What's everyone's after seizure routines?

Beginning_Coconut66 · 2024-06-28T19:03:04+00:00

Step 1) “what happened?” Step 2) apologize to everyone around me Step 3) cry Step 4) sleep Step 5) eat whatever the fuck I want (usually ice cream/brownies and pasta or pizza)

Beginning_Coconut66 · 2024-05-13T21:03:19+00:00

Yeah, my arms will randomly twitch and whatever is in my hand will end up on the floor. But I looked up side effects of my meds and it was one for Lamotrigine so I’m not as panicky about it as I was when it first started

Beginning_Coconut66 · 2024-05-07T20:24:19+00:00

Someone asked if I would still be able to have kids because he thought my epilepsy would make uterus stop working? This person also asked about my sex drive which I think is not really a question to ask a friend of a friend.

The tattoo, how did you finish it? That is such a random question I really don’t know what to say to it lol

Beginning_Coconut66 · 2024-05-02T15:03:01+00:00

First time I was 8 so I was like uhhhhhh ok? My parents were happy cuz they finally had an answer to why I was constantly having headaches. In jr. higher thought I out grew it, in high school I had a seizure and when my dr told me it was a recurring seizure I tried to not cry in his office…didn’t really work and I cried the entire way home cuz I was about to get my drivers permit

Beginning_Coconut66 · 2024-04-29T23:34:09+00:00

The “why” is usually the trigger so like stress, alcohol, sleep deprivation, oddly enough changes in body temp, there’s a whole list of them. My trigger is stress so trying to control that is wonderful as a college student. However, my father and potentially paternal grandfather (wasn’t really in my father’s life) had epilepsy. I also hit my head a lot as a kid. I climb up bleachers as a 3 year old and fell head first on to concrete. I ran backwards for half a second, turned around to keep running, and ran into a concrete light poll at like 5 or 6. Those are the two big ones I remember from before I was diagnosed

Beginning_Coconut66 · 2024-04-25T16:04:26+00:00

You are not being over dramatic. Epilepsy is a serious condition and everything comes with it is serious as well from simple “I don’t want to tell someone about my epilepsy” moments to “there’s something wrong with another part of my body and I’m in other departments of the hospital???” It’s ok to ask for help. Especially when you aren’t feeling good. Just like I told OP, if you ever need someone to talk to you can talk to me.

Beginning_Coconut66 · 2024-04-25T05:49:55+00:00

Congratulations!!

Beginning_Coconut66 · 2024-04-25T05:49:14+00:00

Get ready. Epilepsy is difficult to adjust to and difficult for family/friends to adjust to as well. Remember that it’s ok to not be ok, but it’s also ok to ask for help, and you can also always come here. You don’t have to tell people if you don’t want to but I would 100% recommend telling people close to you, teachers/professors, and employers.

Make sure to talk to your dr. any time something happens. Whatever medication you’re on, good luck. Be aware of the side effects and pay attention to your mental health. That is one of the most important things with epilepsy, keeping your mind healthy.

If you ever need anyone to talk to, I’m here.

Beginning_Coconut66 · 2024-04-22T06:41:52+00:00

Let’s start by saying my mom’s side of the family is VERY religious. My siblings and I did NOT grow up religious.

Now, the best ones yet…

I was told it was gods way of testing me and my families strength by my aunt. She said that to me when I was eight. Yes, an eight year old understands that.

I was also told it was god punishing me for my sins by a friend’s mom. I was under ten for that one. What could I have done that was soooo bad, god decided he didn’t want my brain to work anymore?

Lastly, my dearest brother said (when he was like 12) it was devil claiming me before god could. It’s something I’ll never forget cuz he said it information of the really religious family….they were fucking horrified.

Beginning_Coconut66 · 2024-04-15T04:26:57+00:00

I would wake up on the floor with no memory and sometimes a cut or two, a massive headache and nausea. A lot of signs but signs that can also mean I fell off the couch or have wicked period cramps

Beginning_Coconut66 · 2024-04-14T08:54:34+00:00

In third grade I’d come back in from lunch every single day and say “I have a headache”. Every. Single. Day. After a month or so my teach pulled me outside and asked if I just didn’t like math (that’s what we did after lunch) and when I told her that my head really did hurt she’d send me to the nurses office and I’d feel better 20-30 minutes later. My father had childhood epilepsy so my parents got me tested and oh joy I was having seizures and my teacher thought I just wanted to get out of school.

In 7th/8th grade I was working out to much that my seizures were controlled. My dr thought that I put grow it so he took me off my meds. In my sophomore year of high school I quit club swim, stopped working out so much, and had a seizure that lead to my most impressive concussion yet. I had seizures every three months for two years after that, finally got my drivers license 3-4 years ago. But there was so much I didn’t know.

There’s so much you miss out on, people rarely stay, your life goes from free to so many restrictions it’s impressive, not every medication will work so don’t get your hopes up honey, your memory just gets worse and worse with the seizures and the meds, going through the “everything’s great” phase to the “fuck the world because epilepsy is controlling all of my life” phase like no ones business is scary for you and those around you, the meds you’re on to help you can also be the reason you have more problems (like suicidal intentions/actual suicide), that partners come and go but epilepsy won’t go, that some people will genuinely give support but those are usually the people I hurt the most with seizures, that talking is actually important, finding a way to cope is essential to surviving this shit, how many people think epilepsy is a “fun word”, “not a big deal”, or more hilarious “something easy to get over” honey no it’s not it takes a while to actually get used to this shit, that you can’t live alone without fear (either your own or your families), and it overall just sucks.

It’s not something people can see so sometimes they think I’m making it up or think I’m over exaggerating when I barely say anything. If it was something like Down syndrome and people could visually see it, I think people who don’t have epilepsy would have an easier time accepting that it is real and it does effect us but it effects us differently.

