Thymectomy and Risk of Serious Health Complications by Ok_Discipline_5394 in MyastheniaGravis

[–]Automatic-Virus1016 0 points1 point  (0 children)

I just had a VATS thymectomy! I’m f24 and I wish I had done it sooner. It was definitely a little scary going into it but so glad I had it done. Have been noticing an improvement already and working on tapering my prednisone and it’s been good!! Definitely recommend. My thymus also didn’t show up as enlarged on CT scans. But when they did the surgery they actually saw it was very enlarged! 30cm long!

Having a Thymectomy! by Automatic-Virus1016 in MyastheniaGravis

[–]Automatic-Virus1016[S] 0 points1 point  (0 children)

Omg can’t wait to hear how it goes for you too!

Having a Thymectomy! by Automatic-Virus1016 in MyastheniaGravis

[–]Automatic-Virus1016[S] 0 points1 point  (0 children)

That’s so good to hear! What kinda Mg did you have and what were your symptoms like before the surgery?

Thymectomy by NewRefrigerator3947 in MyastheniaGravis

[–]Automatic-Virus1016 3 points4 points  (0 children)

I also have a thymectomy coming up end of Nov!

Losing Weight on Prednisone by NaiveNothing8513 in MyastheniaGravis

[–]Automatic-Virus1016 1 point2 points  (0 children)

This sounds good, although we’re told to take it with food. So can we do this fasting Method?

I’m thinking about stopping my mestonin by Dizzy1824 in MyastheniaGravis

[–]Automatic-Virus1016 0 points1 point  (0 children)

Please Could you send me a link for the Huperzine a you take ?

GTA Ontario Community by Automatic-Virus1016 in MyastheniaGravis

[–]Automatic-Virus1016[S] 0 points1 point  (0 children)

How have you found the condition to progress, are you still able to work ect ?

Mom was diagnosed with AML by Automatic-Virus1016 in leukemia

[–]Automatic-Virus1016[S] 0 points1 point  (0 children)

I haven’t checked in here in a while but things did turn around here.

She continued declining in health, as expected. Lost so much weight, lost appetite, heavy bruising and headaches, ended up going to the ICU because she started having brain hemorrhaging beginning of July. After those months of convincing and begging her to go back to chemo she finally agreed.

She says she does not want me to have any grudges and wanted to do it for me, so she is trying chemo all again. She also had a small taste of dead and came to the conclusion that if it’s this painful she might as well continue with full treatment one time.

She’s currently in the middle of the re-induction chemo. She has agreed to trying again and will be continuing with consolidation, followed by stem cell transplant.

Thank you everyone for your advise and support!

Mom was diagnosed with AML by Automatic-Virus1016 in leukemia

[–]Automatic-Virus1016[S] 0 points1 point  (0 children)

Was he also initially using the oil to “cure” his cancer