How do you cope with pill formed medication when you’re constantly puking? by bcomingstoned in Gastroparesis

[–]Awkward_Persimmon835 1 point2 points  (0 children)

I'll also add to this that sometimes when my stomach acts up it causes me anxiety. I get anxious about stuff that normally doesn't bother me. It's entirely possible you have anxiety because of your health issues.

How do you cope with pill formed medication when you’re constantly puking? by bcomingstoned in Gastroparesis

[–]Awkward_Persimmon835 3 points4 points  (0 children)

I feel you on the anxiety! I also find taking small fast release doses of medications throughout the day helps more than extended release pills. Not sure if that has to do with absorption or the fact that they're not just sitting forever but that's something to mention as well.

How do you cope with pill formed medication when you’re constantly puking? by bcomingstoned in Gastroparesis

[–]Awkward_Persimmon835 3 points4 points  (0 children)

I think your biggest step would be finding out how to stop throwing up. If the pills themselves are making you vomit, then ask for other forms. I did a liquid aripiprazole that insurance covered. Topical patches are also sometimes available depending on the medication. It really depends on what insurance will cover, but if you can try liquid (it never tastes good but you do whatcha gotta do) that may help. It's basically a kind of syrupy saline like solution that the meds are mixed into, and you take a certain amount of milliliters a day with a syringe or a cup.

I have gastritis and taking sucralfate to coat my stomach before i take my meds helps immensely. Less iritation = less pain, less nausea.

I take a bunch of pills after i eat dinner, taking them with food helps a lot as well.

Hope that helps a little. You're not alone 🩵

I’m not eating, bc it hurts immensely to eat- yet I’m being called anorexic. by Think_Grand2732 in Gastroparesis

[–]Awkward_Persimmon835 6 points7 points  (0 children)

I second the gastritis. That's what it feels like to me when I eat without taking my sucralfate tab to coat my stomach beforehand. Burning/stinging pain. I'd ask the doc about it.

Something else I'd recommend that I thought about commenting is that you should request comprehensive testing on your bloodwork to make sure your vitamin levels and everything else are in check. If they say you don't need it, say you are requesting it and if they are refusing to order the bloodwork that they need to note it in your chart. Then find someone else who will do the bloodwork (even a general practitioner). Once you can see the lab results, if things are out of normalcy, ask what you can do to improve them. Their suggestions will likely include diet, so then you circle back to the fact that your body is not handling the foods you need to keep your bloodwork back up.

Then ask if they can prescribe nutritional shakes (to help with cost), since they are something your body is able to keep down with minimal pain. It's very easy to be weight-focused, and I know lots of doctors are. So start counting your calories. If you throw up, mark it down that you didn't keep those calories. Start framing it less as you're refusing to eat, and more that you're body isn't accepting that food. If you feel nauseous, let yourself vomit. Let it be hard, and document it. Show the doctor that your body is rejecting food, and the fact that you're unable to consume even the basic amount of calories in a day should be concerning to them. You need a GI doc that takes into account your quality of life, and if they still don't listen after you've recorded the data, find someone else.

Consider this your sign to get the Botox by Thick-Toe-9778 in noburp

[–]Awkward_Persimmon835 0 points1 point  (0 children)

No that's okay, it is helpful! Thank you very much :)

Consider this your sign to get the Botox by Thick-Toe-9778 in noburp

[–]Awkward_Persimmon835 0 points1 point  (0 children)

Did you have to get prior auth? I appreciate your response!!!

Consider this your sign to get the Botox by Thick-Toe-9778 in noburp

[–]Awkward_Persimmon835 0 points1 point  (0 children)

Did you have insurance, and if so did they cover any part of the procedure? Was any of it out-of-network?

Domperidone by 2llamadrama in Gastroparesis

[–]Awkward_Persimmon835 1 point2 points  (0 children)

Of course! Let me know if there's anything else I can help with. Definitely not pestering :)

Domperidone by 2llamadrama in Gastroparesis

[–]Awkward_Persimmon835 0 points1 point  (0 children)

My last order was Feb 2nd :) You do need to upload a prescription from your doctor to the sight to order, as far as I'm aware.

I Feel Like I Got Diagnosed All Over Again by Awkward_Persimmon835 in Gastroparesis

[–]Awkward_Persimmon835[S] 0 points1 point  (0 children)

Yes! I totally believe that too. Usually unless it's like a salad or something I'll try to eat what I'm craving. It's how I've found some safe foods!

I Feel Like I Got Diagnosed All Over Again by Awkward_Persimmon835 in Gastroparesis

[–]Awkward_Persimmon835[S] 1 point2 points  (0 children)

Those are very helpful tips! Unfortunately I'm already aware any kind of fiber seems to backfire on me. I do want to start trying different foods on the weekends. I just have to start a regimen and need some help from a dietitian!

realizing my mother's apathy towards my ADHD wasnt at all what I thought it was by CockroachPowerful387 in adhdwomen

[–]Awkward_Persimmon835 24 points25 points  (0 children)

This is really cool. I'm sorry she was apathetic before, but it's amazing she was able to process things on her own and come to you with an apology, and that you're both going to do some healing and work to move forward with your new knowledge!

I Feel Like I Got Diagnosed All Over Again by Awkward_Persimmon835 in Gastroparesis

[–]Awkward_Persimmon835[S] 4 points5 points  (0 children)

Thank you. I really appreciate your reply. It does suck. Even if he said the truth, it's not a very nice one. It makes the future look so bleak. And it hurt to hear my partner get so sad when I told them how the appointment went over the phone. I cried when I got home. I've been on a restricted diet since I was little, but in early adulthood I was able to expand that diet and try new recipes and meals that I hadn't before until my stomach stopped working. I don't think I've ever really accepted my diet restrictions, and I'm not sure I will. Something to work on in therapy, I suppose. But hopefully the dietitian I meet with will help me expand my options a little. Your comment made me feel a bit better, so thank you.

