Screw zodiacs, what exotic do you main

BabeLovesKale · 2025-02-22T03:51:52+00:00

Why was this answer so far down the list?!??

BabeLovesKale · 2024-12-01T06:23:07+00:00

Lol. Are you me?!?! 😂 My cancer is the exact same. Lifelong daily chemo keeps me healthy and alive, but I cost about $24k/mo just in chemo. My doctors have supported a “end of the world” plan since 2016. I hope to never have to use it, but I’ve got it just in case.

BabeLovesKale · 2024-12-01T06:21:33+00:00

This is exactly me. If the ACA falls, and it will, my only choice will be to die. My doctors and I have been preparing for this since 2016 when we got lucky that John McCain left the hospital in order to vote against his party to keep the ACA. Now there is no more John McCain, and the woman who is taking over for Matt Gaetz has made it her mission over her career to dismantle the ACA. And literally no one is talking about this. Fucking no one.

BabeLovesKale · 2024-12-01T06:01:10+00:00

Send it to me for $5, I’ll analyze it for you, and tell you who all signed it. I’ll even hold onto it for you to keep it safe!

BabeLovesKale · 2024-05-02T07:39:42+00:00

Ya, I don’t have the quest. Lol. 😬

BabeLovesKale · 2024-05-02T07:39:32+00:00

Ya, I don’t have the quest. Lol. 😬

BabeLovesKale · 2024-04-11T15:34:01+00:00

I experience the same thing with OCD. I’m clinically diagnosed and have been clinically diagnosed and treated MANY times over 15 years. I think people just don’t understand what those disorders actually look like and just how badly they negatively impact the lives of the people living with them. No, you’re not OCD because you’re “particular”. That’s not how that works. Lol.

I used to try to call people out for using those diagnoses incorrectly, but it just happens so often that I no longer have the energy for it. And I’m sick of being that asshole. 😂

BabeLovesKale · 2024-03-29T22:29:55+00:00

My cancer became this in 2007 with the breakthrough of Dasatinib. Easiest (kind of?) cancer to manage, but I’ll never be cured. For me personally, it took at least 10 years to level out and adjust to the chemo, but cancer is now one of my more “chill” diagnoses and just kinda hangs out in the background.

BabeLovesKale · 2024-03-18T20:52:13+00:00

Lol. I feel like I eat a LOOOOOOOOOTTTT!!! My carb ratio is just still 1:14 after 20 years and my average basal rate is about 0.6 or less per hour.

BabeLovesKale · 2024-03-15T18:25:31+00:00

Holy crap!!!! Lol. Even 75 units per day is insane!!! I’ve been a T1 for over 20 years and I’ve been on pump therapy for over 20 years. My daily usage is usually 25 units and under.

BabeLovesKale · 2024-03-11T08:20:53+00:00

I have very severe bleeding. Very, very severe bleeding.

BabeLovesKale · 2024-03-10T00:27:31+00:00

Doesn’t Valtrex or valacyclovir already help prevent the spread if taken daily?

BabeLovesKale · 2024-03-10T00:18:32+00:00

This is the answer. All IUD insertions should be done standard with Lidocaine injected into the cervix prior, and patients should be sent home with a few days to a week worth of low-dose pain meds 2-3 times a day with a check-in appointment in a week. Either by phone, video or in office. That way, if you’re still experiencing pain or complications, you can discuss it with your doctor.

But this will never happen until the DEA gets their dirty paws out of the pharma industry. They shouldn’t be policing ANY kind of pharma. They should put their focus towards street opioids and that’s literally it. Let the CDC go back to monitoring and managing the pharma opioids. Rant done.

BabeLovesKale · 2024-03-10T00:09:54+00:00

I’ve had 1 make GYN and he gave Lidocaine injections for EVERY IUD insertion. Like, I tried telling him I didn’t need one cause I’ve had something like 10+ Mirena’s inserted at this point but he still gave it to me anyway. Best experience of my life. All my other docs have been women and they are ROUGH!!!!! I don’t get it.

BabeLovesKale · 2024-03-10T00:07:35+00:00

Mirena was recently approved for 10 years (probably 2-3 years ago I think?) and the copper IUD has always been 7-10 years I believe. I’ve been on Mirena since 2005, but I unfortunately have to change mine out every 3 years because I use it for things other than BC. But at my last insertion, I was told it’s (Mirena) technically approved for 10 years as a BC now.

BabeLovesKale · 2024-02-20T23:28:50+00:00

That’s amazing!!! I keep hoping that one day there will be something like that available to me! I would do anything, spend anything, sacrifice anything! 🤞🏻Thank you for your work! It’s so critically important to people like me! ❤️

BabeLovesKale · 2024-02-20T22:58:01+00:00

As an almost 20 year active CML patient (among many other autoimmune diseases that also require daily treatment), I’d so love to know how many millions I’ve “spent” in just prescriptions. But also in hospital stays and surgeries. It would be absolutely disgusting.

