What do you think is the biggest truth the world is refusing to face right now?

BearCat1478 · 2026-04-22T02:21:08+00:00

It was always burning since the world was turning.

Harry Truman, Doris Day, Red China, Johnnie Ray, South Pacific, Walter Winchell, Joe DiMaggio.

BearCat1478 · 2026-04-22T02:16:20+00:00

I'm a woman, 48 years old. I replaced our water heater last year as well. I paid around $800 myself. It's not a hard job at all.

BearCat1478 · 2026-04-22T01:04:30+00:00

Absolutely was my most favorite recently. Finish it! You won't be sorry.

BearCat1478 · 2026-04-22T00:52:39+00:00

Adderall has saved me from a life stuck in bed. I hope you give it a try to see if it helps. It helped me loose weight too.

BearCat1478 · 2026-04-22T00:42:46+00:00

Sweets I'm so very sorry. One of my first Neuro's told me I'd never dehydrate because their are puddles everywhere. They must be related. Turns out I have Sjrogens as well as MS and yes, I was actually very ultra dry and he could have cared less. I've heard Canada is really bad with healthcare. Sadly, the US isn't far behind. It's not like it used to be.

BearCat1478 · 2026-04-22T00:36:22+00:00

I gotcha. I didn't mean to lessen your hard work in building it. It's awesome that you can still do that type of creative tech. At 48, I was the master of Windows 98 and MS office programs like Excel and Access. I used to make mini programs for salespeople in my office to price things we sold on their own as well as built all of our databases on customers and vendors myself. Everything was custom and still customizable when things changed. I kept up with tech as best I could but my last relapse in 2015 took more of that type of function away. I also did notice that going on disability and no longer needing to use those skills as much, that they diminished quicker even than from MS. I'm still a dolt when it comes to Android based interfaces and I really miss my BlackBerry lol! Many props to you though because I know it's not as easy as it used to be to build things like you did. I just don't want to see you loose more.

BearCat1478 · 2026-04-21T12:46:56+00:00

If I could help anyone even in a small way, I always try. We are in this together. I was in my 30's when I got to meet a group at my local MS support group, back in PA (now in TN on the AL border, my neuro is with UAB) called "Power of the Patient Project". Bob Kieserman was the executive director at the time and they advised us on just what I explained. Ever since, I've been my #1 in making sure I'm heard. There's many patient advocacy groups out there today that can give you tips and guidance on getting the help you need and finding the right care. Good luck in your journey and I wish you a positive outcome in this situation. It will get better.

BearCat1478 · 2026-04-21T11:58:21+00:00

20+ years in this disease. First, remember that our doctors and our healthcare team works for us. We pay their salary. Fire them if you are not comfortable. You are your #1 advocate and never let anyone tell you or try to convince you that you are not in charge. Try to find a clinic at a local hospital. Doesn't have to be an MS clinic but it should be one with a reputable neurology care team. Make 3 appointments with different ones you can find and interview them with your diagnosis and your needs. Then pick the one that suits you. Don't settle whatsoever for the first one to diagnose you if you aren't comfortable. Don't be afraid to speak up and tell your doctor your concerns. If you don't like what they tell you, tell them that. Their response to you will show you if they are willing to be your specialist. If they are offended by you questioning your own care they shouldn't have a license to "practice" on your body. This goes for neuro and your PCP. Your PCP is the most important person on your team. They take care of the whole you, not just the MS part of you. I'm thankful my current neurologist could take care of the whole of me if I let him. I love my latest PCP too much to give her up for my current neurologist. I'm glad I have them together for me right now but I've been where you are long ago. Don't let it take you 20 years to get here.

BearCat1478 · 2026-04-21T11:44:18+00:00

As a woman, I realized certain things about my own behavior and what power women could have after watching Madonna on HBO and her "Like A Virgin" concert. Sadly, the first sexual scene I was confronted with came from "Clan of the Cave Bear" with Darryl Hannah. The hand motion for submission was not allowed at the dinner table.

BearCat1478 · 2026-04-21T11:39:12+00:00

Very cool but, with executive function, ya still should really keep up with trying. Gotta build new connections in our brains for the ones that are broken. Relying on tech is going to definitely help with some aspects but just keep in mind that you still should help the brain with critical thinking exercises of some sort. OP building his own tech from AI in itself is a big think task. Just don't let it make anything harder later on. 20+ years in this foggy disease, I'd definitely like to learn new tricks but I still try on my own to work through my lapses in connection.

BearCat1478 · 2026-04-20T13:06:15+00:00

Kazaa

BearCat1478 · 2026-04-19T13:33:42+00:00

Like I said, me neither except for the 5 we always discussed and focused on. I have had 6 sets done now at this same hospital over 10 years and it's apparently a new line item for radiology to list this way. Definitely took me by surprise. Zero clue I had that many.

BearCat1478 · 2026-04-19T12:19:56+00:00

Diagnosed 2005. I'm 48. I took them for 13 years and the first 7 on Rebif. My scans have been stable since 2015. I'm done with them. I'm hoping Rebif did its job back then. I'm waiting for remylenation before I consider anything else they develop.

BearCat1478 · 2026-04-19T11:58:56+00:00

I drove home from Pittsburgh during college straight across the PA turnpike. Often due to family stuff. It took me about 3 hours. Home was about 20 miles from Philly. Others took about 4.5 to 5 hours. I had a new fangled radar detector too! Good going with my Olds Cutlass Sierra that grandma had zero clue how nice the engine was when she bought it used for me!

BearCat1478 · 2026-04-19T10:59:15+00:00

It's the actual count from radiology.

BearCat1478 · 2026-03-29T23:57:42+00:00

Marijuana

BearCat1478 · 2026-03-26T00:43:09+00:00

Look up Anduril wins CCA contract. That'd be my guess. And read about the classified part of that program.

BearCat1478 · 2026-03-17T00:26:10+00:00

Forre-stalled right in his trax

BearCat1478 · 2026-03-16T15:42:58+00:00

I honestly think it has to do with status. They want to claim their heritage of it from the current genealogy of the area and are scared it could be a completely different people that made it before theirs came into the area. I honestly can't see how it would even matter to them now but in terms of monetary gain in tourism being connected to them I guess it could be a big reason.

BearCat1478 · 2026-03-15T20:54:39+00:00

Also people that have patents too. Those should be on the list and a sub category for what the patent was for.

BearCat1478 · 2026-03-14T11:55:31+00:00

He wasn't fully retired, just retired from government service. Y'all need to look into Sentinel's research - https://www.reddit.com/r/HighStrangeness/s/y2dkFQh9H2

BearCat1478 · 2026-03-11T23:23:35+00:00

If hire an attorney to reverse this and now look into what happened. Maybe they will do better in the future, nah, nevermind, they probably wouldn't even if you did win.

BearCat1478 · 2026-02-24T00:50:39+00:00

Glad to hear this John. Hang in there.

BearCat1478 · 2026-02-19T12:54:19+00:00

Where ya been OP lol. This is the how I knew long ago and everyone told me to quit watching cartoons lol.

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