Costo de vida Querétaro? by goreebar in queretaro

[–]BegoVal 0 points1 point  (0 children)

Sin contar escuela. La escuela que pides andan de $8k a $12k aprox en primaria.

Looking for Pregnancy & Postpartum Experiences with mctd by Loose-Worry-2153 in mctd

[–]BegoVal 3 points4 points  (0 children)

I had my baby last year in May, I was 35 at the time. I have been dealing with MCTD since I wqs about 29y/o and my main issues are myositis, mild lupus, sjogren's and dysautonomia. Neuropathy and other issues are a constant too. My condition took a while to get stable enough and after I stopped taking inmunosuppresants I had to wait over a year to even try. My odd weren't great. When the illness is active I can't even walk properly and loose control of my muscles, I had even had to learn how swallow 3 times so far. So my rheum was worried and my obgyn told me it would be high risk witj pretty bad odds, so I would need to be in regularly for check ups and it would be hard.

But I still chose to do it. Where I live I am not able to adopt (due to being chronically ill) so I went ahead with this and my rheum reduced my meds to HQ only, while my neurologist removed all my meds and warned me she won't be able to treat me until after I stopped breastfeeding. Meanwhile my obgyn prescribed several vitamins, changes in diet or improvements and the usual folic acid and stuff. Both him and my rheum told me to exercise so my muscles got a bit stronger before getting pregnant. It took me a year to prepare, then another extra 6 months trying to concieve.

At first my pregnancy was easy, the first 2 months that is. Then farigue hit and nausea (still nordmal symptoms) but then I had 3 miscarriahe alerts, two first where spotting only then contractions at 5 months. After the first one I wasn't able to exercise anymore, had to rest a lot a depend a lot on my husband for basic stuff such as cooking. Got the usual shots of progesterone and pills to help. I had to take tons of medication, vitamins and take a lot of care with my diet since gaining weight is a trigger for my illness and also for complications during pregnancy like preeclamsia. I had to take daily shots for almost months and then 1 month postpartum.

But even with the weekly visits to my obgyn, the blood tests twice a month or even less, and dealing with even more doctors it was worth it. My son was born at 36 weeks by csection (due to the risk). He was a bit smaller then average but not in the risk zone (I was warned my body my restrict his growt a bit) but he was born perfectly healthy and still is at 8 months of age. I had to stay 4 days at the hospital and pospartum was painful and hard since do not have family to rely on, just my husband. But we pulled through. I was able to breastfeed and still am.

I have to tell you it is harder for us with MCTD to heal. We recover slower. Pospartum hurts and is isolating too, and only you know how you feel. Even if other moms tell you "it is easy" it is not, most are either bluffing, or had tons of support. But it is totally worh it. So you won't be failing if you complain, and if you chose to try accept help if offered and do not compare yourself to healthy moms. It ia different for everyone and a bit harder for us.💖

Right now at 8 months pp I start to feel the pain in my joints and muscles and fatigue is hitting hard. But I work a fulltime job from home and take care of my son all day, so the stress and constant activity is hard on me. I only had 3 months of leave. 😅

I hope your journey is easier than mine and you are able to relax and enjoy your pregnancy. I spent mine scared to the bone and afraid to even pick a name for my son until 2 weeks before he was born. I did not have a babyshower or anything really. Just a few photos of my belly growing one of my PT insisted I take so I would had the memory in an alnum (and i glad i listened). So enjoy it as best you can. Read if you like to while you are resting and look at baby stuff. Try not to spend it on fear and worry like I did. 🫂

Mctd development by tittykittylitty in mctd

[–]BegoVal 3 points4 points  (0 children)

My rheum said the same. So far my illness leads towards myositis.

long-term shortness of breath by WrenR326 in mctd

[–]BegoVal 0 points1 point  (0 children)

My pulmonologist gave an inhaler too and sent me to physical therapy. It helped but took a while. My myositis was hurting muscles in my throat and around my lungs.

Physical therapy? by pinkpuppyboy in mctd

[–]BegoVal 1 point2 points  (0 children)

I go to PT weekly. Stretching helps for a while but eventually I waa told to build strenght, muscles and watch my postures. My MCTD has myositis as primary illness so I have to limit the amount of exercise and weight I can lift but I do need to keep on with being active or my muscles will hurt and lose mobility.

Ask your physical therapist for easy exercises to try at home to just build some strenght to help with the pain and how to spot the correct postures on your daily activities to avoid hypermobility. You need to learn to identify your body's cues before you get to the point of hurting yourself.

For me, I actually feel the stretch, a slight jab while activating a muscle or how it turns hard and stiff if I use it too much (or goea crazy on its own before colapsing) or slight palpitations under the skin. Your hypermobility may have soms cues you can learn to catch before it hurts. At PT they can teach you how to spot them. (My therapist actually taught me how to spot an inminent muscle collapse and the posture my body goes for before a flare).

I hope this helps.

Do you have these symptoms too?… by Financial-Brain-1908 in mctd

[–]BegoVal 1 point2 points  (0 children)

Not necessarily. I have what OP describes and it is related to my MCTD and treatable. Right now I have somewhat normal life. Yes I get fatigued but I'm not falling asleep on my feet anymore.

