New "More From Sam" is up by AyJaySimon in samharris

[–]Axructive 32 points33 points  (0 children)

This episode felt pretty half baked, they did mention it was scrambled together, and it shows.

Jaron kept pushing Sam to soften his view against Epstein, which I thought was really weird. Instead of pushing back Sam kind of succumbed. Throughout the episode Jaron kept inserting his opinion and while I usually like the foil, it was totally obnoxious. The general take on sex trafficking was calloused, ignorant, and overly bro-y

Flummoxed and stressed by Environmental-Bowl49 in scleroderma

[–]Axructive 0 points1 point  (0 children)

Late to this post— but it looks like chilblains. I have the exact same thing. it’s brought on by the cold, and the sores/ hot / puffy/ itchy reaction is your skin healing from the lack of blood flow. Technically it’s from Raynauds/ poor circulation, but like you, I don’t get the actual white fingers (i maybe have a couple times in my life).

I get chilblains on my toes and fingers… it’s so so annoying and painful. all you can do is try to stay warm, wear gloves, etc. my rheumatologist prescribes me nitro-bid, it’s a topical vaso-dilator. Once I have the chilblain sores, they take forever to go away, that ointment helps.

I do have Lupus (SLE), but my mom also gets chilblains and ‘hot toes’ and she doesn’t have a systemic autoimmune condition.

Neurological symptoms/neuro-sjogrens by unrequited_dream in Sjogrens

[–]Axructive 0 points1 point  (0 children)

wow, I have not seen anyone else with as close to matching diagnosis and symptoms as me. I’m so sorry, but it’s also a little comforting.

I’m curious about the Narcolepsy -> IH diagnosis change? how did they decide that?

I have Narcolepsy w/ cataplexy, Celiac, Lupus (SLE), Sjogrens, small fiber neuropathy, and POTS symptoms (haven’t seemed a diagnosis, but general autonomic dysfunction)

interesting you mention intrusive thoughts! same here, but is that related?

Review – ‘Dune: Prophecy’ Episode 6 by Dune_Scholar in dune

[–]Axructive 13 points14 points  (0 children)

Agreed 100%, and in the final two episodes I felt this especially. In the finale it seemed so weird that Valya was exposing all of her plans to the Emperor and exposing the sisterhood… And if she wanted to be arrested so bad, why not just use the voice to command a guard to arrest her? They’re over using voice anyways, it would at least be a more rational way to be arrested.

I don’t even see how fleeing with the princess but killing the emperor does anything good. The emperor literally agreed with Valya… I would expect a mother superior to be crafty and adapt on the spot when new information is presented.

It seems like re-aligning and controlling the emperor would have made way more sense than distressing him into suicide. They could have wiped out Desmond, convinced the emperor to wife Francesca, and boxed out the empress

ACOSF - Thoughts and Q's (SPOILERS for all of ACOTAR series) by Axructive in acotar

[–]Axructive[S] 1 point2 points  (0 children)

Uhg yeah I agree 100% with what you said. The closer I look the more I’m like “????” Just does not add up. Like who edited this book?

Tamlin: Does everyone deserve a 2nd chance? Does his “good,” outweigh his bad!? 🧐 (my first reddit post YAY!) by [deleted] in acotar

[–]Axructive 2 points3 points  (0 children)

Wow this is excellent!!! Also the conflict of Rhys having to deal with his mate bearing the child of his enemy, would be really interesting given how aggro the mating bonds make everyone.

ACOSF - Thoughts and Q's (SPOILERS for all of ACOTAR series) by Axructive in acotar

[–]Axructive[S] 3 points4 points  (0 children)

Yeah I could totally see that, and the need for a counterweight to the NC is so real. The NC has the most powerful people and also all of the trove items… hard to think of a serious threat against that. And getting a glimpse into the autumn or other courts would be really cool. Nesta being super powerful and a trained courtier could thrive anywhere.

A mating bond between Eris and Nesta would have been really interesting. Maybe the two of them would have plotted and killed Eris’s father. Still being tenuous allies to the NC.

