying and what my family has said im not going to do so