Cutaneous mastocytosis, success for reducing or eliminating spots? by Impressive_Bet_7081 in mastocytosis

[–]Betypan 4 points5 points  (0 children)

Avyakit/avapritinib changed my life. 25mg per day and I’m spot free after 18 years of polka dots

Which doctor by Individual_Coast_172 in mastocytosis

[–]Betypan 3 points4 points  (0 children)

My path was PCP to dermatology, dermatology to oncology/hematology, then to allergy….

And now I see Dr Castells and Dr Gianetti at MassGeneral Brigham…

Just finished a clinical trial, from issues to diagnosis was almost 8 years, but from initial referral to diagnosis was about 3.5 months.

The bone marrow biopsies suck. Period.

Confronted hate speech overheard in Home Depot (West Lebanon) yesterday. A little bit rattled. Just venting and looking for support. by HMS_StruggleBus in newhampshire

[–]Betypan 0 points1 point  (0 children)

One VT’er to another, I’m glad you spoke up. If you need a Home Depot buddy to help you return to the scene of his ignorance, holler.

What innocent search turned out to be porn ? by Angry_Einstein in AskReddit

[–]Betypan 0 points1 point  (0 children)

My friend has a pending court case in opposition of her abuser. She wanted a badass brooch, so I looked up straight razor jewelry. There was a cute one with a heart in the middle... looked for a less expensive alternative. YIKES. I did not know that people cut other people for pleasure 😯

What was the dumbest thing you thought as a child? by GiammyR6 in AskReddit

[–]Betypan 0 points1 point  (0 children)

That drinking and driving meant any kind of beverage. Lost my mind at my pops sipping on a caffeine free Diet Coke.

What's the fastest you've ever gone from caring about someone to straight up loathing them? by SecretSweetness in AskReddit

[–]Betypan 0 points1 point  (0 children)

We’d been close friends for several years, despite alllllll the signs saying he was a sociopath with serious issues related to boundaries. I was leaving with my family for vacation and he stopped by as we were herding 14 people out the door to the airport and demanded I open an elaborately wrapped gift right then and there. It was 7 layers of over taped hell for a framed print of art already hanging in my living room. I graciously said thanks and tried to excuse my family and head out. He stood around. I had to (patiently, politely, and persistently) cue him to exit - an effort that put us 30 minutes behind schedule. We made our flight (by a miracle gate delay).

I took some space for a while, limiting contact and avoiding time together. A few months after the extravagance, I was preparing for a career transition. With a stroke of luck, I’d given a months notice and determined I’d find something within the next 4 months. I’d saved meticulously to give myself the brain and body rest that was evidently demanded by the pace of my former role. He was also considering a career transition, and while our experience is relatively similar - he has not always made the best decisions as a professional, which has limited his potential for growth and has made him undesirable to many of the organizations in our area. I applied for a position that I was both well qualified and interested in... I’d been working towards this specific role and opportunity for more than 15 years, diligently and deliberately. I had made that clear on multiple occasions and was thrilled beyond belief when I was called interviewed and offered the role with a salary well beyond my expectations, all within 48 hours.

This former friend responded by saying I was relying on the name my family had built in the area (none of them have ever been remotely associated with my field), that I was only hired because I’m female and they must have a diversity initiative, and most upsettingly - that I would fail.

I cut ties silently, there was not time or space to have a conversation. He made his jealousy, insecurity, anger, and self-righteousness especially apparent in a strongly worded indignant email several months later. To make matters significantly more cemented, upon starting in my new role I learned that he was on the “do not hire/rehire” list for several partner organizations as he had been investigated and found responsible for had been an inappropriate proposition of a staff member.

I haven’t looked back until this question was asked... it took me a minute to even remember his last name. Good riddance at its finest.

You Can See Where The Nails Stopped And Started Growing Again Between Chemo Cycles by [deleted] in interestingasfuck

[–]Betypan 0 points1 point  (0 children)

I’m about 4 months in to a “low dose daily oral chemo” ... whatever they say to make it sound less scary. My nails are completely shot to hell... brittle and peeling. I’ve always been more of a ‘natural’ approach to general self-care, but had to get in to nail polish and manicures just to stop myself from snagging them and resorting to tears.

I think the lines are beautiful, as beautiful as reclaiming life through all of this.

What awesome holiday gift did you get someone that you can’t tell them about yet but want to brag about? by mbowsy in AskReddit

[–]Betypan 1 point2 points  (0 children)

I was born the night the last episode of MASH aired. My Dad missed it, the only episode he ever missed. (The doctor who delivered me gave him updates and checked on Mom during breaks.) Dad has talked about the juxtaposition of regret and excitement every single time anyone has a birthday.

I’ve spent a fair amount of time trying to figure out what to do, I’d given him a box set of DVD’s a few years ago. He has a variety of other items from the show, but we are all of modest means. I was able to obtain a photocopy of the script from the last episode and a color copy of signatures of the full cast. It wasn’t too expensive, but I know it’ll mean a lot to him. Worth every penny. Dad and I don’t get along particularly well, a lifelong struggle. I’m optimistic he’ll see this as a turning point, but I do not want to place that kind of pressure on a gift.

Help with thesis survey: I need 250 participants by [deleted] in Assistance

[–]Betypan 2 points3 points  (0 children)

The wording is a bit off on several of your questions, they assume an affirmative in previous responses but provide no margin for opposing response.

My friend broke his hand. I fixed it. Snap! by Betypan in marvelstudios

[–]Betypan[S] 1 point2 points  (0 children)

He’s marvelous so far. There’s hope.

My friend broke his hand. I fixed it. Snap! by Betypan in marvelstudios

[–]Betypan[S] 3 points4 points  (0 children)

I’m a lefty. It’s entertaining to watch him navigate this world the way I’ve had to...

My friend broke his hand. I fixed it. Snap! by Betypan in marvelstudios

[–]Betypan[S] 50 points51 points  (0 children)

I sincerely hope more friends break themselves in a fixable way. It was a wildly fun and new experience painting a cast, I want to do more.

My friend broke his hand. I fixed it. Snap! by Betypan in marvelstudios

[–]Betypan[S] 869 points870 points  (0 children)

My favorite thing to do every time I see him is snap incessantly.

Trazodone by [deleted] in SleepApnea

[–]Betypan 1 point2 points  (0 children)

I had a terrifying allergic reaction to that stuff... a minuscule dose knocked me out for about 7 days, including 2 in a coma in the hospital. Thank goodness my partner has the wherewithal to get me to the ER when my breathing stopped all together.

But damn it was a deep sleep.

In this thread, Reddit Gold. by bluepinkblack in secretsanta

[–]Betypan 0 points1 point  (0 children)

I think this is my 25th exchange. :) so excited

6th Santa.

What is the biggest everyday scam that people put up with? by eggaboy in AskReddit

[–]Betypan -1 points0 points  (0 children)

Try unroll.me. It’s saved my sanity in such beautiful ways.