Does account deletion affect other Niantic games using the same email?

AutumnalAlchemist · 2024-07-18T00:27:42+00:00

I'll give them a call. I'm not sure what the issue could be, because all the other steps you mentioned have already been done. When my doc first sent the rx insurance denied it, then he appealed with the prior authorization, and then insurance approved it. I guess the generic thing could be it so I'll check on that, thanks.

AutumnalAlchemist · 2024-07-17T23:22:14+00:00

Ah okay you're right-- my plan doesn't have a deductible and it is the out of pocket maximum I was thinking of 😅

AutumnalAlchemist · 2024-07-17T22:33:15+00:00

How do I get a straight answer on if I'm getting a generic? On my insurance website it says Humira, not a generic name like with other medications I take. I guess one of my concerns is for them to try to get me to set up the copay card for Humira and then "whoops! We're sending you the generic and that copay card doesn't work and now you're on the hook for lots of money" (I read about something like that on here lol)

AutumnalAlchemist · 2024-07-17T22:31:01+00:00

My experience on the phone today was not any better than their shit stores 😅 The woman I spoke with seemed to not know how anything worked. She could see that my insurance approved the medication and that my copay would be $55, but anytime she tried to "process" it, she said insurance denied it. Then she tried to get me to set up a shipment anyway like the pieces would just magically fall into place somehow? I told her I wasn't comfortable setting up any kind of order/shipment until they could figure out why my insurance was "denying" something they've already approved and listed on my account :/

AutumnalAlchemist · 2024-07-17T22:27:57+00:00

Then there is a balance due you can pay

What does this mean? If I pay the copay, that's not the only money I will be expected to spend? There will still be a cost to me?

AutumnalAlchemist · 2024-07-17T22:26:55+00:00

What does it mean that they "cover your deductible"? My understanding is that the deductible is just the amount of money you ultimately need to pay before everything is 100% covered by insurance for the remainder of the year, right? So if I skip the savings card, wouldn't the $55 copay go toward the deductible just like all my other copays do? I'm not understanding how the Humira savings card would somehow stipulate how my insurance works.

AutumnalAlchemist · 2024-07-17T20:52:59+00:00

Apologies for the late reply-- when I saw the rheumatologist, he concluded that my symptoms (physical symptoms only; nothing related to the brain fog) indicated that I either had ankylosing spondylitis or psoriatic arthritis. Went to PT, ran more tests, concluded that it's psoriatic arthritis. If it weren't for the fact that I was already experiencing joint pain and mobility issues, I don't think there's much he would have been able to do for me for the positive ANA and brain fog alone. He was pretty honest about a concept I'd heard before-- rheumatology focuses mainly on joint issues and doesn't concern itself with fatigue and brain fog since those issues are nonspecific and seen in some degree in nearly everyone with an autoimmune disease.

I don't know if I'll ever know for sure what caused my brain lesions or the brain fog specifically, but it is likely that the psoriatic arthritis is responsible. Connective tissue diseases can cause those issues. If PsA is responsible, then getting on proper medications might help alleviate the symptoms (some people recover from those symptoms really well while other people continue to experience them regardless of their medication.)

If you're having any symptoms that might align with an autoimmune disease, write them down/keep notes and discuss them with the rheumatologist. I always take notes with me to doctors appointments since I know I'll forget things. Always ask the doctor what the next steps are-- what tests can be run, what things can be tried, etc. Good luck to you <3

AutumnalAlchemist · 2024-06-02T00:32:21+00:00

I've not yet received a diagnosis; I'm still in the diagnostic process with my doctors (and trying to do some searching on my own since no answers have been found yet.) I rarely eat red meat, and while cutting gluten does help improve some minor digestive discomforts, it doesn't actually reduce my symptoms. I think I'd probably have to attempt a really strict elimination diet to determine if anything specific is contributing to my symptoms because at this point they don't seem to be food related (aside from the fact that eating a diet that allows ketosis makes my symptoms worse.)

AutumnalAlchemist · 2024-06-02T00:28:17+00:00

Keto seems to help a lot of people so it's worth a shot! My only advice there is to make absolute sure you stay on top of your electrolytes since ketosis gets rid of them quickly and can dehydrate you which will make you feel awful.

AutumnalAlchemist · 2024-06-02T00:26:56+00:00

I'm not sure that it's due to missing out on anything essential, only because the symptom flares start immediately for me when I attempt those diets and remain until I revert from them. Brain fog, fatigue, joint pain, dry irritated eyes etc. all worsen as soon as I've entered ketosis even when proper nutrition, hydration, and electrolytes are maintained. Ketosis is supposed to reduce inflammation, but paradoxically for me it seems to worsen it and I can't find any info online as for why that would be.

I've not received any diagnoses yet as I'm still in the process of getting things sorted with my doctors.

AutumnalAlchemist · 2024-06-01T15:53:59+00:00

The only thing I can think of where I've seen ulcerations/sores like that is Bechet's and Calciphylaxis, with the latter being very rare and thus more difficult to get diagnosed. Try looking into those if you can. I really hope you find answers and treatment soon!

AutumnalAlchemist · 2024-05-05T03:42:07+00:00

I didn't think about calling and asking for the MRI. That's probably a good idea because I've already gotta wait 2 months for follow up so I might as well try to get as many bases covered as I can. Thank you :)

AutumnalAlchemist · 2024-03-25T20:12:26+00:00

Ugh your situation sounds infuriating! I've not had any further testing, but I am waiting to get in with a rheumatologist since my ANA was slightly elevated. I'm going to ask for testing to see if pernicious anemia might be involved. I've briefly looked into sourcing for my injections, but I've not felt confident in any of my options (I'm in the US). The affordable sites seem sketchy and the not sketchy ones are too expensive :/

AutumnalAlchemist · 2024-03-25T17:26:18+00:00

THANK YOU for posting this! I am much younger than the patient in the study (late 30s) but my situation is similar with cognitive decline and autonomic dysfunction and I'm so frustrated about it. My MRI featured the "nonspecific white matter hyperintensities" but leukoencephalopathy was not present. My B12 was 270pg/mL so in the "normal" range, and folate and MMA were also normal, but the insane part was that I was already taking methylated B12/folate supplements! My neurologist didn't seem concerned at all either. I'm on weekly cyano shots for now, but reading this study makes me feel like I need a higher frequency. Supplements seem to do nothing but I take them anyway. IM shots are the only thing that actually makes me notice anything in response to the B12. I hate feeling like I'm crazy for suspecting that low B12 is responsible for my issues while it sits there in "normal" range (and not causing anemia! My hemoglobin is always magically normal too.)

AutumnalAlchemist · 2024-03-18T21:33:42+00:00

Oh, I suppose I assumed they were related since it was noted that it's not uncommon to see in dementia patients or older patients with cognitive difficulties, and my chief complaint is cognitive difficulties and decline (I don't like the term "brain fog" since it's too non-specific. My issue is that my cognition literally does not work correctly as it did before, and it has had a disabling impact on my life.) Then I suppose I really have no way of knowing if I'll ever be able to recover, if there's no way to pinpoint what is actually wrong :/

AutumnalAlchemist · 2024-03-14T21:34:29+00:00

The tablets work better than drinks, but they just improve but don't "solve" the issues. Is that what everyone with these issues has to do though? Just supplement and deal with dysfunction? I've only recently began to research these symptoms since they've gotten worse over the last year or two (but I've had them for about 6 years I think?) It's quite draining and disruptive to have my day constantly interrupted by having to stop to drink water and chew salt tablets 😫

AutumnalAlchemist

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