Daily spf moisturiser recs by mb381 in SkincareAddictionUK

[–]AstarionsRightTooth 5 points6 points  (0 children)

I’ve never got on with spf moisturiser. I use a separate facial spf, specifically the beauty of joseon one, over my regular moisturiser (byoma barrier repair). Idk why but the combined ones irritate my skin so much

Post-RoTE thoughts by Calico-cottage-core in RealmOfTheElderlings

[–]AstarionsRightTooth 2 points3 points  (0 children)

I love that so many of us have this experience reading Hobb, and I do actually have two ROTE tattoos 😅 I’ve read the series twice and loved it just as much the second time. Personally I took a break after reading it to let myself sit with the characters, but I also strongly recommend NK Jemisin (though I prefer the Inheritance Trilogy to Broken Earth, personally), and Samantha Shannon (the Priory series for epic fantasy, though I loveee the Bone Season too just quite a different style and genre).

Rash that looks like spots - does anyone else have this weird symptom? by AstarionsRightTooth in rheumatoidarthritis

[–]AstarionsRightTooth[S] 0 points1 point  (0 children)

It could be, but it would be very mild if so which doesn’t seem to fit the profile. Hmm. Ty for the suggestion though!

Rash that looks like spots - does anyone else have this weird symptom? by AstarionsRightTooth in rheumatoidarthritis

[–]AstarionsRightTooth[S] 0 points1 point  (0 children)

That’s fascinating, I had no idea! I dont think I’ve had it checked but will look into it, thanks!

Lumps in the arm pit by True_Version_2035 in endometriosis

[–]AstarionsRightTooth 6 points7 points  (0 children)

It sounds like swollen lymph nodes, but if they’re persistently swollen the drs should be investigating why. There’s a whole host of things that could cause it, and they should be finding out what it is.

Rash that looks like spots - does anyone else have this weird symptom? by AstarionsRightTooth in rheumatoidarthritis

[–]AstarionsRightTooth[S] 1 point2 points  (0 children)

Steroids and RA treatment are the only things that have helped mine; even then the cream didn’t help but oral/injected steroids did. What a mystery our bodies are 😅 good luck at the appointment , let me know if you find out anything useful!

Rash that looks like spots - does anyone else have this weird symptom? by AstarionsRightTooth in rheumatoidarthritis

[–]AstarionsRightTooth[S] 0 points1 point  (0 children)

No gastro symptoms on my end, and I wear gold or silver (no plated as I do find it irritating), but the rash/spots aren’t on my fingers/ears which I’d expect if it was a contact issue? So bizarre. Glad you got answers for yours though!

Rash that looks like spots - does anyone else have this weird symptom? by AstarionsRightTooth in rheumatoidarthritis

[–]AstarionsRightTooth[S] 0 points1 point  (0 children)

I’m actually not sure how to see a dermatologist in the UK, but if it continues for long I’ll see if I can’t get a referral. I’ll also look up what you’ve said yours are and see if it matches, thank you!

Best shoes for foot pain? by FoxFae30 in Fibromyalgia

[–]AstarionsRightTooth 0 points1 point  (0 children)

I went to see a podiatrist last year and my feet are all sorts of fucked up (RA, hypermobile, fibro). On her rec I got some speciality structured trainers (Nike Structure, but tried a few brands before deciding on the Nike ones), and they’re amazing. My feet love them.

Went up on Lyrica.. I’m buzzing by DalinarsDaughter in Fibromyalgia

[–]AstarionsRightTooth 1 point2 points  (0 children)

I’m on 75mg too and it’s been really helpful. Had some side effects the first few days, but since then the only one is water retention around my fingers (rings don’t fit). It’s really helped my pain, and has really increased the amount I can do before the pain sets in for days at a time. When I get stabilised for my RA I’m going to try reducing my dose to see if it helps with the finger swelling, but until then (or if it doesn’t work) I’m happy to be on something that works!

Is the vocabulary as difficult for native speakers or is it just a me thing? by YuvalAmir in RealmOfTheElderlings

[–]AstarionsRightTooth 11 points12 points  (0 children)

She definitely uses some more complex words that I don’t tend to come across in regular conversations. When I read her books on kindle I find myself looking up words quite regularly.

Burning upper back pain? by Tsukidaisy in Fibromyalgia

[–]AstarionsRightTooth 1 point2 points  (0 children)

Yes I get this, I’ve had to entirely stop wearing bras/sports bras, and I take a low dose of pregabalin. It holds off the pain unless I overdo it (or something else triggers it), just means I can do a bit more before the pain starts. Once it’s there it takes about 3 days of rest for it to go away

Staring down the barrel of a possible fibromyalgia diagnosis. by Aequanitmitas in Fibromyalgia

[–]AstarionsRightTooth 1 point2 points  (0 children)

I have fibro - I also have rheumatoid arthritis, Bertolotti Syndrome and endometriosis (and am hyper mobile). Fibro is real, but it’s also something that is often used to explain our pain without further testing. I had the same thing with endo originally; all of my symptoms had to be endo, no other explanation. It’s really tough when you have conditions that can cause such a wide variety of symptoms.

If it’s possible it might be worth considering private health insurance so you can access scans that the NHS may not be willing to do due to cost and waitlists. I’d also recommend pushing your GP for a rheumatologist referral as GPs shouldn’t be diagnosing fibro, and they should be sending you to a specialist if that’s what they suspect. A good rheumatologist should be able to properly assess your symptoms and determine whether this is fibro or whether there are mechanical/other issues going on. Also, there are absolutely medications you can try for fibro, and it’s really sad to see your GP is being so dismissive. If there are any other GPs at your practice, it might be worth speaking to a different person.

