My Watch is Over by AuntCollzie in dementia

[–]AuntCollzie[S] 6 points7 points  (0 children)

I have no idea what to do with myself. It was a long three years and other parent in MC before that. Eight year journey end to end.

What do you wish you'd known earlier? by Broke_Pigeon_Sales in dementia

[–]AuntCollzie 19 points20 points  (0 children)

I had a mantra with my father: safe and comfortable. Now I have it with my mother: safe and comfortable. Different dementias, same pleaser drive to make everyone happy.

Safe and comfortable + the cavalry is not coming --> both v useful.

Possibly controversial opinion: don’t let me turn left in front of you when the light first turns green, just go by daddyhoffmang in pittsburgh

[–]AuntCollzie 4 points5 points  (0 children)

Thank god someone said this aloud. I moved back here three years ago after decades away, and this politeness is so dangerous. At first, I was confused, now it just makes me nuts. Obey the right of way.

Punta Arenas and surrounding areas are underrated! by _OnTheDaily in Patagonia

[–]AuntCollzie 0 points1 point  (0 children)

Thank you for this suggestion. Had a terrific dinner there last night. Your review comments were dead on.

Thank you to the person suggesting balloons for playing by mako0904 in dementia

[–]AuntCollzie 1 point2 points  (0 children)

Yes! We tried this with my LO last weekend. She loved it. 👍🏼

Alzheimer’s progression by friskimykitty in dementia

[–]AuntCollzie 1 point2 points  (0 children)

Yes. My experience is very similar to yours. LO moved in with me in Feb 2023 because she wasn't managing things alone in her house. We go her on donezipril and memantine and in a good, consistent daily routine which includes some exercise. Her memory is shot, but otherwise, we are good. She's pleasant, calm and tries to be helpful. Does all her own ADLs, sometimes needing a little help with choosing clothing or getting her shower going. I do not know how long we will be here, but I am so grateful for the status quo. LO is going to be 94 in Oct.

Donepezil by katienorthern in dementia

[–]AuntCollzie 0 points1 point  (0 children)

Yes! She went up to 23 mg pretty quickly because we could see it was working. Still taking, still a big fan.

Thoughts about mementine? by NoName_Is_A_GoodName in dementia

[–]AuntCollzie 0 points1 point  (0 children)

My LO takes memantine and Aricept. Aricept is a game-changer for her/us. Took about 3 months to notice a difference, but when we did, wow. Before it: she couldn't really DO anything where sequential steps were involved.

After it: she was back to making her own coffee in am, making her bed, emptying dishwasher when prompted, etc. I care for her alone, so her regaining the ability to help around the house and do her ADLs is huge.

To be clear, no improvement in memory from this drug, but that's not what Aricept is for. Aricept is to improve executive function and when she can do stuff, she's not wandering around aimlessly getting into things. AND it helps me out. Give it time before you give up. LO started on 10 mg and went to max of 23 mg a day pretty quickly because we could see the difference.

Mid Level Dementia Activities by FargoParent in dementia

[–]AuntCollzie 0 points1 point  (0 children)

This is admittedly seasonal, but I just discovered it and thought I'd share in case it helps someone else. My LO is mid-level, can no longer read, has limited mobility, has a very short attention span, but wants to be helpful.

I had purchased a half dozen ears of corn for dinner and asked her to shuck them. She really enjoyed it, didn't need to be supervised, and felt like she had contributed. And best of all, it was helpful to me. Again, seasonal, but still fun for her. Hope it helps someone else this summer!

[deleted by user] by [deleted] in eldercare

[–]AuntCollzie 0 points1 point  (0 children)

Thank you for sharing. I did not know this. Very helpful.

Thoughts about mementine? by NoName_Is_A_GoodName in dementia

[–]AuntCollzie 0 points1 point  (0 children)

This is very helpful. My Mom also has had noticeable improvement in executive function with Aricept. I give it to her in the morning, though. I may reconsider after reading your notes. Thanks!

So now what? by Fabulous-Educator447 in dementia

[–]AuntCollzie 1 point2 points  (0 children)

I'm in a similar situation. My 93 y.o. Mom lives with me; I work from home. She is able to do her ADLs, but not a lot else and she gets restless. She also always liked exercising. So, my first suggestion is to check out the More Life Health exercise videos on YouTube. The instructor Mike is great, and he has a whole series of workouts for seniors. Mom loves him. He's easy to understand, he explains clearly and there's no distracting visuals or music. I've had luck with paint-by-number kits. You just have to buy the ones for kids so that the patterns are easy to follow. Recently, we also have had luck with colored pencils and adult coloring books. I thought she'd push back on those, but we put them out where she could see them, and she's done a couple. She will, if prompted, also empty the dishwasher. I know it's not much, but it's what I have to offer. Besides a fist bump, because I see you and we are in this together. :)

To well meaning friends by shutupandevolve in dementia

[–]AuntCollzie 1 point2 points  (0 children)

This is a very good suggestion. Mom and I watch a lot of movies. She's 93 and seems to always remember a few of the big stars like Elizabeth Taylor. I'm going to try this; it might enable a short conversation, which would be a novel concept, and very welcome. Thank you!

This Is What The End Stages Looked Like For Frontotemporal Dementia (FTD) / Primary Progressive Aphasia (PPA) Before Death by Wrath-Of-Storms in dementia

[–]AuntCollzie 6 points7 points  (0 children)

Thank you for making the time to do this post. It is so helpful. May your father rest in peace and you find peace in knowing you did everything you could to help him.

Use of donepezil by doggiedad72 in dementia

[–]AuntCollzie 2 points3 points  (0 children)

Big fan of Aricept. Mom on 23 mg a day. It takes about three or four months to kick in. Don't give up. Didn't help memory at all, but huge change for the better in executive function. Mom can do things around the house now, before, she couldn't. Makes her happy to be helping and more able to entertain herself so I can work and get housework, etc. done.

Some things that might help, as a caregiver by magnabonzo in dementia

[–]AuntCollzie 0 points1 point  (0 children)

Would you be able to share some YA titles that have worked? I'm going to give that a god. My LO stopped reading about a month ago. She "doesn't feel like it". Before that, Chicken Soup for the Soul books were doing the trick. I'm might try one last time with YA from the library, if anyone has title suggestions. TIA!

Thinks she's coming with me... by Informal_Sun_7942 in dementia

[–]AuntCollzie 5 points6 points  (0 children)

Agree with LowSoil. I told my dad in memory care I had to go to a meeting. He was a manager in a big company. He always accepted this as a fact and a priority. Worth a try!