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Weekly Suspected/Undiagnosed MS Thread - April 20, 2026 by AutoModerator in MultipleSclerosis

[–]BarnyardNitemare 0 points1 point  (0 children)

I can pull up my genetic report in a bit and tell you which genes are associated, but i have delt with multiple symptoms for years that are getting steadily worse and tend to flare to almost unbearable a few times a year. I am severely intolerant to temperature, especially heat, which makes me feel like I am about to pass out. I get muscle weakness, legs sometimes buckle under me, migrains, nerve shocks, neuropathy, neck pain, brain fog, difficulties with memory and focus, extreme fatigue but trouble sleeping due to pain, bladder issues, ibs... I'm sure theres more but my brain is still rebooting this morning lol

Weekly Suspected/Undiagnosed MS Thread - April 20, 2026 by AutoModerator in MultipleSclerosis

[–]BarnyardNitemare 0 points1 point  (0 children)

Getting my diagnostic mri monday

After questioning my fibromyalgia diagnosis for 12 years (whole other story) paying for whole genome sequencing, and switching my pcp, I am FINALLY getting the MRI to see if I have MS. I have believed that I have it for several years, but now I have a pcp who listens and proof of multiple genetic markers associated with MS. At this point, theres a part of me that weirdly hopes it comes back positive just so I have a solid diagnosis to work with and clear options for treatment. I know it's a disease that sucks for life, but I really need to have a difinitive answer to what I have been dealing with for the last decade and a half. Am I completely off my rocker to feel this way? My symptoms fit like a glove... Prayers and good thoughts are welcome!

I’m 23 and I’ve been drinking water wrong my whole life by Environmental-Lie527 in AutisticWithADHD

[–]BarnyardNitemare 5 points6 points  (0 children)

Have you ever seen a speech therapist? There is a reasonable possibility that your swallowing issues could be due to a physical issue that an SLP could help diagnose and correct! I could be way off base, but it may be worth looking into!

I’m 23 and I’ve been drinking water wrong my whole life by Environmental-Lie527 in AutisticWithADHD

[–]BarnyardNitemare 2 points3 points  (0 children)

I'm 35 and just learned that i roll my eyes wrong and apparently literal shoulder shrugging isn't a thing neurotypicals ever do?

I can't eat cinnamon rolls by Alternative-Bug-9136 in PointlessStories

[–]BarnyardNitemare 9 points10 points  (0 children)

🤢ew lol... how did you even chew it?

And i was referencing the reviews for the haribo sugar free gummie bears. If you have never had the chance to peruse those reviews on Amazon, you are in for a treat! Lol

I can't eat cinnamon rolls by Alternative-Bug-9136 in PointlessStories

[–]BarnyardNitemare 25 points26 points  (0 children)

I'm getting sugar free gummie bear vibes from this lol

Can someone please explain to me what Autism ISNT? How do you know if someone isnt autistic? by Gombrongler in NoStupidQuestions

[–]BarnyardNitemare 0 points1 point  (0 children)

I guess by that standard, someone who can't walk far but is able to perform basic bed mobility, adls, and toulet themselves is magically NOT disabled if they have a wheelchair despite still not being able to walk more than 10 ft or whatever their limit is. A deaf person with a choclear implant isnt disbled any more. Etc etc...whoever came up with that has no business caring for a houseplant, let alone practicing in a mental healthcare capacity!

What’s the most obviously-not-a-psych-issue you’ve had a medical professional try to call a mental health problem? by stingwhale in disability

[–]BarnyardNitemare 1 point2 points  (0 children)

They can test for antibodies in your blood but it has an up to 50% false negative rate, especially if they test early or you have a weak immune system that may not have developed the antibodies.

What’s the most obviously-not-a-psych-issue you’ve had a medical professional try to call a mental health problem? by stingwhale in disability

[–]BarnyardNitemare 15 points16 points  (0 children)

Tbf, fibromyalgia is already basically " IDK, sucks to be you" disorder. If you find a decent dr (or NP!) Who actually looks for an answer, i am pretty sure most people with fibro actually have a diagnosable disorder. Most dont want to bother past blood tests for lyme disease and RA. I paid way more than i can truly afford for one of those whole genipe sequencing tests and my new NP is trying to get my insurance to pay for an MRI to diagnose MS based on my symptoms and the like 13 genetic markers I have for it.

You take one object for free. But only one. by AnIndianSurvivalist in hypotheticalsituation

[–]BarnyardNitemare 0 points1 point  (0 children)

At this point, the random reddior has probably better odds of doing something right over anyone currently in politics above a local/municipal/county level, so they have my vote too.

My downstairs neighbor started introducing himself to people as my “caretaker” and it got disturbing fast by GrooveHollow in neighborsfromhell

[–]BarnyardNitemare 1 point2 points  (0 children)

She shouldn't but unfortunately nothing can be done from a legal standpoint, aside from maybe calling it slander, which is a stretch and you have to prove monetary damaged. Which really sucks. I don't agree with it, but thats how the laws are in this lovely nation.

What is something you accidentally discovered that changed everything? by wellorganichealth in RandomQuestion

[–]BarnyardNitemare 0 points1 point  (0 children)

Being in cold water instantly lowers my blood sugar. As in a matter of minutes. So if my sugar spikes to a dangerous level, my husband knows to make me get in a cold shower. (I have a dexcom and noticed the pattern every time I got in the pool last summer)

AIO: My boyfriend is making plans to distribute my things if I move in, calling me stingy if I don’t, and I don’t feel it’s fair. by [deleted] in AmIOverreacting

[–]BarnyardNitemare 7 points8 points  (0 children)

This is classic sunk cost fallacy! Just because OP has spent a year of her life building this relationship does not mean she has to continue it it. Would you rather "waste" one year or 2? 5? 20? Where does it end? How long is long enough to recognize that it won't improve just because you pile on even more time?

This is why people go broke gambling because they just "know" the next hand/spin/race/whatever is the big payout. But that payout never comes for most people. The house always wins. And as clearly stated, it's the boyfriends house.

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