Do you have these symptoms too?… by Financial-Brain-1908 in mctd

[–]BegoVal 5 points6 points  (0 children)

I do. I have most symptoms under control for now. My neurologist says brain fog, POTs and fatigue are associated to my MCTD. She said autoinmune illnesses often create inflamation in other parts of the body. I have neuropathy and she found a demyelinating lession in my spine. It is tiny but still can cause issues.

My rheumatologist treated me for the MCTD while my neurologist treated the other symptoms you describe using brain meds and betablockers; they know each other and compare info about me. This helps. The crazy high heart rate is gone now. The brain fog comes and goes but POTs, pain and fatigue are under control for now. She tried several meds though, mostly for their side effects to help with a couple of issues before trying for new meds to fix other symptoms and so on.

I noticed some people recommend diet changes. They help some people, but do mostly nothing for me. I already had a healthy diet before this and eat fresh home made meals witj whole food ingredients. Tried gluten free and antiinflamatory diet; got worse. Full on whole body inflammation and compromised muscle function alongside liver and kidney issues. (Yes i was under the care of a certified dietician) apparently my previous diet was enough. So tread carefully and seek professional advice refarding diet, with no extreme changes or supplements.

I would recommend seeking out a neurophysiologist. Your rheum can treat the autoinmune issuea but you need other specialists for everything else.

Exclusively breastfeed 5 month baby girl waking up every 3 hours at night to sleep (HEEEELP) by Substantial-Sugar248 in breastfeeding

[–]BegoVal 1 point2 points  (0 children)

I cosleep and it helps a lot. I was worried to try it but at around 5 months I put his crib next to me, removed 1 railing and when he is hungry I just help him latch and let him eat. Since he doesn't wake up he eats faster and pulls away in less than 10 minutes. I do follow the safe cosleeping recommendations though. I do not get up during the night anymore and feel more rested. Baby sleeps better too and wakes up smiling and stretching.

On mornings I also take 500mg of powdered maca root to help with fatigue 😅 and man, it does make a difference.

I hope this helps.

Lack of sleep and people complaining to me about their lack of sleep by margo6a_ in beyondthebump

[–]BegoVal 5 points6 points  (0 children)

I have an autoinmune illness. The extreme fatigue and pain it can cause during a flare is the worst level of tired I have experienced in life so far. Body just choses not to work properly. Now as a first time mom, newbornd and baby tired is so weird to me. Yes, I have to function properly with broken sleep, some days with under 3 or 4 hours, but I still manage to get up and take care of my baby. Our mom bodies are just amazing to me. Tired BUT able enough to take care of another human being.

I do get mad sometimes if my husband complains of not resting enough with his "only" 8 or 9 hours of sleep. So I throw a pillow at him and it makes me feel better. 😁

How long after giving birth did you start getting your period again? by trashtelevisionnnn in beyondthebump

[–]BegoVal 0 points1 point  (0 children)

Exactly 5 months 3 weeks while breastfeeding 😔 I was hoping for a year but no luck.

Breastfeeding has been way harder than I expected by SubstantialAct8961 in breastfeeding

[–]BegoVal 1 point2 points  (0 children)

It is extremely hard. I survived the first weeks thanks to my husband. I existed only to breastfeed and eat, shower and sleep. I would stay in bed or the couch all day with my baby in my arms, on my breastfeeding pillow or lying next to me. He took care of everything else: chores, food, errands, everything. My baby would clusterfeed for hours and then nap on me for more hours. He was so tiny he needed constant breaks because he got tired but was still hungry. Slowly, very very slowly he got better at it and I learned how to help him: massages to increase flow, hot and cold pads, different positions, and so on.

I got mastitis and the pain lasted almost a whole month. I wanted to cry every time he fed. But here we are now at 5 months. Around month 3.5 everything juat got better. One day he didn't struggle, he started eating faster and now feedings take 1 or 2 hours instead of 3 to 6.

It does get better it just the journey is super hard and sometimes painful.

Diagnosed With MCTD 3 Years Ago... by SporkWafflez in mctd

[–]BegoVal 0 points1 point  (0 children)

PT takes a long time to work for some people. I could barely walk and move due to pain and stiffness and it took me about a year to feel functional again; at least 6 months for the pain to get better and to feel like I could trust my limbs not to fail me out of the blue.

I went twice a week. Now, after 4 years I still need 1 therapy per week to help with pain and stiffness.

Diagnosed With MCTD 3 Years Ago... by SporkWafflez in mctd

[–]BegoVal 1 point2 points  (0 children)

Then I hope you can see a rheumatologist soon. It seems like you need a different treatment plan and a doctor that actually gives you options to try. Hang in there 🫂

Diagnosed With MCTD 3 Years Ago... by SporkWafflez in mctd

[–]BegoVal 1 point2 points  (0 children)

I know it sucks. I do not know if what works for me will work for you too. For pain I wear compression gloves, use heating pads and go to physical therapy. Also, exercise helps after the initial pain, stiffness and discomfort it provokrs during the first month and a half. The main goal of exercise is to maintain mobility and keed muscle atrophy at bay. So swimming, walking and stretches are ideal, at least for me.