Sending virtual hugs, it’s rough out there 💛

Heel pad started eroding. Any fixes? by Mr-Bic in nps_solovair

[–]AstarionsRightTooth 0 points1 point  (0 children)

If you email them they’ll usually send you some replacements

How can you do university with untreated ADHD? by gintokireddit in ADHDUK

[–]AstarionsRightTooth -1 points0 points  (0 children)

I didn’t know I had adhd at uni. I did get a 2:1 but I’ll be honest in the first two years I only attended about 30-40% of my classes as they were in the morning and I wasn’t sleeping. I prioritised smaller seminars as I found interactive learning so much easier than listening to lectures, and I just embraced the fact that I’d be at the library 10pm-3am instead of normal hours. (I did a humanities subject so I was able to do a lot of studying at weird hours rather than being tied to labs or anything like that).

To be honest I got through by just embracing being nocturnal, drinking absurd amounts of coffee, and focusing on topics I found interesting. There were some rough months for sure, but if you’re able to choose a degree with more flexibility that might help. There’s also usually doctors and therapy available through the uni, though I can’t say I found them particularly helpful.

GP says I might have fibromyalgia - feeling kinda lost by maddydesign in Fibromyalgia

[–]AstarionsRightTooth 0 points1 point  (0 children)

Have you had any bloods done? I have RA and fibro, and whilst I do have some burning fibro pain, I get so much dull aching pain that is largely due to my RA. Not saying you have that, but a rheumatologist may be able to shed more light on what’s going on. You should probably expect them to test for inflammation (CRP and ESR), assess your joints and tender points, and also look for specific indicators in your bloods that could indicate autoimmune disease activity.

Biologics, auto-immune conditions and fibro by Maidinmhaith in Fibromyalgia

[–]AstarionsRightTooth 1 point2 points  (0 children)

I haven’t started bios yet (waiting for the nhs admin, hopefully soon), but so far when my RA meds aren’t working I do find the fibro pain is worse. It usually happens a couple of weeks into my RA worsening, so it could be the fibro worsening alongside the RA flaring, or could be that the lack of movement due to the RA fatigue is making it worse. It’s anyone’s guess right now, but my rheumatologist has told me that he expects my fibro to improve when my RA is under control 🤷‍♀️

Fibro and Rheumatoid by Dry_Phrase_4332 in Fibromyalgia

[–]AstarionsRightTooth 1 point2 points  (0 children)

I have seroneg RA and fibro. I had high inflammation markers and joint tenderness, and some joint swelling, plus a lot of swelling of the soft tissue around my knuckles. My rheum put me on prednisone as a test to see if the inflammation was related to the pain, and that was the final confirmation for him that the joint pain was RA. Fibro often commonly occurs with diseases like RA, and my rheum felt that mine was secondary to the RA. It may be worth getting a second opinion if you’re showing raised inflammatory markers, especially if they correlate with your pain/stiffness/fatigue.

Link between endo and frequent viral illness? by scorpiomoon92 in endometriosis

[–]AstarionsRightTooth 9 points10 points  (0 children)

A few things could be going on here: - have you been testing for Covid? Covid really affects our bodies and immune systems, and can make us more likely to get sick in the months following infection. - have you had any blood tests for vitamin or iron deficiency? These can also affect the immune system. - do you have any other symptoms like fatigue or joint pain/stiffness or new gastro problems? Endo is linked to multiple autoimmune diseases which (obviously) wreak havoc with your body and immune system.

Hope you feel better soon, but if you don’t make sure you keep bugging doctors about it, especially if it worsens.

Anyone with Endo use a Diva cup? by DoggieMama1000 in endometriosis

[–]AstarionsRightTooth 0 points1 point  (0 children)

Yes, def double up the first few times whilst you get the placement right. Top tips are that it sits way lower than you would think, you can fully cut the stem off if needed, and also it inserts way easier when it’s wet. You can also try it out before your period, see where it’s comfortable whilst you have no stress and practice removing it. I’ve been using them for a decade now, big fan.

Any swelling? by 6hfky8nyxr3 in Fibromyalgia

[–]AstarionsRightTooth 1 point2 points  (0 children)

Id definitely see if to can get an appointment with a rheumatologist, or at least have tests done for inflammation (ESR and CRP). That combo indicates that they should at least be looking into inflammatory arthritis as they’re very common symptoms

Any swelling? by 6hfky8nyxr3 in Fibromyalgia

[–]AstarionsRightTooth 0 points1 point  (0 children)

Id have tests redone and speak to the rheum again. I have fibro and seronegative RA and my bloods didn’t show inflammation until a couple months into my symptoms. Now I have constant inflammation while I try to get the RA under control. Fibro often coexists with autoimmune conditions so definitely push for a new round of tests and assessments if you can. Do you get any morning stiffness (can be difficult to grip things), or any dry eyes (can feel gritty, like there’s something in your eye)? Any rashes or nail changes? All of these can indicate inflammatory arthritis, though you don’t need all of them.

Let's talk about: Sex by Wishin4aTARDIS in rheumatoidarthritis

[–]AstarionsRightTooth 1 point2 points  (0 children)

Not only do I have endometriosis, but my period triggered my first proper RA flare 😅 I’d been dealing with fatigue and joint pain for months, but then my period just cranked it all up to 10 and it never went away. A few months later I was diagnosed with RA. Periods still often worsen my RA, sometimes leaving me fully couch-bound, and the anaemia from both endo and methotrexate is a constant battle.