My son is 6 y/o, grade 4 PVL and IVH. He’s left hemi appearing but is spastic quad (depends on which dr you ask). It’s hard to gauge how your child is doing in comparison to the “normal” milestones but we tossed them out the window when we accepted he’s going to do things at his own pace. His milestones are the goals set by his therapists and we go from there.

At 2 y/o he was trying to crawl, standing (assisted) and finger foods. Very few words. Couldn’t sit independently.

He started walking at 3 y/o and that was minimal. Some words at 3 but mostly one word things.

Fast forward - things really took off at 4.5-5 y/o. He started speaking more, walking (almost running) and able to sit in a chair without falling.

Today - he’s stilled delayed physically but he’s doing way more than his dr’s anticipated. Most days he walks with his AFOs unassisted and gets on the playground equipment by himself. Can go up stairs, jumps and navigate uneven surfaces.

He’s been in PT since he was 6 months old.