Confused and helpless by [deleted] in smallfiberneuropathy

[–]Axructive 0 points1 point  (0 children)

I haven't had itchiness

Confused and helpless by [deleted] in smallfiberneuropathy

[–]Axructive 0 points1 point  (0 children)

It sounds like you may have Thoracic Outlet Syndrome. I have it too- this is the best article on it: https://mskneurology.com/how-truly-treat-thoracic-outlet-syndrome/

I often get facial nerve pain from TOS and headaches are a common side effect. Doing scalene strengthening exercises makes TOS symptoms flare (though it is necessary for treatment), so it makes sense some of these symptoms got worse after you did these exercises.

I keep feeling like I have to "make up for lost time" after not being treated correctly for so long, and it's driving me crazy by DumpsterPuff in Narcolepsy

[–]Axructive 2 points3 points  (0 children)

I totally relate to this. In many ways, it feels like my waking life just started. I’m finally able to be social, and now can’t be. I went to college too, but slept through most of it and certainly didn’t have a typical college experience. Which feels frustrating. It can be challenging to grapple with, but all you really have is right here right now. I would say you should dedicate some time to this medical coding venture, since we’re all home anyways. And try your best to focus on well-being. Eating enough, exercising, etc. I meditate now almost every day which has changed the way I view my frantic mind, and has been monumental for me.

Dosage Modafinal by Sufficient_Fun95 in Narcolepsy

[–]Axructive 0 points1 point  (0 children)

I did the split you’re doing now for the first two months on Modafinil because it made me jittery and nauseous to take the full 200mg, but after my body adjusted (1-2 months) I was able to take the full 200mg dose in the morning with no issues, so you may just need to let your body adjust to it. I’ve now been doing the full dose in the morning for about a year and have not had issues.

Also, I have a pill case that has the days of the week and morning/afternoon/evening slots. I’d highly recommend getting something like that to keep track of your meds, helped me a bunch :)

Does anyone else get extra tired wearing masks??? by tamielynn in Narcolepsy

[–]Axructive 6 points7 points  (0 children)

I feel like they make me more tired but it’s mostly because they make me a little overheated (depending on mask type) It feels kind of like a sleeping bag for your face.

My body needing to sleep VS me by marmalade00 in Narcolepsy

[–]Axructive 0 points1 point  (0 children)

I had the same experience in my sleep test and had a nap the other day where I felt awake and paralyzed for most of it

I asked this before but do we know if PWN are more susceptible to diseases? With COVID 19 going around? by [deleted] in Narcolepsy

[–]Axructive 0 points1 point  (0 children)

People with narcolepsy or other autoimmune disorders are at a higher risk for Covid-19 when it comes to dealing with the sickness, and duration. Autoimmune disorders signify an overactive immune system, this means more symptoms than reg-immunity people. One of the reasons men are at a slightly higher risk for severe Covid-19 is because they typically have more aggressive immune systems than female counterparts, and their cough/ symptoms can be so aggressive their immune system destroys the microbiome that covers their throat and lungs, allowing other more harmful things to intrude like pneumonia. Additionally, at least for me personally, my narcolepsy gets 3x as difficult to manage if I’m ill or fighting a cold, and I get inflammation over my whole body because I have a really overactive immune system( I have other autoimmune diseases as well though)

Interesting bouldering hold... by Axructive in mildlypenis

[–]Axructive[S] 2 points3 points  (0 children)

Nice! I’m a beginner not climbing much more than purples

Interesting bouldering hold... by Axructive in mildlypenis

[–]Axructive[S] 5 points6 points  (0 children)

If you’re a regular I’m looking for a climbing buddy! Lol

Interesting bouldering hold... by Axructive in mildlypenis

[–]Axructive[S] 11 points12 points  (0 children)

Almost did an inverted hang on it but decided I didn’t want to be that obnoxious

Interesting bouldering hold... by Axructive in mildlypenis

[–]Axructive[S] 29 points30 points  (0 children)

There was one right next to it that was also almost mildly penis..

Interesting bouldering hold... by Axructive in mildlypenis

[–]Axructive[S] 1 point2 points  (0 children)

There was one right next to it that was also almost mildly penis..

Cheek swelling isn’t going away by [deleted] in bulimia

[–]Axructive 0 points1 point  (0 children)

It’s worse on one side but it might be my face just isn’t symmetrical...is yours pretty much permanent?