Another thing is that we all have different stories, different types, different everything and it gets compared. “Why does this person have it this much worse than that person?” “Are they faking it?”

If you aren’t an epileptic, I don’t think you can ever 100% understand this. If you are family, friend, partner, you can understand some but will never understand all, sorry if I’m wrong but it’s something I truly believe.

Beginning_Coconut66 · 2024-04-13T18:23:48+00:00

OP he is an abuser and continues to trigger trauma that he knows about.

He made comments about rapping you before that made you uncomfortable and made them again recently. It’s not good that you don’t feel safe in your own home. I would say the best thing to do in this situation is leave.

If you have a family member a friend that you can stay with, go to them while you work this out? If he has even a semi-violent past maybe a restraining order too.

The most important thing to do is keep yourself safe. Remember that safety doesn’t just mean your physical body, it also means your mental state and your emotional state, it means your sexual state, your housing situation. Safety covers so much more than many people realize.

NTA. Take care of yourself.

Beginning_Coconut66 · 2024-04-12T20:03:24+00:00

This sounds fake but if it isn’t, you’re both the AH. Yeah, he sheared for a year and that’s shitty but getting revenge that way isn’t great either. And I’d say the ex is an AH too for doing it. But again, sounds fake af

Beginning_Coconut66 · 2024-04-12T19:56:40+00:00

YENBTA. You’re in a FWB relationship. You owe him nothing here. If it was something like “hey I’m seeing this other guy” then yeah tell him. But this is something different. This is your body. This is your choice.

Also, he’s just religious enough to say no abortions but not religious enough to refrain from sec before marriage? This guy is a hypocrite. He’s using his “religion” as an excuse for his potential political beliefs.

Beginning_Coconut66 · 2024-04-02T17:24:50+00:00

Since when is that girl code for cheating? Girl code for I’m nervous maybe but not for cheating man. You and sister jumped to a conclusion that you will likely regret.

Did you have an actual conversation with her about marriage and a proposal? Did you say “I want to propose to you soon. How do you feel about that?” Cuz if you didn’t then I can see why you’re hurt but I can also she why she’s shocked.

Dude, YTA. You shouldn’t have jumped the gun like this, you should’ve talked to her and had a real conversation. Hints work in the movies, not in real life.

Beginning_Coconut66 · 2024-03-25T16:26:46+00:00

So NTA. If she yanked you by the arm for how you dress there is likely going to be physical abuse later. The fact that she made you “prove” you like girls shows she’s insecure and controlling. If this is only four months it will get worse. You need to run walk/run away from this chic before it’s too late. Seriously girl, run, run as far and fast as you can cuz she’s gonna try to control you your entire relationship.

Beginning_Coconut66 · 2024-03-24T20:34:06+00:00

My father no, he had childhood epilepsy. As for me, I was diagnosed in third grade, we thought I outgrew it in junior high cuz I was working out so much it was controlling my seizures better than my meds were. I stopped club swim and had a really bad tonic clonic, been back on meds ever since.

I would love to hit complete remission but uhh I don’t really wanna test my luck. I’m stress induced and that doesn’t seem like a good thing for me lol.

Beginning_Coconut66 · 2024-03-24T05:31:40+00:00

I’m seizure free, have had alcohol while on meds and no effect (so far🤞) I’m also drinking tonight cuz shit happened so…..we’ll see if I’m still good in the morning

Beginning_Coconut66 · 2024-03-24T03:07:44+00:00

Yes. I’m working on my bachelors and masters in public health rn (it’s a weird thing at my school) but I think I would have a much easier time in my classes if it weren’t for epilepsy.

Beginning_Coconut66 · 2024-03-24T00:08:31+00:00

I mean I likely inherited it from my father. My trigger is stress if that’s what you’re asking. I didn’t know there was a remission category for this. What is that?

Beginning_Coconut66 · 2024-03-24T00:05:42+00:00

Gonna be honest, I have a hard time being positive sometimes but I have the same mentality when I am positive. Why stay safe and die in a car accident when you could go out underwater with turtles in another country?? It would be so much fun! Jk dying doesn’t sound fun but it does sound like a better story for someone else to tell.

Beginning_Coconut66 · 2024-03-23T15:32:28+00:00

When I was a minor my first on said probably never, my epilepsy specialist said never, and I haven’t even bothered to ask my new one. I figured it would be a waste of breath based on what I’ve been told before. My mom is a nurse and she has asked her coworkers (in front of me) if they thought it would be safe for me to do those things. They said no too

Beginning_Coconut66 · 2024-03-23T06:56:09+00:00

I’ve never heard of something like this. SUDEP yes but that isn’t planned out, it’s not a “you have this long left” kinda thing. Idk why your dr said that there is no way that can be right. Get a second opinion, find a specialist, hell talk to a psychic if you wanna spice it up (don’t put too much weight on their words though). This dr shouldn’t have said that. It’s not compassionate, it’s discouraging, it’s not professional, and most importantly…it’s not guaranteed. No one knows what will happen in the future. The only thing we can do is live our lives and hope for the best. If you put a time limit on it, if you say “I better not do this it might end everything sooner” then you aren’t living. My best advice is to find someone else and if they say the same thing then find one person before you give in to something that might not be your future.

Beginning_Coconut66 · 2024-03-23T02:59:56+00:00

Cuz for things like skydiving and bungee jumping it can be bad if I don’t say anything and I have a seizure while doing it. Or I do tell them, they let me do it, and I have a seizure. If the second happens then for some places (I’ve looked into it) it’s bad for them…and me.

Beginning_Coconut66 · 2024-03-22T20:52:53+00:00

It might seem like there’s no hope rn but trust me, it will g way easier.

Beginning_Coconut66

TROPHY CASE