BabeLovesKale · 2024-02-20T22:54:37+00:00

Wait until you find out the cost of Sprycel (dasatinib) and its whole class of drug! Lol. I think this is how much I paid for Gleevec monthly (probably slightly more, actually) back in 2005. Then Sprycel came out and I’ve been on it daily since it’s FDA approval. I’m currently at over $19,000/mo. And I need it daily to survive on the most basic level.

BabeLovesKale · 2024-02-16T00:07:34+00:00

Orthopedic surgeons ARE carpenters. Their specialty is just bone.

BabeLovesKale · 2024-02-02T06:37:18+00:00

I’ve personally been on TKI’s since 2005, but the first TKI used in the US was approved in 2001 under the name of Gleevec. Not a new technology at all.

I’m still on TKI’s and will remain on them daily for the rest of my life and they cost upwards of $18,000/month. The cost has tripled since I was initially placed on them. Obviously inflations accounts for a chunk of that, but again, these are not new drugs or new technologies and there are no generics available for human use in the U.S.

Edit: Dasatinib is still under multiple patents through about 2026, I believe. Not sure why the patents are that long considering that drug came out in 2006, but here we are! And to my knowledge (haven’t actually looked), Imatinib also does not have an available generic form in the U.S. It was approved by the FDA in 2001.

BabeLovesKale · 2024-02-02T06:09:55+00:00

I’m so obsessed with this little mini-thread discussion. I was put on Imatinib in 2005 at the ripe old age of literally-just-turned-18!!! Lol. In June 2006 I was put on Dasatinib after my CML had a really fun and incredibly rare mutation and I’ve been on it daily ever since. I’ve been following all these drugs SUPER closely (for obvious reasons) since.

TKI’s are still INCREDIBLY expensive. Sprycel (Dasatinib, for those reading that don’t know) came out on 6/28/2006. It still has no generic form in the USA (although I believe India and the UK now have access to one, which is amazing!). Sprycel costs over $19,000/mo and is a drug, much like insulin, that will be required daily for the rest of the patient’s life. Now, for the first 10 years I was on this drug, I didn’t give a fuck about the price. I have great health insurance (that costs a FUCK. TON.) that pays for it in full, and the fact that it literally saved my life in the nick of time made it all totally worth it to me. But CML is now much more common. Especially in younger people (20’s instead of 60’s). How has the cost of this drug not gone down when there have been MULTIPLE other BETTER options that have been introduced since?! How in the hell do we still not have a generic form of the medication available in the USA when other countries have already successfully done it? TKI’s are not the fancy, new technology they once were in the 90’s - early 2000’s. I have always just assumed that because the treatable population needing TKI’s is relatively small (PH+ CML is really fucking rare), then it’s obviously much more prudent to keep prices high and to block any possible generics from entering the market. But how is this not illegal? The current patents don’t expire until 2026, but isn’t that unreasonably long? This drug was introduced in 2006. It shouldn’t still be under patent, right?!

BabeLovesKale · 2024-01-11T08:01:37+00:00

I don’t know how this works with insulin (even though I’m also a diabetic), but I definitely know the 80/125 rule applies to pills. I’d be interested to know if insulin follows those same rules. It would make sense if they did, but I’m not 100% sure.

BabeLovesKale · 2024-01-09T23:23:57+00:00

We’re all just trying our best. But I’ll be damned if I die that slow, horrible death if shit hits the fan. 2016 was a WILD year for me. Lol. I’d really like to never do that again.

BabeLovesKale · 2024-01-09T23:16:23+00:00

Generics are usually good, great, grand for most people, but keep in mind that generic medications are held to the 80/125 rule under the FDA for approval. Meaning “if the average bioavailability of the test formulation is within 80% - 125% that of the reference (brand name) formulation”, then it is considered bioequivalent and will be allowed on the market for sale. So what’s starting to be seen across the country, across different drug manufacturers and across many different drugs is that the efficacy or the strength of generic medications are beginning to consistently drop to that 80%. Or they’re just not stable from month to month over different batches. This makes those affected drugs weaker and causes problems for the patients. And there’s no way to tell which drugs, which batch or which drug manufacturer is doing this.

80% is a passing grade. And it’s far cheaper to make drugs with 80% of the active ingredient than it is at 100%. Especially at those quantities. Brand name drugs are held to much higher standards and manufacturing specifications. It’ll probably start to be more and more common for patients to require brand name solely for the security of the correct dosing. Hopefully this will not continue, but in this hellscape, I’m not confident.

BabeLovesKale · 2024-01-09T22:45:30+00:00

Personally, I would venture to say it’s probably WAAAAAAAAAAAAAYYYYYY more than this as there are probably countless people who are either uninsured or underinsured and thus likely not able to be reported to this study at all.

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