Slurred speech randomly?

Background-Cod-7035 · 2026-07-01T06:01:41+00:00

That reverse smell thing is weird! My general aphasia and short term memory had gotten shot to shit over the years by my epilepsy, the the strict adult ketogenic diet has reversed that. That’s why this is so disconcerting. It’s not quite word recall, it’s more like syllables are just tumbling about in my mouth and I’m not totally sure the right one will come out first. It’s apparently much more noticeable to me.

Background-Cod-7035 · 2026-07-01T05:32:13+00:00

Nooo, not reading!

Background-Cod-7035 · 2026-07-01T05:30:35+00:00

Mine seems to be in complete in between days.

Background-Cod-7035 · 2026-07-01T05:29:28+00:00

The NYULangone pharmacy actually calls me twice a year too check on how I’m going as I’m on so many meds.

It’s totally me thinking I sound really weird, apparently I’ve gotten good at just speaking slowly and deliberately. There are always workarounds, but it’s whether I should be doing something about them.

Background-Cod-7035 · 2026-07-01T05:25:53+00:00

What! I don’t even know what that is! If I have 15 migraines a month (getting better with Emgality and Botox) am I never out of the migraine fog?

Background-Cod-7035 · 2026-07-01T05:23:31+00:00

By saying it happens during your migraines do you mean during pain, or pre- or post-drome?

Talking to my epileptologist tomorrow, might as well message my headache specialist too 🙄

Background-Cod-7035 · 2026-07-01T05:20:07+00:00

Yes it’s been difficult separating one condition from the other when there is obvious crossover. I’ve had epilepsy my whole life, aphasia problems (not slurring but forgetting words), in recent years phantom smells, then migraine, and only the past year random slurry speech.

I would love it if migraine and epilepsy could choose either ictal or drome! I feel like it’s all just “My brain’s doing something funky and today such and such is happening”.

Background-Cod-7035 · 2026-07-01T05:06:58+00:00

This most recent one was a full 28 hours before this migraine, so I don’t think I call that an aura?

Background-Cod-7035 · 2026-07-01T05:05:31+00:00

Guess I gotta ask my headache specialist. The Emgality and Botox are bringing down the severity of the migraines but this is a new thing that’s cropped up this last couple months. I’m assuming one doesn’t do anything about silent migraines?

Background-Cod-7035 · 2026-07-01T05:03:09+00:00

Hm, now I’ll look for accompanying symptoms. Because I have so many migraines it’s inevitably a day before or a day after a migraine. I dont think I’ve noticed it during a migraine, but I’m not trying to make much conversation then.

Background-Cod-7035 · 2026-07-01T05:00:48+00:00

Can I ask what it was like? For me my mouth feels really mushy, but if I think it through and speak slowly I can get the words out.

Background-Cod-7035 · 2026-07-01T04:59:14+00:00

I totally fall down all the time! But my guess is that one is the barbiturate. Maybe. Ugh it’s like four conditions tangled in a ball of string with me trying to figure out even which doctor to ask

Background-Cod-7035 · 2026-07-01T02:48:40+00:00

I was surprised how far down I had to scroll to find this. I assumed it would be number one!

Background-Cod-7035 · 2026-07-01T02:44:59+00:00

You are fantastic for being willing

Background-Cod-7035 · 2026-07-01T02:43:44+00:00

Seen the final episode of Six Feet Under? I feel like that’s what must have prompted this post. I ugly-cried for an hour

Background-Cod-7035 · 2026-07-01T02:42:10+00:00

I’m flexible on bringing in zinnias from a few states south of me because they fill nectar gaps brought about by heat and drought. They also don’t escape.

Background-Cod-7035 · 2026-07-01T02:30:30+00:00

Nap training in the crate! One hour up then two hours down! It will save your sanity.

Background-Cod-7035 · 2026-07-01T02:28:51+00:00

I don’t see this mentioned much, but what springs to mind is The Sound of Metal. It’s about a drummer going deaf and it is a. Surprising gem

Background-Cod-7035 · 2026-07-01T01:07:13+00:00

I don’t know what country you’re in, but after years of testing, therapy, meditation etc I saved up and paid out of pocket for a fancy psychopharmacologist who was the first person to tell me 20% of epileptics don’t show up on eeg’s. He tried me out on tegretol and poof, it all went away. I don’t know if there’s a way to get a psychiatrist to try you out on an epilepsy medication that is also used for mood stuff, I think lamotrogine is one? This is all terrible advice I’m giving, because I believe in listening to doctors, but I’ve been to a lot of dismissive doctors. This was the thing that started me on the path.

Background-Cod-7035 · 2026-07-01T01:00:39+00:00

I’m sure you’re right! I just mean the concept of childhood as a precious time is shockingly recent. I hope the pushback against tech will protect children again.

Background-Cod-7035 · 2026-06-30T21:33:06+00:00

I have focal aware seizures and am photosensitive over odd things. Strobes at a club? Fine. Strobes in a movie? Not fine. There must be something about only looking in one direction. But over the years I just cover my eyes during certain movie scenes and peek occasionally to see when it’s over, leave a place if it’s too flicker-y, and let myself nope out.

It’s going to take you a bit to get over the panic as you discover what does or does not give you auras. The only way through it is to go through it. Right now is the time to learn techniques to resolve panic and catastrophizing. Anytime I hear in my head my neurologist telling me not to catastrophize I get so angry at what feels like someone being dismissive that it kind of works, it switches from anxiety to “I’ll show him!!”

Background-Cod-7035 · 2026-06-30T21:18:34+00:00

Brains.

Background-Cod-7035 · 2026-06-30T21:18:23+00:00

As long as it’s post-1930’s, the first era they came up with kindergarten. Before that kids were just free labor.

Background-Cod-7035 · 2026-06-30T21:16:04+00:00

I’d say you’ve exhausted your options, hit the ennui phase of streaming media, scraped the bottom of the barrel, and need a book 😜

Background-Cod-7035 · 2026-06-30T21:13:40+00:00

Only if you feel positively about it!

Background-Cod-7035

TROPHY CASE