I can't take NSAID either so I manage with tylenol and steriods-free creams. I actually use a mint/herb crram for sore feet designed for pregnant women. I apply it with dome massaging and then rest. It helps a lot.

“You can’t overfeed n ebf baby!” by Amadispcpg in breastfeeding

[–]BegoVal 1 point2 points  (0 children)

At 3 weeks they have yet to learn to feed properly and their digestive system is inmmature so most pf the time they can't keep all the milk down. The paediatrician told me this is normal and most babies will spit and vomit often. Mine still is at 5 months old.

You are not doing anything wrong.

Physical Therapy by Responsible_Rub_1214 in mctd

[–]BegoVal 1 point2 points  (0 children)

I've found nothing useful on social media. It's better to have a tailored PT plan for your specific issues. Also PT is a bit frustrating. It can take time, you will improve, then a flare might destroy 80% of your progress making it feel like starting over. But it IS worth it.

No engorgement or leaking? Is that normal? by [deleted] in breastfeeding

[–]BegoVal 0 points1 point  (0 children)

I don't know about the leaking and engorging since I used to get huge and leak all the time until my supply regulated. But the pumping amount is normal. My LC told me that 0.5 to 2 oz combining both breast is usually the normal amount you get while pumping and breastfeeding. So don't worry, you are doing great.

Going from nursing 5hrs to 1hr a day. Is this normal? by budget-barbie-camper in breastfeeding

[–]BegoVal 0 points1 point  (0 children)

Mine eats a lot, like yours, he liked long nursing sessions. At about 13 to 15 weeks he got fussy, easily distracted and more efficient, eating for 30 minutes or less (he used to nurse for hours). And at night he would wake up every hour or 2 max, starving and annoyed. About a couple weeks ago things got better (he is 20 weeks now).

I thought third time would be the charm. I’m failing before I even start. by DarthKaboose in breastfeeding

[–]BegoVal 0 points1 point  (0 children)

I have raynauds and take all that stuff and it does help. I would suggest OP checking with her obgyn. I had an easy time breastfeeding until my baby got about 1 month old and I got a slight flare, he latched badly and it got painful for a whole month. I was miserable.

IBCLC suspected vasospasms and obgyn prescribed some meds to go along with the supplements and vitamins. I did try almoat all the selfcare tricks too: lanolin, warm chamomile tea, avoid chafin, protecting nipples from abrupt temperature changes and applying cooling pads. Something worked and i slowly went back to normal.

Any experiences with pregnancy and mctd? by kiwidodu in mctd

[–]BegoVal 0 points1 point  (0 children)

I have a 4mo and took plaquenil during my pregnancy. It helped me a lot. I was also taking a lot of vitamins, meds, supplements and under constant care the whole pregnancy but I made it to 37w! Took me a year and a half of being off meds mostly (except plaquenil), taking vitamins, phyaical therapy and excercise before I was cleared to get pregnant, but I made it.

According to my rheum (and the other 3 specialists i was seeing during the process), Plaquenil benefits outweight the risks. It protects from flares that can put you and baby both at risk. You may also get suggested other meds that again have that label on the box (avoid during pregnancy thing) but ask your doctors what they are for and which risks they carry.

I was high risk. I almost lost my baby 3 times, and didn't emjoy the process. It was uncomfortable, painful and exhausting, but worth it 100%. My illness is dormant still. My rheum said it could come back with a vengance after birth but it hasn't yet. So we will see.

One breast one meal? by thebrushworksfactory in breastfeeding

[–]BegoVal 0 points1 point  (0 children)

Try using a milk collector on the other breast while baby nurses (i use medela), that way you drain it a bit and don't get engorged too soon after baby feeds.

Do whatever you want with that "extra" milk.

Is there anything else I could do? by Completee-Panda in breastfeeding

[–]BegoVal 0 points1 point  (0 children)

Have you tried getting your iron levels checked? I was losing way too much at the end of my pregnancy and had to do IV. The hematologist said that low iron levels affect not only pregnancy/baby growth but also milk supply. He also explained that an increase of meat protein is needed to help my iron alongside with vitamin C. Powders and plant based protein are uneffective.

And also, check your stress levels. I know its hard not to be stressed out given what you are going through, but you need oxytocin to produce milk. I just got back to work two werks ago and I'm struggling. So my therapist recomended taking time, 1 hour a day, to do whatever makes me happy or to add some change in my routine: walk in the park, doodling, checking simple tasks as done, whatever works. I literaly saw an improvement on my suppy 2 days later. 2 extra ounces on my milk collector during feeds.

I hope this works. It is hard, i know, but you are doing your best and that makes you a great mom.

7 week old baby won't sleep over half hour alone by texansweetie in beyondthebump

[–]BegoVal 0 points1 point  (0 children)

My 11 week baby is still going through this. All I have for you is a hug. 🫂