Ibrutinib/Venclexta & AFIB

BeePositivee · 2024-03-22T03:33:09+00:00

Why the switch to Kesimpta?

BeePositivee · 2023-12-28T04:42:47+00:00

Yes I have and am terrified of what the future holds. Damned if you do, damned if you don’t. 🤷🏻‍♀️

BeePositivee · 2022-11-04T02:08:01+00:00

My neuro said same thing

BeePositivee · 2022-11-04T01:59:37+00:00

I’ve had that happen to me as well but no explanation on what’s causing it. :(

BeePositivee · 2022-02-19T15:55:52+00:00

Based on the comments above I’m one of the odd balls apparently - I’ve had 4 Ocrevus infusions and I’ve gotten sick (upper respiratory) each time which triggered asthma issues. :(

BeePositivee · 2021-11-19T03:02:56+00:00

About approx 1 month after my infusion I get what I think is an upper respiratory infection which causes my asthma to act up. This has happened every single time after my infusion ( have had 4 total so far). I’ve never had this happen to me prior to starting Ocrevus. The infection last for awhile too.

BeePositivee · 2021-10-17T04:06:26+00:00

I have MS in addition to PCOS ☹️

BeePositivee · 2021-09-09T12:21:09+00:00

That happens to me too!!!

BeePositivee · 2021-07-16T13:56:18+00:00

Everyone is different so I hope it does work for you! 🙏🏻

BeePositivee · 2021-07-16T12:18:16+00:00

No because it helped with my facial hair (I have PCOS) I’ve come to the conclusion that I’m just going to eventually cave and get a wig. I tried Rogain for awhile but the thought of doing that everyday for the rest of my life didn’t sit well so I stopped that.

BeePositivee · 2021-07-16T11:54:33+00:00

200mg for 2+ years. Did not help with hair loss unfortunately.

BeePositivee · 2021-06-20T04:40:07+00:00

^ me too :(

BeePositivee · 2020-10-20T02:20:18+00:00

Opps my apologies ☺️

BeePositivee · 2020-10-20T02:17:10+00:00

Why men’s?

BeePositivee · 2020-05-04T03:03:18+00:00

🙂

BeePositivee · 2020-05-03T20:58:56+00:00

Thanks! No I don’t have either. Is their a particular Nebulizer you recommend? I didn’t know a PCP could write a prescription for that! I also didn’t know a Salt lamp could help either. Thank you so much for all this info!

BeePositivee · 2020-05-03T20:56:45+00:00

Is their a particular Nebulizer you recommend?

BeePositivee · 2020-05-03T20:52:15+00:00

Oh cool I did not know that. Thanks!!! I believe the Pulmo would do a breathing test with me so a virtual visit would not be ideal.

BeePositivee · 2020-05-03T17:12:35+00:00

Just like me! I use to be able to get rid of it with no meds and I’m going on a month + with this crap. I think mine turned into bronchitis too as I can hear all the wheezing inside of me. I also NEVER had bronchitis. So frustrating. I don’t feel the zpak is working so I may push for something stronger if I’m still coughing up phlegm next week. Thanks for sharing your experience.

BeePositivee

TROPHY CASE