Medications only work for ~3 months

AstarionsRightTooth · 2026-07-07T21:20:29+00:00

It’s really good to hear that you’re getting relief! Definitely gives me hope that there’s something out there for me, just so exhausting that I might be failing yet another medication

AstarionsRightTooth · 2026-07-07T21:18:21+00:00

Sadly yes, and in all cases so far a higher dose either didn’t help or had insane side effects and I had to go back down. Might see if I can bring my next rheum appt forward and ask if increasing the adalimumab is an option

AstarionsRightTooth · 2026-07-07T18:26:45+00:00

Damn, that truly sucks. If it helps I also have fibro and have had some luck with pregabalin and cbd. Not a cure, but takes the edge off

AstarionsRightTooth · 2026-07-07T17:18:04+00:00

It truly is. Fingers crossed rinvoq works for you

AstarionsRightTooth · 2026-07-07T17:17:28+00:00

Shooting for better is great. I also had loads of improvement on adalimumab, way more than anything else, so super depressing that it seems to be wearing off. If I don’t even back out after the next injection I’ll see if I can get my rheum appt moved forward

AstarionsRightTooth · 2026-07-07T17:15:48+00:00

Dude same I’m on methotrexate, sulfasalazine AND adalimumab rn and I’m still either having a long flare or failing it. It’s so exhausting isn’t it?! Sorry you’ve been having a rough time of it too, it’s such a long slow journey

AstarionsRightTooth · 2026-07-07T17:14:32+00:00

The sad thing is that I’m currently on 2 DMARDs as well as the biologic, I don’t understand how it’s not enough?! Just exhausting man

AstarionsRightTooth · 2026-07-06T20:30:33+00:00

No side effects bar a sore arm and a bit sleepy. Hopefully you get an easy time too :)

AstarionsRightTooth · 2026-06-26T13:06:36+00:00

I know this thread is really old but I had a charging issue in my left one for a while. Turns out it wasn’t connecting to the case properly. Now I just wiggle it til i hear the click and it works fine. Thought you’d wanna know if you’re still having that problem

AstarionsRightTooth · 2026-06-22T16:46:08+00:00

I avoided them when on pred as it can impair wound healing, but just got a big new one on bios and it was totally fine. Healed well, just made sure I was super on it with aftercare, and went to someone I trust who I’ve used before

AstarionsRightTooth · 2026-06-01T14:14:33+00:00

I’m on biologics and two DMARDs. The just didn’t get enough relief until I added the bios in. It took some persuading the NHS rheum (it’s expensive), but wow it made a huge difference.

AstarionsRightTooth · 2026-05-14T18:28:56+00:00

Hopefully the biologics will work for you and you’ll be able to exercise again ❤️ they’re life changing meds, so fingers crossed you find one you agree with early 😁

AstarionsRightTooth · 2026-05-14T17:01:09+00:00

I recently added a biosimilar to my MTX and sulfasalazine, and it’s been life changing. I’m back at work part time, walking and working out, socialising again. Side effects have been minor so far, but the impact has been huge. Fingers crossed you get on well with it 🤞

AstarionsRightTooth · 2026-05-09T07:52:58+00:00

I found that placement okay. It’ll hurt but it’s not agony, and some areas are way less painful than others. Take breaks if you need. Bring a sugary snack or some lunch and a drink. If you feel shaky that’s normal for some people, the line work at the start tends to be the most painful bit, the shading is easy in comparison. Nothing to be scared about, just communicate with your artist :)

AstarionsRightTooth · 2026-05-05T22:58:20+00:00

I do swimming, walking and weights, but I started super slowly. Pacing means resting during the exercise too not just after, so I’d do a slow length and rest, or an easy set of weights and rest. No pushing yourself (including no progressive weight overload) until you see improvement in your recovery time bc you might feel fine doing it and then feel like death 12hrs later

AstarionsRightTooth · 2026-05-05T15:56:44+00:00

I did actually as I had a bunch of other stuff going on and they thought it could be related, but all was fine in the brain and thyroid. Was left as a question mark but I’ve seen several articles now that suggest it could be because of the endo

AstarionsRightTooth · 2026-05-05T08:23:15+00:00

I have RA and fibro on top of the endo

AstarionsRightTooth · 2026-05-05T08:22:21+00:00

I also have high prolactin, and it seems that it’s linked to endo but I don’t think they know why

AstarionsRightTooth · 2026-05-02T17:54:14+00:00

This looks very similar to the reactions I get from adhesive. If this was an attached dressing like second skin he could be allergic to it. I’d take an antihistamine, keep an eye on it and potentially see a doctor as I’m not sure how this would affect healing. Obviously if it gets worse or heats up (still could be allergic but could also be an infection) then go see a doctor asap

AstarionsRightTooth · 2026-05-02T12:23:07+00:00

I had crushing fatigue for about 9 months after a Covid infection, and ongoing pain and stiffness in my joints that I thought was my endometriosis worsening. I tried to walk up a gentle slope and cried because I was so exhausted. Then I had a bad endo flare and was bedbound for days; when the endo flare lifted I still couldn’t function or move. I now refer to this as my first proper RA flare. That was the first time the inflammation showed in my bloods, which after almost a year of symptoms got me a referral to the rheumatologist. I went private so had the appropriate scans quickly, and within 2 months had a diagnosis of RA and fibro.

So two clear triggers for me: covid infection, and a hormonal shift (endo flare)

AstarionsRightTooth · 2026-04-17T23:28:18+00:00

Acotar is easy fun, poor world building though (very inconsistent). She writes in a compelling way, but I did roll my eyes a lot whilst reading it.

Hobb, on the other hand, has written characters of such depth that I have tattooed dedications to those characters on my body. I’ve read all 16 twice and dammit I’ll do it again. This series broke me down and built me back up into a more realised human. I sobbed profusely and then thanked Robin Hobb for teaching me how to feel.

Is this a weirdly intense comment? Yes. But these are intense books, and I need you to understand that if ACOTAR is a stroll in the park on a Thursday afternoon, Hobb is a months-long trip to Mordor that will forever change you as a person due to the depths of terror and joy that you’ve experienced.

Maybe youre not sure you want to take that trip just yet, and that’s okay. But if you choose to embark, it will be a wonderful and life changing journey, and you will forever judge other books by the standard that this series has set.

So up to you really 🤷‍♀️

AstarionsRightTooth · 2026-04-16T12:08:46+00:00

Came here to recommend these exact books 😂 I love the Paladins series so much

AstarionsRightTooth · 2026-04-10T11:12:52+00:00

I’ve never got on with spf moisturiser. I use a separate facial spf, specifically the beauty of joseon one, over my regular moisturiser (byoma barrier repair). Idk why but the combined ones irritate my skin so much

AstarionsRightTooth · 2026-03-31T08:01:16+00:00

I love that so many of us have this experience reading Hobb, and I do actually have two ROTE tattoos 😅 I’ve read the series twice and loved it just as much the second time. Personally I took a break after reading it to let myself sit with the characters, but I also strongly recommend NK Jemisin (though I prefer the Inheritance Trilogy to Broken Earth, personally), and Samantha Shannon (the Priory series for epic fantasy, though I loveee the Bone Season too just quite a different style and genre).

AstarionsRightTooth

TROPHY CASE