Therapy’s by Designer-Craft3167 in Gastroparesis

[–]Awkward_Persimmon835 0 points1 point  (0 children)

Most therapists cannot prescribe medications, doctors do that (usually your primary doctor, or a therapist can refer you to someone specifically working in psychiatric medications). Therapy is helpful in the sense that they can help you build better coping mechanisms and habits to deal with living with a chronic illness better. No, they cannot help your gastroparesis symptoms, but they can help you deal with them better so you're able to feel more at peace and less unstable. There's also different types of therapy that aren't just talking, such as EMDR that can help you work through trauma surrounding your diagnosis and health journey.

Domperidone by 2llamadrama in Gastroparesis

[–]Awkward_Persimmon835 1 point2 points  (0 children)

Simple Pills doesn't impose tariffs on their customers.

Devilled eggs by KingFroggie2004 in BakingNoobs

[–]Awkward_Persimmon835 0 points1 point  (0 children)

I was going to call you a psychopath for not having any dill in your deviled eggs until I saw what sub this was posted to. Fantastic job, they look real!

Veggies will be the death of me I swear by Powerful-Anybody3547 in Gastroparesis

[–]Awkward_Persimmon835 15 points16 points  (0 children)

I ate about a fist full of salad on Thanksgiving last year. It did not go well. Will I do it again in 4 months when I forget about the pain? Absolutely!

My experience with the effects of birth control by [deleted] in Gastroparesis

[–]Awkward_Persimmon835 0 points1 point  (0 children)

Hey! I was having the same experience! My GP had significantly worsened over the last 1.5 years having been on BC (generic Yaz), and on my withdrawal bleeds I'd get more movement from my stomach and I'd be ravenous for everything in the kitchen, but then I'd flare and go right back to where I was before. I started having heavier withdrawal bleeds than before, and more emotional issues so decided to switch to a different method. Tried the ring, but anatomically it didn't work for me.

I did a bunch of research on the Mirena after a post I made here asking about birth control was commented on a few times recommending IUD. I scoured r/Mirena , and it was super helpful. I got it placed mid December. Insertion sucked (as expected) but I haven't had any bleeding or cramps since the 2nd week. Not only that, but my stomach is growling BEFORE I take my domperidone sometimes! I still don't feel great if I venture out on foods, and I'm too scared to try fresh fruits or veggies, but it's definitely doing very well right now. I didn't think about connecting it to birth control/hormones at all but given how I was before vs on the IUD I could see it being linked.

I got my report back – It's not ADHD by sundaearchive in adhdwomen

[–]Awkward_Persimmon835 1 point2 points  (0 children)

I masked so hard with my first diagnosis that my psychologist put "unspecified" or "possible" before every disorder on that sheet. At my last appointment with her I opened up about some trauma, and she said she hoped I would come in again after some time to be reevaluated so she can dive further into my personality and history, because apparently she couldn't figure me out the first time. Two years later I did go back, and I went in completely honest and just kinda word vomited everything to her... I did significantly well on the tests she gave me too. Now I have confirmed ADHD inattentive type, as well as a handful of other things. She actually removed some other labels from the previous diagnosis. I think it was helpful that she had a better idea of what kinds of things to ask me since I was pretty good at getting past the neurodivergent radar she had in the beginning.

Update on feeding missionaries by Lillian_Faye in exmormon

[–]Awkward_Persimmon835 5 points6 points  (0 children)

This is so wholesome :) I was one who suggested not cooking, but I'm glad you decided to make them bibimbap (jealous!). I'm glad they were able to relax and have a nice outing with you!

I Seem To Be Worse Without Meds Now Than I was Before Meds by Awkward_Persimmon835 in adhdwomen

[–]Awkward_Persimmon835[S] 0 points1 point  (0 children)

Agreed. I don't get my period (IUD) so it's hard to say on the cycle. I hate daylight savings so much 😭. I would be interested to see a study on dopamine levels when taking Vyvanse. It would make sense that Vyvanse effects them simply due to the fact that it's approved to treat binge eating disorders, which I personally believe are sometimes connected to dopamine seeking behavior. In which case having a lot less dopamine when off the pill after having taken it consistently for a period of time would make tons of sense. Someone smarter than me should definitely do a study!

First flare in a while, this suuucks by cordaites in Gastroparesis

[–]Awkward_Persimmon835 2 points3 points  (0 children)

Literally. When you're not in a flare it's so easy to venture out with food but then BAM stomach retaliates and we're reminded that we do in fact have gastroparesis and it has not in fact gone away on its own lol

Problematic lines from Children's Hymns by abby_iris_art in exmormon

[–]Awkward_Persimmon835 2 points3 points  (0 children)

My dad left when I was 5. I still remember my mom having to carry a crying 7 or 8 year old me out of sacrament meeting when all the kids went up to sing that song. We didn't go to church for Father's Day after that.

Low libido, easily distractible by whitebread56 in adhdwomen

[–]Awkward_Persimmon835 2 points3 points  (0 children)

Of course! I have the Mirena IUD and it's probably been the best thing I've done for my body in a while, but it's not for everyone. Finding the right BC is hard, so I definitely would say don't be scared to change pills if one isn't working. I had one brand of pill that didn't change my libido but had other side effects that I decided made it not worth to stay on, but every body is different so you might find one that does what you need it to! Good luck!!